TJM
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TJM got a reaction from Livin Life in Not Lung cancer primary but still worth sharing
https://www.si.com/nfl/2017/10/24/chris-mortensen-throat-cancer-recovery
Mort passed not long ago.Worth the read. NFL draft tonight reminded me when they payed tribute. Cancer cares not if you are rich and famous or poor and lost. A vicious disease.
Peace
Tom
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TJM got a reaction from Tom Galli in Not Lung cancer primary but still worth sharing
https://www.si.com/nfl/2017/10/24/chris-mortensen-throat-cancer-recovery
Mort passed not long ago.Worth the read. NFL draft tonight reminded me when they payed tribute. Cancer cares not if you are rich and famous or poor and lost. A vicious disease.
Peace
Tom
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TJM reacted to NYC GUY in lung nodule 6mm to 9mm
Hey all, just wanted to follow up. Had surgery Monday. As diagnosed it was adenocarcinoma. Dr removed a wedge of my lobe and said cleared margins. He also removed lymph nodes. Feeling lucky for the incidental find and choosing the surgical biopsy . Waiting on lymph node results. I have a Follow up may 9th. Thanks for the support.
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TJM reacted to Karen_L in Five year scan - whoops! Corrected to FOUR year scan
@Scruboak Four years or five, a clear scan is a clear scan and worthy of a deep breath of thank goodness and a barrel-full of WHOOPEE!
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TJM reacted to Karen_L in lung nodule
I've been away from the discussion and this may have resolved itself, but, frankly, I think your situation is completely unacceptable. I would strongly suggest you get yourself to a facility specializing in lung cancer.
I see you're in Maryland-- you have to be near a reputable cancer center specializing in lung cancer. Yes, I'm emphasizing a place with a specialty in lung cancer. That's because our cancer field is exploding with new research and a generalist cannot stay on top of the new developments.
All you need is a starting place. It's kind of like being a detective and may take a little effort on your part. I don't have any comments pro or con the following places, but they may be good first steps.
Potential resources: two NCI-designated cancer centers in MD. You can find them here:https://www.cancer.gov/research/infrastructure/cancer-centers/find
I also found a lung nodule clinic affiliated with U of MD, which may be worth checking out. https://www.umms.org/uch/health-services/cancer/cancer-services-and-treatment/lung
Keep at this. Keep us posted!
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TJM got a reaction from Scruboak in Five year scan - whoops! Corrected to FOUR year scan
Awesome news! Fellow 4 year NED buddies!
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TJM got a reaction from LouT in lung nodule
What a crappy situation! I am really surprised no one has suggested a PET scan now, rather than wait. You might suggest that to your pulm doc. Especially since you had existing nodules.
Best wishes
Tom
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TJM got a reaction from LouT in Five year scan - whoops! Corrected to FOUR year scan
Awesome news! Fellow 4 year NED buddies!
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TJM reacted to Livin Life in Finally!
That will help you so much and hopefully reduce some stress too....
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TJM got a reaction from Livin Life in Finally!
Just found out my Social security disability came thru! Took forever (blame Covid) but my better half kept pressing the system. She is a rock star.
A very nice surprise that I had mentally written off.
Hope everyone is hanging in.
Tom
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TJM got a reaction from RJN in Five year scan - whoops! Corrected to FOUR year scan
Awesome news! Fellow 4 year NED buddies!
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TJM reacted to Livin Life in lung nodule
Welcome, Bob! I'm new here too and awaiting my 3rd scan in July so we're in somewhat similar "waiting patterns." I can't imagine how you're feeling today with your scan Monday. I find I'm wound tighter the week or so before a scan and then until I have results then it's a deep exhale. Wishing you the best with the scan Monday! Hope you get results, a call from your provider and then direction timely - that waiting is a different kind of hard.
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TJM reacted to LouT in lung nodule
Bob,
Sorry to hear about the recurrence but glad you found us. Nodules that grow are definitely worth getting a biopsy and I understand that they want more mass so they can do a better job of getting the sample they need to test properly. The waiting is terrible and I remember feeling great anxiety during my initial diagnosis and especially when I was told to "wait 3 months" before the next scan. Needless to say I was not a happy camper. I'm so glad that you gave up the smoking. Regardless of the COPD I'm sure that your breathing is most likely better now than when you were active in the habit. That will be a help through this. Please keep us updated and feel free to ask any questions you want. We have a pretty large base of survivors on this site with a great variety of diagnosis and treatments so there is a lot of experience to share. You won't need to go through this alone.
Lou
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TJM reacted to Bob G in lung nodule
Hello, I have had Lung nodules going on 8 years since I had bowel surgery and when coming out of surgery had to be kept on a ventilator for 2 weeks due to raspatory failure (30 years of smoking) . I have COPD consisting of emphysema, chronic bronchitis and asthma. I quit smoking when in the hospital in 2016 with the above mentioned surgery. I had 2 small nodules due to scar tissue that have been stable in size and shape. in a recent CT scan (12-2023) another nodule showed and was solid and spiculated. I since have had two other CT scans and it has tripled in size in 3 months to 7.7mm. I have a 4th CT scan on the 1st of April as they want it to be 8mm before they decide to biopsy or next course of action. At this point its like a roller coaster waiting then thinking you are getting somewhere just to go up another hill and I just want to level out and get on with what needs to be done.
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TJM reacted to Blossomsmom in About to get real
Thank you all for your kind and encouraging posts, I appreciate them all.
I’ll stay in the hospital as long is absolutely necessary but I’m very fortunate that my daughter is an Emergency Room RN and will be here when I come home. I know she’ll take good care of me and be very vigilant watching for any problems that could arise. And she’ll help keeping her dad calm as well 😊
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TJM reacted to Scruboak in About to get real
The anxiety really is the worst part❤️, isn’t it? Blessings and all goodness for you.
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TJM reacted to LouT in About to get real
Blossomsmom,
Tom is correct...stay until, you're ready to go home. Please reread "Thoracic Surgery Tips & Tricks", take your pain meds as prescribed, move when you can, rest when tired, and use the heck out of that spirometer (I'm a simple man and just called my Spiro). I look forward to the post where you say, "this surgery wasn't as bad as I feared". My prayers are for your peace going in, successful surgery, and speedy recovery afterward.
Lou
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TJM got a reaction from Blossomsmom in About to get real
Ahhh. The soap! I'd forgotten.
You got this. Just remember that the goal isn't to get released ASAP. Stay till you are ready to go home.
Good luck. Will be here before you know it.
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TJM reacted to Blossomsmom in About to get real
Had my pre-op appointment yesterday which included EKG and bloodwork. Went over all pre-op instructions which included soap to use that morning and where and where not to use it 🫢. No food after midnight, no water after 4:00 am. I’m ok with those things but no coffee, now that’s the hard one. Got my spirometer to use when I come home. Since it will be my best friend for awhile, I’m thinking of naming it. Maybe that’s what I’ll try to think of when I’m awake at 3 am most nights now. I’ve made a list of things I want to pack and have my husband bring me after surgery. Anxiety level starting to build. Hoping not to be a total basket case by the 6th. Surgery and the possible outcome is getting way too real.
