Tomm

Roseann,
my last infusion was in March and I still have my port, they use it for my CT with contrast every three months (tomorrow) and the doc said if it isn't a bother to me he will leave it in.
Why did the chicken cross the road?  Because the chicken behind it didn’t know how to socially distance properly.

Roseann,
my last infusion was in March and I still have my port, they use it for my CT with contrast every three months (tomorrow) and the doc said if it isn't a bother to me he will leave it in.
Why did the chicken cross the road?  Because the chicken behind it didn’t know how to socially distance properly.

Roseann,
my last infusion was in March and I still have my port, they use it for my CT with contrast every three months (tomorrow) and the doc said if it isn't a bother to me he will leave it in.
Why did the chicken cross the road?  Because the chicken behind it didn’t know how to socially distance properly.

Roseann
congratulations on joining the Done with Duva club. A year of your life is a big investment and it appears it paid off for you. 
A link on Naltrexone .. https://khn.org/news/naltrexone-addiction-medication-chronic-pain-treatment-small-doses/  
and this link is about it's use for cancer treatment https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6126779/  I get it from my naturopathic oncologist.
I was once bitten by a rabid female deer.
Now, every time there's a full moon, I turn into a weredoe.

Roseann
congratulations on joining the Done with Duva club. A year of your life is a big investment and it appears it paid off for you. 
A link on Naltrexone .. https://khn.org/news/naltrexone-addiction-medication-chronic-pain-treatment-small-doses/  
and this link is about it's use for cancer treatment https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6126779/  I get it from my naturopathic oncologist.
I was once bitten by a rabid female deer.
Now, every time there's a full moon, I turn into a weredoe.

Barb .. I hope the results show you are cancer free down to the cell level. 
Good news! There are well over 100 labs in America working on developing a vaccine.
Just wait til they get the German shepherds involved!

Thanks for sharing. Inspiring and aspirational story. Stage 3b and halfway through 26 projected Durvulamab course. Last scan 3 months ago and another planned but not yet scheduled . 50% shrinkage of Primary lung and nodes not remarkable upon it seems 
blessed that side effects been minimal though recent weeks mildly intrusive muscle and small joint pains . 12 months since unexpected diagnosis and excited to have beaten the 8 month survival odds to be able to walk my daughter down isle on 22ndAugust. It seemed such a far away goal at diagnosis and yet here we are with a positive future based on all your reported successes
 
kia kaha from New Zealand .Remain strong , positive and eyes on the future possibilities 
 
Grahame 

Oh my gosh, what an awesome "alert" I received this morning.....way to go Ron, congratulations. I do remember how devastating it was for you to get yanked from Durvalumab and the rigors you went thru to be in the Alk+ targeted therapy club. Awesome to get an update, and a miraculously beautiful update at that. I have been MIA from Lungevity, living life full and robustly well (my doctors words, not mine) and like everyone else, having my medical dance card emptied and fairly blank in this Covid environment. This month marks my 2 year anniversary since diagnosis of NSCLC Stg 3b and I'm 7 months out from completing my year of Durvalumab. Last Cat Scan in May, NED. And though I have been gifted with NED throughout my journey, like the ghosts of Christmas past and Christmas future, the memory of what was, and the haunting of what could be, is never far, always present as a reminder of my membership in the club no one wants to be a member of. I have learned to live with these hauntings, as a gift, to enjoy every blessed moment, to the best of my ability. Wishing everyone another step towards health, love and happiness.
Blessings, DFK

I see a lot of new names here and not many of the old "Durva Club" members which I hope is a good sign that Durvalumab worked for many. I did do a member update elsewhere in the Lungevity forums, but I wanted to post here as well as I spent so much time here over the past 2 years and met so many great people here. I still stop by here from time to time to check on you all. I would name names, but I don't want to leave anyone out because so many have been an inspiration and provided support, even during those "dark times". You know who you are!
My Update:
Diagnosed NSCLC 3a in May of 2018 with initial treatment being Concurrent Chemo/Radiation which was then followed by Immunotherapy. After 18 Durvalumab Infusions my CTs indicated probable recurrent cancer in main tumor and possible additional lymph node involvement/progression. Due to indicated likely progression, the Immunotherapy infusions were stopped. From subsequent NGS Testing (Tempus) of a biopsy tissue sample I discovered that I was PDL-1 Negative and EML4-ALK Positive. In October 2019 I started Targeted Therapy with Alectinib. Having had several CT's Biopsies, and PET Scans since, each indicating less indication of progression, the findings of my latest CT last week now read:  
No convincing signs of recurrent or metastatic disease in the chest. Postradiation fibrosis of the right upper lobe as described previously noted surrounding groundglass changes and nodularity of the right upper lobe has resolved and was probably related to postradiation pneumonitis. Mild scarring noted in the lingula, otherwise the lungs are well aerated. No new mass, consolidation, pleural effusion or new worrisome nodularity.
A great 64th birthday present!
Hope all are well.
RonH

Good morning! 
I wanted to share my CT results with you guys. This was my first scan since starting treatment in April (I'm getting treatment monthly, so this was #4 for me, which I guess would be #8 if I was going biweekly) and my tumor is down to 1.3 cm. 
I started at 5 cm back in December 2019 when they found it,  chemo and radiation took it down to 3.8 cm, and now I'm down even more. I'm so happy with these results! 
I had hypothyroidism before starting any of this journey and my levels were jumping all over the place, but seem to be leveling out now which is good. No other side effects to really report aside from a sour stomach in the mornings which my onc is not too concerned with. Treatment #5 is on Thursday, then more waiting!

Barb     Great news! When I got my news last week I treated myself to a piece of chocolate cheese cake... give your self a treat for the year you invested in Durva.
Grahame  ..  enjoy the wedding and the cake that goes with it . That's really fast good news on you progress.
Lindsay ...Hope you get great CT result .. #10 already ..your on your way
thanks everyone for the good wishes ..I hope you all enjoy the season
Q:  What do you get when you combine an elephant with a fish?
A: Swimming trunks!
Q:  Why don’t oysters share their pearls?
A: Because they’re shellfish!
 

I got a surprise phone call today from my onc nurse today. The results from yesterdays CT is NED. I was NED during my year of Durva. It managed to keep my cancer away ... good news for all patients. 
 What do you call seagulls that live near the bay?
Bagels.
 

Barb     Great news! When I got my news last week I treated myself to a piece of chocolate cheese cake... give your self a treat for the year you invested in Durva.
Grahame  ..  enjoy the wedding and the cake that goes with it . That's really fast good news on you progress.
Lindsay ...Hope you get great CT result .. #10 already ..your on your way
thanks everyone for the good wishes ..I hope you all enjoy the season
Q:  What do you get when you combine an elephant with a fish?
A: Swimming trunks!
Q:  Why don’t oysters share their pearls?
A: Because they’re shellfish!
 

Barb     Great news! When I got my news last week I treated myself to a piece of chocolate cheese cake... give your self a treat for the year you invested in Durva.
Grahame  ..  enjoy the wedding and the cake that goes with it . That's really fast good news on you progress.
Lindsay ...Hope you get great CT result .. #10 already ..your on your way
thanks everyone for the good wishes ..I hope you all enjoy the season
Q:  What do you get when you combine an elephant with a fish?
A: Swimming trunks!
Q:  Why don’t oysters share their pearls?
A: Because they’re shellfish!
 

Barb     Great news! When I got my news last week I treated myself to a piece of chocolate cheese cake... give your self a treat for the year you invested in Durva.
Grahame  ..  enjoy the wedding and the cake that goes with it . That's really fast good news on you progress.
Lindsay ...Hope you get great CT result .. #10 already ..your on your way
thanks everyone for the good wishes ..I hope you all enjoy the season
Q:  What do you get when you combine an elephant with a fish?
A: Swimming trunks!
Q:  Why don’t oysters share their pearls?
A: Because they’re shellfish!
 

Great news Barb. Sitting in chair for # 10 today. Lesion shrunk +\- 50% ,mediastinal nodes reported smaller , mild radiation scarring . Physically doing reasonably well. Looking forward to daughters wedding next month. Bonus as at diagnosis October 2019 that was not a “given”. 
 

Well another CT in the bag. Doc said go live your life and I’ll see you in November. 

I got a surprise phone call today from my onc nurse today. The results from yesterdays CT is NED. I was NED during my year of Durva. It managed to keep my cancer away ... good news for all patients. 
 What do you call seagulls that live near the bay?
Bagels.
 

I got a surprise phone call today from my onc nurse today. The results from yesterdays CT is NED. I was NED during my year of Durva. It managed to keep my cancer away ... good news for all patients. 
 What do you call seagulls that live near the bay?
Bagels.
 

NED is wonderful News. I'm so happy for you. Peace, light and great scans to everyone, Claudia
 

Hi Barb
Yeah, I really think we know where you’re coming from, seeing is believing in this group.  Sounds like you’re doing all the right things.  If you have to go to the mattresses, call your State AG or Senator.   That’s a headache the insurance company doesn’t want especially about a vendor.   Keep making noise! 
 
Michelle

Hooray for you and those Bay Gulls! Fly, be free!   Carry on!  

Tomm,
A NED scan: how about that? What a wonderful holiday gift. Now, take your bagels to the beach and feed the gulls!
Stay the course.
Tom

Tommy,
Yay you 🤗
Have a great 4th and wonderful summer! Bagels, ha! Your too much!
Take care,
Roseann

I got a surprise phone call today from my onc nurse today. The results from yesterdays CT is NED. I was NED during my year of Durva. It managed to keep my cancer away ... good news for all patients. 
 What do you call seagulls that live near the bay?
Bagels.