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Kleo

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  1. Like
    Kleo got a reaction from LexieCat in AWOL, but back with good news   
    Hurrayyy!!! 
  2. Like
    Kleo got a reaction from Roz in BRAF Mutation   
    Wow that's FANTASTIC!!! Woo!
  3. Like
    Kleo reacted to Golfman in Tecentriq- Is really working for anyone?   
    Was diagnosed with sclc on Feb 14 and began chemo almost immediately. What was different. however, is that they included Tecentriq in all my chemo sessions, and I’ve begun Tecentriq infusions every 3 weeks since the end of chemo. My June scan showed no brain met and a clear lung! I’m very happy indeed!! I’ll continue my infusions and have periodic scans to look for the return of sclc, but for now I’m a happy guy 
  4. Like
    Kleo reacted to BridgetO in Durvalumab   
    Jane Lee, you're not being naive! You're living with hope and optimism. Good for you!  It's great that your tumor is dead.
  5. Like
    Kleo reacted to Charles in Durvalumab   
    Jane Lee,
     
    Magnificent news !!!!
  6. Like
    Kleo reacted to Tomm in Durvalumab   
    Jane  Lee   ..  great news to hear your tumor is dead 
  7. Like
    Kleo reacted to Robert Macaulay in Durvalumab   
    Jane Lee
    Sorry to hear about the New condition. The good news is the doctors are letting you continue with Durvalumab as its main purpose is to halt the spread of cancer. I get blood work every two weeks prior to my infusion. The key is the three month scans when on this drug and if no progression you continue to the next three months CT.Walking is great way to get excercise everyday as i do with my dog seven days week.Bed time and bloodwork in the morning and docs in the afternoon.
    Bob
  8. Like
    Kleo reacted to Jane Lee in Durvalumab   
    Hi Dura recipients
    Just thought I would give an update.  I can hardly believe this.  My lung specialist and the radiation specialist both consider that the tumour in the bottom lobe of the right lung has died from the radiation and chemo.  But the radiation has caused that lobe to collapse so they can't actually see the tumour.  I am assuming that because there is no sign that the tumour has spread or progressed that they think it is dead.  Apparently. they do not do anything about the partially collapsed lung because it is too damaged from the radiation.  Accordingly, the Dura kills any new tumours that might try to form because there is a very high likelihood of re-occurrence.  At this stage, I refused to think about re-occurrence.  What a shock, I read all these things on Dr Google about syringes and tubes to try to extrapolate the air or fluid in the lung to help it re-inflate and they don't do any of that in radiation cases - they just simply leave it alone.  Wow, no oncologist for six weeks and the radiation specialist doesn't want to see me again.  Only have to do the Dura once a fortnight and a blood test once every four weeks.   It feels so surreal.  I feel I am getting a second chance at life so I am staying on my current regime - no alcohol, no cigarettes, keeping processed foods to a minimum and as much walking as possible.  They have even told me I can begin to lose weight (need it especially after putting on so much with the predisone).  I actually wondering whether as a beginner to this lung cancer stuff that I am just being naive??????
    Thank you all for your love, support and encouragement.  It is so lovely to hear from people in the same predicament as yourself.  I must have a look at all of the ASCO abstracts.
    Kind regards
     
    Jane Lee
  9. Like
    Kleo reacted to Barb1260 in Durvalumab   
    Kleo-never hit send on that one. Just found it. You made me choke on my boring turkey sandwich. Your doc must wait for your appointments, you’re the only bright spot in her day probably. Keep up your humor. 
  10. Haha
    Kleo reacted to Robert Macaulay in Durvalumab   
    Kleo
    I been called lots names in my day but Yoda is not one of them.😁 Now i do like the statement your Doc made  Said I'm in alot better shape than I think I am. Got to love female doctors I am biased as i have two😎.One other thing you mentioned I am NOT typical for Durvalumab! It works wonderfully for most people! But  you were the norm rather than the exception but who is going to refuse a excellent drug even with the percentages.
    Now that you have given up studying Oncology you can enjoy the summer between treatments.
    Bob
  11. Like
    Kleo got a reaction from Robert Macaulay in Durvalumab   
    Bob....you were right!😏 You called it! My onc won our little battle. and she basically told me I was being an idiot. 🤣 Said she is revoking my doctor's license, and having my google/internet cancelled. I tried saying...but the immunos all target the same thing that I don't even have...why bother? durva didn't work for me! She said that they are all entirely different drugs...using different pathways...and she really thinks this combo will stop my head stuff. Said I'm in alot better shape than I think I am. 
    I said...but it's so toxic...you gave me 2,766 mg of drugs in 8 hours. Her eyes got real big and she said...you mean you actually sat there and added up the milligrams?!! Geeez. 😁
    Yes I did. LMAO.
    Anyway...she's reducing my chemo doses since I really haven't any active cancer in the lung- and chemo is what makes me feel so crappy....so I'm gonna try it again.
    Bob was right....he's like Yoda.
     And as said by tomm here.....I am NOT typical for Durvalumab! It works wonderfully for most people! 
  12. Like
    Kleo got a reaction from Rower Michelle in Durvalumab   
    Bob....you were right!😏 You called it! My onc won our little battle. and she basically told me I was being an idiot. 🤣 Said she is revoking my doctor's license, and having my google/internet cancelled. I tried saying...but the immunos all target the same thing that I don't even have...why bother? durva didn't work for me! She said that they are all entirely different drugs...using different pathways...and she really thinks this combo will stop my head stuff. Said I'm in alot better shape than I think I am. 
    I said...but it's so toxic...you gave me 2,766 mg of drugs in 8 hours. Her eyes got real big and she said...you mean you actually sat there and added up the milligrams?!! Geeez. 😁
    Yes I did. LMAO.
    Anyway...she's reducing my chemo doses since I really haven't any active cancer in the lung- and chemo is what makes me feel so crappy....so I'm gonna try it again.
    Bob was right....he's like Yoda.
     And as said by tomm here.....I am NOT typical for Durvalumab! It works wonderfully for most people! 
  13. Like
    Kleo reacted to Robert Macaulay in Durvalumab   
    Kleo
    If this makes sense please let me know😎
    Atezolizumab (Tecentriq®)
    Atezolizumab (Tecentriq, Genentech USA, Inc, San Francisco, CA, USA) is a monoclonal antibody that binds to PD-L1 and blocks its interaction with PD-1, thereby enhancing T-cell activity against tumor cells.21
    Durvalumab (Imfinzi®)
    Durvalumab (Imfinzi, AstraZeneca, Cambridge, UK) is a human IgG1κ monoclonal antibody that blocks the interaction of PD-L1 with the PD-1 and CD80 (B7.1) molecules.25
  14. Like
    Kleo got a reaction from Charles in Durvalumab   
    Yes Rower Michelle!.... This is the new protocol now....just as the durva was. 
    Gotta wonder..... how similar are Tecentriq and durvalumab considering they target the same thing? Just like Keytruda and durvalumab….🤔 
     
  15. Like
    Kleo got a reaction from Eagle13 in Durvalumab   
    Yes Rower Michelle!.... This is the new protocol now....just as the durva was. 
    Gotta wonder..... how similar are Tecentriq and durvalumab considering they target the same thing? Just like Keytruda and durvalumab….🤔 
     
  16. Like
    Kleo got a reaction from Rower Michelle in Durvalumab   
    Yes Rower Michelle!.... This is the new protocol now....just as the durva was. 
    Gotta wonder..... how similar are Tecentriq and durvalumab considering they target the same thing? Just like Keytruda and durvalumab….🤔 
     
  17. Like
    Kleo reacted to Rower Michelle in Durvalumab   
    I’m willing to sell tickets to that show down tomorrow!  Anyway, I’m looking at the June 2019 American Society of Oncology Association. (ASCO) abstracts.  It appears as if your medical team is humming along with the new chemo immunotherapy protocol. Typically administered when there is no PDL-1 or targeted mutation.  Early studies suggest good results in PFS.  
    Ask the doc to show you which abstract is most applicable and have them provide you with a copy.  Sounds like this is going to be worth it in the long run.  
    Good luck-lock and load.  
  18. Like
    Kleo got a reaction from Charles in Durvalumab   
    Tecentriq is alot like Durva...targets PDL1. I don't have any PDL1 expression. Why am I taking a medicine that targets something I don't even have!?? Seems silly to me. I said that to my onc last time and she said sometimes it works even without PDL1. So does Durva apparently….that's why they give it to everyone regardless! But it didn't work on me... 
    I don't know I just feel like the PDL1 immunos are not my thing. I guess we will battle it out tomorrow...LOL
     
    JaneLee….my onc told me the bad shoulder pain I got during durva was probably bursitis..? couldn't lift my arm at all. Then it went completely away after I stopped the durva.
    That's just ME though...I'm pretty weird! 😏
     
     
  19. Like
    Kleo got a reaction from Tomm in Durvalumab   
    Tecentriq is alot like Durva...targets PDL1. I don't have any PDL1 expression. Why am I taking a medicine that targets something I don't even have!?? Seems silly to me. I said that to my onc last time and she said sometimes it works even without PDL1. So does Durva apparently….that's why they give it to everyone regardless! But it didn't work on me... 
    I don't know I just feel like the PDL1 immunos are not my thing. I guess we will battle it out tomorrow...LOL
     
    JaneLee….my onc told me the bad shoulder pain I got during durva was probably bursitis..? couldn't lift my arm at all. Then it went completely away after I stopped the durva.
    That's just ME though...I'm pretty weird! 😏
     
     
  20. Like
    Kleo reacted to Robert Macaulay in Durvalumab   
    Kleo
    Don't feel like this is the right stuff for me.
     I bet he will convince you otherwise. 😎
  21. Haha
    Kleo reacted to Charles in Durvalumab   
    Hey Kleo I'd try a hit of that Gerflooberglobbin over here but I'm still pixellating on the Prednisone, it sounds a little German to me though, somethin like Der Gooberflobbin is akickin se poopinhockin outen mein poopinhopper, but in all honesty and seriousness am sorry to hear about the pain with the new treatments, seems if it aint one tham dang it's another right?
  22. Like
    Kleo got a reaction from Charles in Durvalumab   
    Haahaaahaaa! Bob you are so funny!🤣
    Yeah they just approved that Tecentriq/ Avastin combo with chemo here. So that's what they are trying...even though I don't have PDL1😣 
    I'm gonna have a lil chat with my onc Wed. Don't feel like this is the right stuff for me.
  23. Sad
    Kleo got a reaction from Charles in Durvalumab   
    This is off topic but I just gotta say it......this chemo/immuno cocktail is BLEHK!😣 
     
    Anyway...when I was on the durva...my biggest problem/side effect I saw was that it caused me joint and muscle pains in my back and arms. Sent me to the ER twice they were so bad. So now they are giving me this...Tecentriq stuff...and I'm having joint/muscle pains again..but all over. Even my legs! So how do I know if it's the immuno again or the taxol or whatever else they've tossed in my salad!?
    Too many thingies!
    I'm grouchy today....sorry 😉
     
     
  24. Like
    Kleo got a reaction from Charles in Durvalumab   
    I think they are just tossing the dang alphabet at me! Here try this new Gerfloogerbaghin...it'll help.
  25. Like
    Kleo got a reaction from Robert Macaulay in Durvalumab   
    I think they are just tossing the dang alphabet at me! Here try this new Gerfloogerbaghin...it'll help.
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