AleHondaa

Hi guys,
Well tomorrow is my first day on the treatment, I’m very nervous and anxious. I really don’t want to be on it, mainly from how sick I’ll feel and losing my hair. My biggest thing is I don’t want to look sick, right now if you see me you wouldn’t expect me to have what I have. I don’t know what to expect out of this and I’m kinda scared. Could I get any tips of being on these drugs and things to do Improve quality of life? Im hopeful it will do the job and work but I’m very scared at the same time. Doc mentioned it would be just 3 months and then I’d be just on keytruda but I feel like these 3 months are gonna be long. If any has suggestions or advice, please share.
Thank you,
Ale

Hey guys,
Its been a good while since I’ve posted an update so here’s the series of events I’ve been through and what news I just received today. 
 
So in March I stated that my enhertu stopped working. After that I went in for a trial but after a biopsy they deemed I wasn’t eligible. So afterwards the doctors decided to keep me on enhertu and mix radiation on top. Recently, the radiation seems like it worked on stopping the main spot from growing. About a week ago, I was admitted to the hospital for a case of pneumonia and they did scans. Unfortunately, it spread once again and truly shown that the enhertu stopped working. That’s everything that’s happened since March.
Now, the doc wants to put me back on chemo, which I’m highly against as it takes away everything I’m able to do. They mentioned on putting me on my original treatment plan which was Carboplatin, Keytruda and Pemetrexed. Except this time they’ll sub out Pemetrexed and put in Taxol instead. But today I learned there’s no beating this, only control. I’m losing hope and I need motivation to keep going.. This chemo isn’t something I want to do and I just want to go back to normal life as a young adult. However, I beat the odds of survival and that’s something that gives me a little spark but I’m just really down and I could use the motivation.
Hope everyone’s well..

Absolutely right son xx we must never give up no matter how hard it is, where there’s life there’s hope, I know it must be really difficult but your not alone even if it feels like it, hang in there all of you we’re all fighting with you xxxxx

Tom,
I just read the blog you made about hope and your damn right. After this mornings terrible realization, I told my friends and family about it. Everyone was upset and scared for me, I had friends tell me they broke down crying because of what I just told them. I came to the realization that they need me as much as I need them and that I can’t lose hope or give up because of this. So I’m going to continue on this fight and I’m going to win. Out of one of my favorite movies, Han Solo once said “Never tell me the odds!” Meaning to me that they don’t matter, at all. So thank you for what you said, because I made me look at everything and realize there’s a horizon pass all this. 

Tom,
I just read the blog you made about hope and your damn right. After this mornings terrible realization, I told my friends and family about it. Everyone was upset and scared for me, I had friends tell me they broke down crying because of what I just told them. I came to the realization that they need me as much as I need them and that I can’t lose hope or give up because of this. So I’m going to continue on this fight and I’m going to win. Out of one of my favorite movies, Han Solo once said “Never tell me the odds!” Meaning to me that they don’t matter, at all. So thank you for what you said, because I made me look at everything and realize there’s a horizon pass all this. 

Tom,
I just read the blog you made about hope and your damn right. After this mornings terrible realization, I told my friends and family about it. Everyone was upset and scared for me, I had friends tell me they broke down crying because of what I just told them. I came to the realization that they need me as much as I need them and that I can’t lose hope or give up because of this. So I’m going to continue on this fight and I’m going to win. Out of one of my favorite movies, Han Solo once said “Never tell me the odds!” Meaning to me that they don’t matter, at all. So thank you for what you said, because I made me look at everything and realize there’s a horizon pass all this. 

Hi Ale, I am very new here and honestly still at times feel angry myself about my illness and have my moments of despair (I am a mom of a 6 year old whom I worry about beyond measure) but learning fast that hope is a better path.
I gathered that chemo was hard on your before (?). I had surgery (was not easy) then started adjuvant chemo. Only 2 chemo cycles so far, and the first knocked me out like nothing I have ever experienced, getting almost all the serious even life threatening side effects in one go. I felt like death and I did not want any more.  HOWEVER, I was loud and reported all my troubles, and went to ER when needed (twice), so this week my second cycle was adjusted for my own body reactions by the oncologists. They changed one of the very harsh highly toxic medications for a comparable but less toxic one, with reduced dosage, and also changed the other doublet to a lower dose. So far I feel so much better (right dose and combination seems quite important and is a trial and error I am afraid).
Work with your doctors regarding any pain/symptoms. I actually made a fuss and ensured that I am seen by the pain and symptom management team at my cancer centre, and they have been so much more helpful than my oncologists. I also will speak with nutrition soon. Keep fighting. You are so young and strong and have so much advantage due to that. New medications coming out frequently every year so let us all hope for a cure for us all in the near future. You got this!

Ale, I've had 6x carboplatin and taxol as the first leg of my treatment regime (along with radiation). I did not have Keytruda. For me, chemo wasn't as bad as you'd think. I did lose my hair--and eyelashes several times. If you decide to do this chemo, you may have some fatigue, but the radiation fatigue was much worse in my case. 
People have gotten great results from Keytruda. I know you've been through the wringer already. I'd encourage you to give this next treatment plan a try. 
I actually live my life like Tom suggests, one day at a time. It's really all anybody can do. 

Hey guys,
Its been a good while since I’ve posted an update so here’s the series of events I’ve been through and what news I just received today. 
 
So in March I stated that my enhertu stopped working. After that I went in for a trial but after a biopsy they deemed I wasn’t eligible. So afterwards the doctors decided to keep me on enhertu and mix radiation on top. Recently, the radiation seems like it worked on stopping the main spot from growing. About a week ago, I was admitted to the hospital for a case of pneumonia and they did scans. Unfortunately, it spread once again and truly shown that the enhertu stopped working. That’s everything that’s happened since March.
Now, the doc wants to put me back on chemo, which I’m highly against as it takes away everything I’m able to do. They mentioned on putting me on my original treatment plan which was Carboplatin, Keytruda and Pemetrexed. Except this time they’ll sub out Pemetrexed and put in Taxol instead. But today I learned there’s no beating this, only control. I’m losing hope and I need motivation to keep going.. This chemo isn’t something I want to do and I just want to go back to normal life as a young adult. However, I beat the odds of survival and that’s something that gives me a little spark but I’m just really down and I could use the motivation.
Hope everyone’s well..

Ale,
I'm so sorry to learn of this development. In truth, I don't know much about the drug Enhertu except that is used to attack certain forms of HER2 positive lung cancer. I do have experience with taxol and it did work for me. So perhaps this new combination therapy will take hold.
About your motivation to keep going, I think most of us have that difficulty when first or second line treatments fail to harness our lung cancer. I'm not a mystic, but I do firmly believe that "hope is a good thing."
Try not to focus on survival odds. Life's end is a certain thing for us all; the only uncertainty is when. Focus instead on living in the day. Forget the past and consider the future irrelevant. Try and focus on things and activities that bring you joy; try looking for joy in the little things, then celebrate. When you make life a day-to-day event, the future becomes less important.
Know that most of us here were (are) right where you are now. I know for certain, that I only have this day. I don't know about tomorrow and don't care. But my best message of hope is certain: if I can live, so can you.
Stay the course.
Tom

Hi
you have to try and keep fighting this I know it's difficult I feel the same way as you at the moment, I've completely had enough of this journey but if you offered help then we should take it, please don't give up,all the best
Take care Justin 

Hey guys,
Its been a good while since I’ve posted an update so here’s the series of events I’ve been through and what news I just received today. 
 
So in March I stated that my enhertu stopped working. After that I went in for a trial but after a biopsy they deemed I wasn’t eligible. So afterwards the doctors decided to keep me on enhertu and mix radiation on top. Recently, the radiation seems like it worked on stopping the main spot from growing. About a week ago, I was admitted to the hospital for a case of pneumonia and they did scans. Unfortunately, it spread once again and truly shown that the enhertu stopped working. That’s everything that’s happened since March.
Now, the doc wants to put me back on chemo, which I’m highly against as it takes away everything I’m able to do. They mentioned on putting me on my original treatment plan which was Carboplatin, Keytruda and Pemetrexed. Except this time they’ll sub out Pemetrexed and put in Taxol instead. But today I learned there’s no beating this, only control. I’m losing hope and I need motivation to keep going.. This chemo isn’t something I want to do and I just want to go back to normal life as a young adult. However, I beat the odds of survival and that’s something that gives me a little spark but I’m just really down and I could use the motivation.
Hope everyone’s well..

Hey all!
Its been a while since I’ve posted on here and I have a lot of news to cover regarding my disease.
My latest scans indicated that there was progression on the tumor but not much very little. So the Inhertu has stopped doing it’s job. My doctor had pointed me in the direction of a clinical trial that I might’ve been eligible for. Since then I had gone through the screening process to check my eligibility. They preformed a biopsy on my lung to see if I still showed signs of the HER-2 protein on the tumor. Unfortunately today I received the news that I’m no longer expressing the HER-2 and I’m not eligible for the trial. Next course of action for me is to see at Lung Cancer specialist at Penn to see what other courses of action we can take. They mentioned oral meds and maybe chemo again which I do not want to go through. 
 
This battle has not been easy and I hate to say it but I’m starting to lose hope. I know I can’t and I have to be strong but the reality of it is really hitting right now. My life has gotten better, I’m working again, I’m working out everyday at the gym and seeing progress with my body. I even have a date with a girl I’ve been into for a very long time. It’s just very hard to be going through this and I hope that some good can come out of it. I wish everyone the best and I hope things have gone good with y’all battles as well. 
 
Ale 

Hey all!
Its been a while since I’ve posted on here and I have a lot of news to cover regarding my disease.
My latest scans indicated that there was progression on the tumor but not much very little. So the Inhertu has stopped doing it’s job. My doctor had pointed me in the direction of a clinical trial that I might’ve been eligible for. Since then I had gone through the screening process to check my eligibility. They preformed a biopsy on my lung to see if I still showed signs of the HER-2 protein on the tumor. Unfortunately today I received the news that I’m no longer expressing the HER-2 and I’m not eligible for the trial. Next course of action for me is to see at Lung Cancer specialist at Penn to see what other courses of action we can take. They mentioned oral meds and maybe chemo again which I do not want to go through. 
 
This battle has not been easy and I hate to say it but I’m starting to lose hope. I know I can’t and I have to be strong but the reality of it is really hitting right now. My life has gotten better, I’m working again, I’m working out everyday at the gym and seeing progress with my body. I even have a date with a girl I’ve been into for a very long time. It’s just very hard to be going through this and I hope that some good can come out of it. I wish everyone the best and I hope things have gone good with y’all battles as well. 
 
Ale 

Ale,
Keep on doing what you're doing...those are good and healthy things. Also, keep searching for new and varied trials that may offer something right up your alley.  Hang on to hope...it doesn't cost anything, is not fattening and is a great habit to have.  It will never hurt you, but can always get you through the uncertain times.  BTW, congrats on the new girl.
Lou

Hey all!
Its been a while since I’ve posted on here and I have a lot of news to cover regarding my disease.
My latest scans indicated that there was progression on the tumor but not much very little. So the Inhertu has stopped doing it’s job. My doctor had pointed me in the direction of a clinical trial that I might’ve been eligible for. Since then I had gone through the screening process to check my eligibility. They preformed a biopsy on my lung to see if I still showed signs of the HER-2 protein on the tumor. Unfortunately today I received the news that I’m no longer expressing the HER-2 and I’m not eligible for the trial. Next course of action for me is to see at Lung Cancer specialist at Penn to see what other courses of action we can take. They mentioned oral meds and maybe chemo again which I do not want to go through. 
 
This battle has not been easy and I hate to say it but I’m starting to lose hope. I know I can’t and I have to be strong but the reality of it is really hitting right now. My life has gotten better, I’m working again, I’m working out everyday at the gym and seeing progress with my body. I even have a date with a girl I’ve been into for a very long time. It’s just very hard to be going through this and I hope that some good can come out of it. I wish everyone the best and I hope things have gone good with y’all battles as well. 
 
Ale 

Hey all!
Its been a while since I’ve posted on here and I have a lot of news to cover regarding my disease.
My latest scans indicated that there was progression on the tumor but not much very little. So the Inhertu has stopped doing it’s job. My doctor had pointed me in the direction of a clinical trial that I might’ve been eligible for. Since then I had gone through the screening process to check my eligibility. They preformed a biopsy on my lung to see if I still showed signs of the HER-2 protein on the tumor. Unfortunately today I received the news that I’m no longer expressing the HER-2 and I’m not eligible for the trial. Next course of action for me is to see at Lung Cancer specialist at Penn to see what other courses of action we can take. They mentioned oral meds and maybe chemo again which I do not want to go through. 
 
This battle has not been easy and I hate to say it but I’m starting to lose hope. I know I can’t and I have to be strong but the reality of it is really hitting right now. My life has gotten better, I’m working again, I’m working out everyday at the gym and seeing progress with my body. I even have a date with a girl I’ve been into for a very long time. It’s just very hard to be going through this and I hope that some good can come out of it. I wish everyone the best and I hope things have gone good with y’all battles as well. 
 
Ale 

Hey all!
Its been a while since I’ve posted on here and I have a lot of news to cover regarding my disease.
My latest scans indicated that there was progression on the tumor but not much very little. So the Inhertu has stopped doing it’s job. My doctor had pointed me in the direction of a clinical trial that I might’ve been eligible for. Since then I had gone through the screening process to check my eligibility. They preformed a biopsy on my lung to see if I still showed signs of the HER-2 protein on the tumor. Unfortunately today I received the news that I’m no longer expressing the HER-2 and I’m not eligible for the trial. Next course of action for me is to see at Lung Cancer specialist at Penn to see what other courses of action we can take. They mentioned oral meds and maybe chemo again which I do not want to go through. 
 
This battle has not been easy and I hate to say it but I’m starting to lose hope. I know I can’t and I have to be strong but the reality of it is really hitting right now. My life has gotten better, I’m working again, I’m working out everyday at the gym and seeing progress with my body. I even have a date with a girl I’ve been into for a very long time. It’s just very hard to be going through this and I hope that some good can come out of it. I wish everyone the best and I hope things have gone good with y’all battles as well. 
 
Ale 

Hey all!
Its been a while since I’ve posted on here and I have a lot of news to cover regarding my disease.
My latest scans indicated that there was progression on the tumor but not much very little. So the Inhertu has stopped doing it’s job. My doctor had pointed me in the direction of a clinical trial that I might’ve been eligible for. Since then I had gone through the screening process to check my eligibility. They preformed a biopsy on my lung to see if I still showed signs of the HER-2 protein on the tumor. Unfortunately today I received the news that I’m no longer expressing the HER-2 and I’m not eligible for the trial. Next course of action for me is to see at Lung Cancer specialist at Penn to see what other courses of action we can take. They mentioned oral meds and maybe chemo again which I do not want to go through. 
 
This battle has not been easy and I hate to say it but I’m starting to lose hope. I know I can’t and I have to be strong but the reality of it is really hitting right now. My life has gotten better, I’m working again, I’m working out everyday at the gym and seeing progress with my body. I even have a date with a girl I’ve been into for a very long time. It’s just very hard to be going through this and I hope that some good can come out of it. I wish everyone the best and I hope things have gone good with y’all battles as well. 
 
Ale 

Hey y’all,
Happy New Years and happy holidays to everyone here! I want to thank y’all for being a support system that I didn’t think I needed until I tried this out. My latest scans show good results as more shrinking has taken place. Doc even says that it seems my lung is regrowing new and healthy tissue. It also seems that the spots in my back or decayed or dying off. If this keeps up I’m sure to be on a road to a clean bill of health hopefully. I tend to just live day by day appreciating whatever moments I get. I hope everyone else has had good luck in fighting their own battles and if it hasn’t my prayers are out for you to get better or get good news. 

Hey y’all,
Happy New Years and happy holidays to everyone here! I want to thank y’all for being a support system that I didn’t think I needed until I tried this out. My latest scans show good results as more shrinking has taken place. Doc even says that it seems my lung is regrowing new and healthy tissue. It also seems that the spots in my back or decayed or dying off. If this keeps up I’m sure to be on a road to a clean bill of health hopefully. I tend to just live day by day appreciating whatever moments I get. I hope everyone else has had good luck in fighting their own battles and if it hasn’t my prayers are out for you to get better or get good news. 

Hey y’all,
Happy New Years and happy holidays to everyone here! I want to thank y’all for being a support system that I didn’t think I needed until I tried this out. My latest scans show good results as more shrinking has taken place. Doc even says that it seems my lung is regrowing new and healthy tissue. It also seems that the spots in my back or decayed or dying off. If this keeps up I’m sure to be on a road to a clean bill of health hopefully. I tend to just live day by day appreciating whatever moments I get. I hope everyone else has had good luck in fighting their own battles and if it hasn’t my prayers are out for you to get better or get good news. 

Hey y’all,
Happy New Years and happy holidays to everyone here! I want to thank y’all for being a support system that I didn’t think I needed until I tried this out. My latest scans show good results as more shrinking has taken place. Doc even says that it seems my lung is regrowing new and healthy tissue. It also seems that the spots in my back or decayed or dying off. If this keeps up I’m sure to be on a road to a clean bill of health hopefully. I tend to just live day by day appreciating whatever moments I get. I hope everyone else has had good luck in fighting their own battles and if it hasn’t my prayers are out for you to get better or get good news. 

Hey y’all,
Happy New Years and happy holidays to everyone here! I want to thank y’all for being a support system that I didn’t think I needed until I tried this out. My latest scans show good results as more shrinking has taken place. Doc even says that it seems my lung is regrowing new and healthy tissue. It also seems that the spots in my back or decayed or dying off. If this keeps up I’m sure to be on a road to a clean bill of health hopefully. I tend to just live day by day appreciating whatever moments I get. I hope everyone else has had good luck in fighting their own battles and if it hasn’t my prayers are out for you to get better or get good news. 

Hey y’all,
Happy New Years and happy holidays to everyone here! I want to thank y’all for being a support system that I didn’t think I needed until I tried this out. My latest scans show good results as more shrinking has taken place. Doc even says that it seems my lung is regrowing new and healthy tissue. It also seems that the spots in my back or decayed or dying off. If this keeps up I’m sure to be on a road to a clean bill of health hopefully. I tend to just live day by day appreciating whatever moments I get. I hope everyone else has had good luck in fighting their own battles and if it hasn’t my prayers are out for you to get better or get good news.