Jump to content

Patkid

Members
 View Profile  See their activity

  • Posts

    2,785

  • Joined

  • Last visited

 Content Type 

Posts posted by Patkid

    Brian's Oncology visit report

    in GENERAL

    Posted

    Please continue to lift us up in prayer.

    Brian could not get his 5th round of Cisplatin/VP16 yesterday. Doctor wants him to have another week to build up a bit first. He will get the 5th and final cycle beginning next Tuesday. Doc says that he probably has experienced the benefit available at this time, but will give him one more cycle to wring any last bit of shrinkage available from the process.

    Doctor said that he is beginning the paperwork w/ the insurance company to get Brian approved for Tarceva. He will start that med 4 weeks after finishing current protocol.

    We really are grateful for all the time the doctor gave us.........he spent a lot of it explaining our situation more fully. The most lethal threat to Brian is the liver tumor. Upon diagnosis the cancer had taken over fully 1/3-1/2 of his liver. We thought the most severe threat was from the lung tumor since it is so near the heart and is growing around the aortic arch. Doctor explained that the concern with regard to the lung tumor is for pericardio effusion and that if/when that occurs he can 'take care of it', surgically.

    We got a chance to bring up something that rather haunts us. Since Brian was so healthy at the time of the incidental findings that lead to his dx, we have often commented to each other............what would have happened if we just left things alone???

    Onc explained that he was astonished that Brian was leading a normal active life w/ the extensive disease he had. He is convinced that the symptoms of the disease would have affected Brian very severely with in a matter of weeks. He said the hope we have, at all, for remission and extra time is due only to the blessing of the incidental finding.

    Anyway, we felt like prisoners who got the last minute call from the governor. Instead of 8 hours of poisoning we went to lunch!!! He will feel good for the Memorial Day Weekend. We are thanking God for the positives and focusing on them.

    And while we are in the thanking mode:

    THANK YOU TO ALL OUR FAMILY HERE FOR PRAYERS AND SUPPORT.

    We need you and appreciate you.

    Brat

    jcawork - Jen...please read this!

    in GENERAL

    Posted

    Please allow insight from someone just outside this exchange:

    It is so hard to get words down on paper/computer that say what is in our hearts, on our faces and deeply felt.

    Others can only see the cold typing.......no facial expressions, no reaching out of our hands, no gentle hug, no loving glance...........can be conveyed. We all have so much we are trying to 'handle' and we all have so much love and concern for each other that sometimes the emotions running so high are misconstrued.

    Jen, we all love you so much, and admire your battle thus far and want to help you and care and want to ease your pain and want to lift you up.

    Addie, you are the very essence of what we all want to be for each other.

    Each of us has our heart in the right place.

    Each of us would give or do anything to help another family member.

    Each of us bring our own temperment, history and burdens to this forum for giving and for taking.

    I love you both so much. I admire your honesty. I love your passion and fire. I respect you each for being the best you possible can be coming from the exact place you are today.

    It is so hard to want so badly to help and to only have a keyboard for a way to convey that..........

    A keyboard

    and Prayer.

    and moral support.

    Respectfully,

    Pat

    Mom has Died

    in GRIEF

    Posted

    Oh, Kel, honey, hugs from us and lots of support and prayer for your family.

    We are so glad you have Fl. memories and your mother's strong spirit to comfort you.

    Blessings of comfort,

    Brian and Pat

    May 2005 test results

    in MEMBER UPDATES

    Posted

    Beth,

    We will be there................look for us.........you will know us by our smiles for you.

    We understand everything you write, we live it.

    We care and we are so glad for your party to look forward to....

    Thank you for your example and your spirit.

    Love Brat

    Made it to 38

    in GENERAL

    Posted

    GOD WE LOVE THAT ADDIETUDE.....................

    WE SECOND ADDIE'S POST AND HUMBLY ADMIT THAT WE NEEDED THAT BOOST TODAY, TOO!

    LOVE YOU ADDIE

    LOVE YOU BETH

    CINDI,,,,,,,,,,,,,WE NEED OUR BARKEEP.

    WE ARE MAKING HOT WINGS AND BRATS AND POTATO SALAD.

    WE ALL NEED A PARTY.

    BRAT

    The PET scan results stink

    in GENERAL

    Posted

    Peggy,

    Thank you for your bravery. I know you struggled with the decision to post all this.

    We love you and your hubby and your son.

    You guys will always be an inspiration. ALWAYS

    Much much much love and many many hugs.

    Peggy, we care so much.

    Brian and Pat

×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.

  I accept