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Chuck K

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Posts posted by Chuck K

  1. Hi June

    I was in your shoes about ten months ago my Oncologist told me I was stage 4. Depression and anxiety was consuming me couldn't talk about the cancer without tearing up. I did meet with a therapist a few times but what helps me most is checking out this group daily. Family and friends are there for us but communicating with other people fighting this disease helps me move forward. 

    Stay with us

    Chuck

  2. .Hey everyone 

    At age 61 this is probably the hardest year yet. Within a year we lost both my wife's parents to covid and I was diagnosed with stage 4 lung cancer. It took me several months to get the courage to tell my dad I have cancer because I knew it would worry him sick. I did lose my dad yesterday but 15 minutes before he passed while he was conscious I told him my last scan showed no cancer lighting up. His eyes opened and he said that's good.I am so grateful I could tell him that because he said in the pass he couldn't handle losing a child. Sorry for the venting 

    Chuck

  3. Hi there and welcome 

    I was diagnosed stage 4 NSCLC adenocarcinoma about 9 months ago.I did one round of chemo while waiting on the biomarker test. It came back positive for ALK mutation. I've been on targeted therapy Alectinib for about 6.5 months now. Had a pet scan about 4 weeks ago and no cancer is lighting up.Good luck on your treatment please keep us updated

    Take care Chuck

  4. Hi Michelle 

    I've had bad experience with antidepressants in the past but a low dose may work. I'll mention it to my Oncologist next visit. Michelle do you or did you have a low heart rate from taking Alectinib? Started taking COQ10 it seems to help some

  5. Hi Michelle 

    It's good to here from you good to relate to someone with the same mutation and treatment. You are spot on about the stairs and walking. I'm having a hard time with knee and leg pain .Told guys at work if it gets worse I may have to take an early retirement. I started wearing knee high compression socks and it helps with the pain a lot. I am very pleased with how fast the Alectinib is working 

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