After a Lung Cancer diagnosis, it is normal and expected for even habitually calm people to worry about their futures. But what happens when those worries begin to “take over”, interfering with your ability to enjoy your life? Most of us are familiar with the quote by Barbara Cameron, “Worry about tomorrow steals the joy from today”. However, as cancer patients, our relationships with worry are usually more complicated than that.
Worry, like any uncomfortable feeling, is often a signal t
...So this is what the process is like trying to schedule a COVID-19 vaccination. If you're lucky though, you receive an email reminder - since you've pre-registered, advising you that the time to strike is now. You click on the link, and as I'm witnessing, you wait your turn. The site says there's "High Traffic," and they'll be with you momentarily. There's no calling. There's barely any responding. There's simply sitting and staring - and waiting. There's no indication of how long you'll be wa
TARRYTOWN, N.Y. and PARIS, Feb. 22, 2021
Libtayo was superior in extending overall survival compared to chemotherapy in a pivotal trial that allowed for certain disease characteristics frequently underrepresented in advanced NSCLC trials
This is the third approval for Libtayo in the U.S.
Regeneron Pharmaceuticals, Inc. (NASDAQ: REGN) and Sanofi today announced that the U.S. Food and Drug Administration (FDA) has approved the PD-1 inhibitor Libtayo® (cemiplimab-rwlc) for the first
Today marks 5 years since my diagnosis. It seems like just yesterday but also a lifetime ago - at the same time. It brought me to the club I never wanted to join but introduced me to so many wonderful people. I am thankful for my medical team and all of the research and advancements that got me to this point.
Looking forward to marking next year's cancerversary with all of you.
"Just when I thought I was out ... they pull me back in." And just when I thought I had a month off from cancer-related appointments, infusions, scans and lab work, et cetera, I experienced a new symptom the other day which warranted an unexpected brain MRI. Though I delayed a few days in sharing my new symptom, on Thursday I emailed my oncologist. Within the day (not nearly soon enough for my wife, Dina), I received a call from my doctor. After a brief conversation during which I described my s
Means what exactly? That was the suggestion written by the pathologist after "non-small cell lung cancer" was written in the "diagnosis" section of the pathology report completed after my original surgical biopsy was performed at Holy Cross Hospital in early 2009. I had never seen this document until this past week, finally retrieving it after nearly 12 years, represents a kind of symmetry. Though 2009 is when my life as an officially-diagnosed-lung-cancer patient began, I am not at all prepared
Today I celebrate 17 years surviving lung cancer. COVID is a nightmare. But, I am celebrating nevertheless. Life after lung cancer is precious and most worthy of celebration.
You might note I’ve run out of toes to paint. I do this to honor Phillip Berman, MD, a radiologist with Stage IV lung cancer, who was instrumental in my survival. Phi resolved to paint a toenail red for each year he survived “this madness.” He painted 5 before passing; I continue the tradition using LUNGevity Blue. My
I received in the mail today what, in the sales/marketing world, we'd call a "pre-approach" letter. It was a letter confirming that my healthcare provider is aware of me and my COVID needs. Moreover, it offered up the tantalizing notion that one day (although they didn't specify) when it is my turn, I will indeed get contacted/scheduled for my inoculation. Unfortunately, they couldn't be any more specific because their allotment of vaccines barely scratches the surface of the actual need. Nevert
Let's Bend the Rules for All the Right Reasons
By: Amanda Nerstad
This pandemic has been hard on everyone. Covid-19 is scary to me, especially as a stage IV lung cancer patient. I have followed all of the rules. I mask up when I go out, I choose to stay home as much as I can, I’m not visiting other homes, our family is not taking visitors in our home, we use grocery delivery services and we do our best to keep everyone healthy.
I’ve had to explain to my daughters
Or to quote my high school baseball coach: "Reorientated." A cancer diagnosis, especially a "terminal" one, can cause that. However, what I'm addressing this week is money: what to do with what you have when you didn't expect you'd still have it. And by 'have it,' I mean you're still alive and you still have some control over what to do with it.
What this previous paragraph questions is what to do with the money you've accumulated your whole life after you've outlived your original prognosi
...don't exactly go together like milk and cookies. Rather, they go together like snow and ice. One or the other is bad enough, but together they become even worse. And unfortunately I have one and am constantly worried/mindful of the other. Moreover, since COVID is kind of a pulmonary issue, those of us who have cancer in the lungs, where we're already compromised, need to contract a virus like this like Washington, DC needs a "wintry mix'' in the forecast.
In the course of my ongoing papi
mum has been ill for 11 months now. some hospitalisations, care at home. chemotherapy treatments.
The doctor tells us that mum is ready to stop fighting. What a cowardly catch.
He tells us to prepare ourselves for the hardest part. She is making her way. She is accepting the disease, and the fatality. Because the treatment will not be able to save her.
It is the anguish.... we do as usual, we wait, the day when, mum will tell us "I don't want to fight anymore", "I'm tired, let me go".
Incurable but treatable non-small cell lung cancer, stage IV for incurable but treatable papillary thyroid cancer stage IV. And though it may have taken a while to get re-diagnosed (nearly 11 years), the eagle, as they say, apparently has landed. Nevertheless, I'm glad to still be here. Let me amend that. After being given my first "terminal" diagnosis in late February, 2009, with an accompanying "13 month to two year" prognosis, I am glad to be anywhere. Still, it would have been preferred had
As I sit and write here, with too much time on my hands, I can't help but consider my lot in life. In a little less than two months: Feb. 20, I will celebrate (if that's even the right word), the 12-year anniversary of my original cancer diagnosis. On that date, I received a phone call at work from my internal medicine doctor advising me that the previous week's surgical biopsy indicated a malignancy in my lungs. The following week, Team Lourie was sitting in an oncologist's office waiting for t
Having recently returned from a driving sojourn through the south with stops and stays in North Carolina, South Carolina and Florida visiting four sets of friends in those three states, I can say with certainty that wearing masks, social distancing and common sense consideration for your fellow citizen were not nearly so accepted as we had hoped. Though we didn't exactly mingle with the masses, we were, nonetheless, in unchartered territory. As such, my wife and I will be getting COVID tests aft
... and now I'm out - of the Handel's Messiah sweepstakes. The sweepstakes being to write in 50 words or less on "Why do you love Handel's Messiah?" All I can answer is one word: Hallelujah, and I don't mean the chorus either. 'Three strikes' refers to the number of times I have now been subjected to this "holiday tradition." The first time I was an attendee - with thousands of other Washingtonians. in a jam-packed National Cathedral one Christmas season. The second time, while visiting my fathe
The non-stop - or, so it seems - television advertising letting all of us viewers know that the 2020 Medicare Open Enrollment window is about to slam shut is nearly over. For those of us age 65 or older, this is not an opportunity to ignore. And given the frequency and repetition (the commercials are repeated, rarely ever different), at least on the channels that I watch (maybe that's the problem?), I feel like Bill Murray reliving his previous 24 hours endlessly in the movie Groundhog Day. Howe
Recently found out that I have cancer in left lung along with pleurisy effusion and enlarged lymph glands. I will be getting a biopsy and drain the pleurisy effusion this week, I have a C&P exam next week that will designate me as a Veteran with a 100% service connected disability. This will be a major factor in working with the expenses that are sure to happen with me. I am able to secure a non-VA specialist since my local VA Medical Center is not equipped to work with lung cancer pat
Not that I'm the most-stressed about it, but I am at least stressed about a bone scan I'm having this week. The reason being that thyroid cancer that's metastasized - which mine has, sometimes moves to the bones. And since I have some knee-hip discomfort, particularly when I get up from a seated position, my oncologist ordered this two-step diagnostic process: an injection of something followed a few hours later by the actual scan to assess the damage. Not that I want to look for trouble (since
It is a beautiful Thanksgiving Day in Texas. Amid COVID mayhem we are suffering, Mother Nature decided to intervene and give us this gorgeous day to remind me about the important things in life.
I've been blessed in so many ways since my surprise lung cancer diagnosis in February 2004. I married the love of my life, walked my daughter down the aisle, experience the birth of my granddaughter, enjoyed glorious vacations, and perhaps most important found meaning and purpose for life after lung
Let us presume, for the sake of this column, that I only have papillary thyroid cancer stage IV, and that my years as a non-small cell lung cancer patient, also stage IV, are over. If true, it begs the question, which I have been asked twice since this recategorization has become - in my circle anyway, public knowledge: how does it make me feel (to no longer be one scan result away from having months to live to now having years to live)? As obvious an answer as it should be: I can't exactly get
As my brother, Richard, has often said: "If the oncologist is happy then I'm happy." Let me update that sentiment slightly: "If the endocrinologist is happy then I'm happy." And so we should all be happy. Yesterday, I had my post CT scan telephone appointment with my endocrinologist to discuss the previous day's lab work and the two days previous scan. She was "very encouraged." "News," as I told her, "with which I can live." And more than just the words she spoke, it's the manner in which she s
... it was first-rate. A confirmation (of sorts) that I have (and have had in all likelihood) thyroid cancer and not non-small cell lung cancer. And I say 'sorts' because the medical records transferred did not include the original pathologist's report on the tissue sample taken in 2009 and not all the scans from the nearly 12 years of treatment either. Nevertheless, this second oncologist summarized my cancer as being thyroid, partially because I'm still alive. Generally speaking, lung cancer p