Barb1260

Just as I thought, no Imfinzi today. Finishing 4 more days of prednisone. But I get to go to the hospital tomorrow to have my port checked with due because of the shoulder and neck issue. If it’s the port will change it then. So no eating breakfast. Waiting, waiting, waiting. 

Just as I thought, no Imfinzi today. Finishing 4 more days of prednisone. But I get to go to the hospital tomorrow to have my port checked with dye because of the shoulder and neck issue. If it’s the port will change it then. So no eating breakfast. Waiting, waiting, waiting. 

Eagle13
Yes Imfinzi sent me all the material for record keeping and a 800 number  if rquired for any concerns. while on this drug. I found  with getting my  bi-weekly blood work sent to me online. That is what the doctors look at prior to ordering your next infusion excellent information to stay on top of

Spot on! I use a large 3 ring binder to keep everything together and take it with me when I go to the Dr for checkups.  I also ask for a printed copy of reports and get the CD/DVD of the scans or other electronic data collected.  The disks have come in very handy when I see someone like my pulmonologist so he can see them without having to search during my appointment.
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Eagle13
That is correct. My doctor was upset that the ER doctor kept saying i was on chemo and had no idea i was on Immunotherapy. I now keep the info on me at all times and use the medical bracelet that Imfinzi gave me.

The oncologist and pulmonologist spoke on the phone while I was standing there. They decided together to knock it out before the Durvalumab because it can be a side effect of the Durvalumab and I guess they want to start with a clean slate. All the docs are in contact because of the newness of immunotherapy and basically are still learning themselves because there is not a lot of history. Guess we can call them trail blazer guides. 

There are breakthroughs in treatment taking place everyday.   This is why its critical that you stay personally informed about treatment and ask your doctor detailed questions.  Don’t be afraid to make an appointment with a no kidding expert who eats and sleeps your type of cancer in their daily practice.  It has made a world of difference for me. 
Forums like this one and other focus groups you can join are a wealth of information.  Be sure and do your own verification on things you learn.
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Barb
That makes sense. I was on infusion #8 and had to go to ER had been coughing all night  and the young doctor was going to give me Predisone and i  told her i was on Durvalumab and she called the on call oncologist and he ordered a ct, and sure enough inflammation  surrounding my tumor that is how the drug works and he said no Predisone and i was sent home

At least they caught it before the onset of any symptoms.  Should make this more manageable until the next curve ball.  I’m seven months into this now & just when I think I’ve got a handle on it- whammy! 
Learning to be more like Que Sera Bob...🥴

Hey Barb- 
Well that pretty much sucks! Hopefully the prednisone does the job quickly.   Jersey Strong!
Michelle

Barb,
Sorry to hear about the pneumonitis. Charles

You know the saying. Your only as good as the last scan.  lol

I should be joining you Durva’s a week from today. I’m hoping for no side effects because I feel really good right now. But-just got to go with it. 

Barb & Tomm- could be a new set of “Durva twins”!  Best to both of you trailblazers...
Hope Bob and Cleo are doing well! 

I should be joining you Durva’s a week from today. I’m hoping for no side effects because I feel really good right now. But-just got to go with it. 

Hopefully it’s unrelated. I don’t know about Florida but Georgia’s pollen counts have been off the charts for weeks. Allergies are a pain. Hope you get over it quickly. Stay strong 

I’m having 2nd thoughts about getting Imfinzi because of all the unknowns. I’m feeling better than before dx and it seems this will make quality of life suffer. 

Hi Barb1260, don't be nervous, it could very well work for you! Think positive and I will keep positive thoughts for you too.   Good luck.  T/P exit 2

We have to put ourselves in enormous debt to live?  There is something definitely wrong here. 

We have to put ourselves in enormous debt to live?  There is something definitely wrong here. 

We have to put ourselves in enormous debt to live?  There is something definitely wrong here. 

What I want to know is how is a person to pay a $3000 (20%) Co-Payment in the US?
Now I’m really depressed that I can’t afford to pay for that so why am I doing any of this?