catlady91

Hi everyone 
Thank you for your kind messages it means such a lot
I had the staples taken out today which I was dreading but it was nothing like I expected it didn't really hurt  and tomorrow I can have a hair wash which will be nice after a week of sweating lol,I can use my right hand a lot better now and my leg and foot are much better so I managed to take bonnie out for a walk today I have to use a walking stick for support but who cares atleast I'm mobile again lol,i feel so much better in myself now I just hope it's good news from now and can get on with living, 
I hope everyone is well take care Justin x 
 

Hi Christine, welcome to the family. It is so fortunate that your cancer was caught in the early stages. This forum has members diagnosed at all stages, and your voice is as important as those of us in later stages. I was diagnosed 3 years ago at inoperable Stage 3b, had chemo and radiation, am on a targeted therapy and am NED. Live your life and enjoy yourself. Don't let survivor's guilt get in your way. 

Fantastic news!! Really happy for you 😊

Hi Christine please don't feel guilty. Cancer is a huge shock and life changing event regardless of stage. It brings with it the same fears and emotions. Luckily advances in treatment have come so far that there are success stories of many people with stage 4 lung cancer. There's hope and treatment at every stage. Yes the higher the stage, the more the cancer has progressed but no stage is hopeless. Also the stages are used to guide treatment for example treatment for stage 1 is different from treatment for stage 3. Most people with stage 3 aren't candidates for surgery. My mum was diagnosed with stage 3B and she couldn't have surgery but she had radiotherapy, chemo and immunotherapy and she's been NED for over 2 years. She has her routine scan next week so fingers crossed that she's still NED. 

Hi Christine please don't feel guilty. Cancer is a huge shock and life changing event regardless of stage. It brings with it the same fears and emotions. Luckily advances in treatment have come so far that there are success stories of many people with stage 4 lung cancer. There's hope and treatment at every stage. Yes the higher the stage, the more the cancer has progressed but no stage is hopeless. Also the stages are used to guide treatment for example treatment for stage 1 is different from treatment for stage 3. Most people with stage 3 aren't candidates for surgery. My mum was diagnosed with stage 3B and she couldn't have surgery but she had radiotherapy, chemo and immunotherapy and she's been NED for over 2 years. She has her routine scan next week so fingers crossed that she's still NED. 

Oh Justin, I am so happy that the surgery went well and that you are getting function back on your right side! It is good to hear that your recovery is coming along and your spirits are higher.
Pam

What can I say !!! What an incredible man you are. You've put yourself through such a lot for your family ( and Bonnie ) We are so very proud of how far you've come and the resilience you've shown.  You are an example to us all. This journey must be so hard for you as it is for us too, but your one strong man, so proud to call you my son x If anyone can beat this evil disease you can, we are so humbled by your strength and we love you sooo very much. Onwards and upwards Jus we are with you all the way x xxxxx All my love xx your Mum xxxx 

I'm so pleased to hear that the surgery was a success Justin. I checked everyday for an update from you and am so pleased to hear that you're doing well. Although cancer brings a lot of downs, there can also be ups in the journey. Enjoy those ups and I'll keep on praying for you and everybody else to have plenty of ups. It sounds very positive. Hopefully the biopsy will give some more answers in terms of mutations and suitable treatments if needed now or in the future. 
Never apologize for feeling low. Nobody can be strong and positive all the time. It's also good to let your feelings out and talk them through with others. Xxx

I'm so pleased to hear that the surgery was a success Justin. I checked everyday for an update from you and am so pleased to hear that you're doing well. Although cancer brings a lot of downs, there can also be ups in the journey. Enjoy those ups and I'll keep on praying for you and everybody else to have plenty of ups. It sounds very positive. Hopefully the biopsy will give some more answers in terms of mutations and suitable treatments if needed now or in the future. 
Never apologize for feeling low. Nobody can be strong and positive all the time. It's also good to let your feelings out and talk them through with others. Xxx

I'm so pleased to hear that the surgery was a success Justin. I checked everyday for an update from you and am so pleased to hear that you're doing well. Although cancer brings a lot of downs, there can also be ups in the journey. Enjoy those ups and I'll keep on praying for you and everybody else to have plenty of ups. It sounds very positive. Hopefully the biopsy will give some more answers in terms of mutations and suitable treatments if needed now or in the future. 
Never apologize for feeling low. Nobody can be strong and positive all the time. It's also good to let your feelings out and talk them through with others. Xxx

I'm so pleased to hear that the surgery was a success Justin. I checked everyday for an update from you and am so pleased to hear that you're doing well. Although cancer brings a lot of downs, there can also be ups in the journey. Enjoy those ups and I'll keep on praying for you and everybody else to have plenty of ups. It sounds very positive. Hopefully the biopsy will give some more answers in terms of mutations and suitable treatments if needed now or in the future. 
Never apologize for feeling low. Nobody can be strong and positive all the time. It's also good to let your feelings out and talk them through with others. Xxx

I'm so pleased to hear that the surgery was a success Justin. I checked everyday for an update from you and am so pleased to hear that you're doing well. Although cancer brings a lot of downs, there can also be ups in the journey. Enjoy those ups and I'll keep on praying for you and everybody else to have plenty of ups. It sounds very positive. Hopefully the biopsy will give some more answers in terms of mutations and suitable treatments if needed now or in the future. 
Never apologize for feeling low. Nobody can be strong and positive all the time. It's also good to let your feelings out and talk them through with others. Xxx

Hooray Justin! That is the best news. I hope you can have a relatively peaceful time now with your Bonnie (great name!) and your family. Many cheers here from London. Rikke x

Hurrah @Justin1970, what a wonderful update, congratulations! Time to put a huge smile on your face and look optimistically to the future. Fingers crossed they find an actionable mutation but the fact that your body is already recovering is phenomenal. I am sure your family is over the moon.
I know how loving and fulfilling a pet dog can be so am very glad you have one to share your life with. Take care and keep us posted!

Thanks for the update, Justin. So glad everything went well and you are recovering. Please don't worry about your down days, we understand those very well. You've been through an awful lot and you have every right to vent. Say hi to Bonnie for us, there's nothing like puppy love. 

Thank goodness, Justin. I am especially glad they are sending the tumor for testing. You are persistent and a positive example for all of us. 

I'm so happy to read your good news Justin! I hope you continue to recover quickly and that you continue to get good news from your team. It is especially good to hear that your spirits are higher, but please don't apologize for feeling down before - we all go through that at times. I will keep you in my thoughts and continue to hope and pray for the best!
Take care - June

Lou, 
Thanks for your message and all the prayers from everyone, I'm so pleased with the recovery of my right side it's such an improvement its fantastic, hope your well take care Justin 

Justin,
Great news.  I'm particularly glad to hear that your recovery is occurring so quickly.  A lot of prayers went up for you and it looks like they were answered.  Keep on going my friend.
Lou

Hi everyone 
Sorry I haven't updated yet I wanted to get as much info as possible before I did, I had the procedure done on Friday and it was a great success they got the tumor out and now my right side has come back to life within 3 days I can now move around, the coordination is getting better too, there is some swelling and bleeding but they are really pleased with the results, I have no pain because they only cut through the scalp and skull and not much muscle I had a headache on and off Saturday and Sunday but nothing bad, the dexamethasone steroids are much worse than the operation itself I hate taking them lol, 
They said they will send the tumor away for biopsy tests and see what it actually is but they're pretty sure it is the lung cancer I just hope there is something I can take if or  when it grows back but right now I feel a lot better in myself about it all, I am really sorry I was down last week I feel like I let everyone down and made my family and all of you down with me I try to be supportive and wasn't, 
My friend has just been diagnosed with throat cancer and in his neck, I will support him through this the best way possible, 
I hope everyone is well and thankyou again for all the love and support I really couldn't have done this without you all and my family and friends and my puppy bonnie has been an absolute angel through this journey almost like she was sent from heaven to help me I love her so much and now hopefully can get back to walking her ,
All the best Take care Justin x 

Hi lily
I'm so sorry I've only just seen this post I am so sorry to read this it's so unfair, you don't deserve this added heartache,
Please don't give up hope you and your husband will get through this and your little boy will have a fantastic life with all of you together 
Please take care Justin x 

I'm sorry to hear this Lily. I feel at times that I've been royalled screwed over by life as well. My brother was born with a rare brain tumor, although it was benign it messed up his life and caused huge disability. My dad died when I was 14 and my mum was diagnosed with inoperable stage 3B lung cancer in Feb 2020 so I feel your pain. All the misfortune in my life makes me constantly worried more bad things will happen. I'm constantly scared that I too will get cancer or a brain tumor. 
Whilst I can't say much that will make you feel better I feel yoyr pain. Fate can be a b***h. It feels raw at the moment but it will start to sink in and you'll feel a bit more positive. Skin cancer from what I've heard isn't a difficult cancer to treat and another cancer like lung cancer that has seen huge advances in treatment. I believe that the first immunotherapy was used for skin cancer and saw extremely successful results. 
You and you husband can both get through it. We're here for you xx

That sounds really promising and hopeful Justin. I'm so glad that the neurosurgeon seems lovely and reassuring. It really makes a difference when the doctors have good bedside manners and don't give up on patients. My mum luckily has a wonderful oncologist but she had some terrible doctors before. One of them really didn't give a f**k and was so dismissive and not very knowledgeable and treated my mum like an idiot. For some doctors it's all a status and power thing- they don't really care about the patients. 
I'm so glad that the team have stepped up and have taken your concerns seriously. It sounds like you're in good hands. Hopefully the surgery will do the trick. Some treatments work for some but not for others. There's plenty of new treatments out there. It sounds like the treatment for your lung tumour was successful though. 
I'm thinking of you. Brain surgery sounds scary but over the years the techniques and successful have really improved. Now they can even do awake brain surgery (the patient is awake but they're still sedated and don't feel anything) in order to reduce the risk of brain damage.
It's normal to be worried but I'm sure it will be fine. It seems like you're in good hands and things are getting back on track. Plus you've got your family and friends behind you. What a lovely family you have. Strength, support and positivity from family and friends is so important. 

@catlady91, my ex-brother-in-law had melanoma years ago and did, in fact, receive immunotherapy for it. He's been cancer-free for a long time now. 

The mass and lymph nodes have shrunk. We're moving in the right direction.