[3 months later]

Hey everyone 

Been on targeted therapy Alectinib for 5 1/2 months now

I had my pet scan done last week. Seen Oncologist today and he said no cancer is detected or lighting up.He did say there is a 1cm spot on lining around lungs that is questionable may have residual cancer cells in it but it's not lighting up. The other cancer isn't detected on the scan.Nothing lighting up sounds like Ned to me but he wants to wait for next scan before he says I'm Ned. What I have to say to y'all waiting on your treatment plan it does get better I was diagnosed stage 4 lung cancer last October. As Tom Galli says if I can live so can you. 

[3 months later]

Thanks Lou I haven't felt this relaxed in months glad to see some progress 

[3 months later]

Michelle 

I've read and heard a lot about Alectinib just wasn't sure it would work for me. I'm so glad it's shrinking.Thank you all for what you do for this support group

[3 months later]

Hey everyone 

Scan was yesterday, results came in on my chart .wasnt brave enough to look at it so I called Dr office. Scan said findings consistent with positive results from treatment. Dr said the limphnodes not showing up anymore and cancer in shrinking. I went from my stress level to the roof to ,y'all know how I feel right now

[3 months later]

Hi Michelle 

Had my labs today and the cpk number dropped from 430 to 138  woo hoo. Scan is this Monday and wow scanxiety is real. I'll update next week

Chuck

[3 months later]

Karen

Nice to meet you ,best wishes to you and thank you

[3 months later]

That's OK I'll take the extra weight,could be worse.Hope to get back to some kind of excersize routine next week.I did check out the Tai Chi video I'll try it next week

[3 months later]

Thanks Tom much appreciated 

 

[3 months later]

Hi Michelle 

It's good to here from you. My family and friends don't really know what I'm going through so I follow this group every day and it helps thank y'all for what you do. I did back off on the water ,drinking around 80 oz daily. I have labs again this Thursday hopefully the cpk number is down. As far as fatigue It's not bad yet I'v been back at work and so far I'm ok. I do hope to get back to excersizing and lifting some weights to try to keep this weight down,haven't ever weighed this much. Fingers crossed for the scans

[3 months later]

Hey everyone 

I've been taking Alectinib for  almost 3 months now started Nov.15. Side effects are swollen legs above ankles ,wear compression socks and they help.My resting heart rate gets as low as 45 bpm started taking COQ10 and seems better. I've been doing lab work once a week and at the beginning the cpk (muscle enzymes) were slightly elevated so Dr told me to drink more water and after a couple weeks the cpk number went down to safe level 160. Two weeks ago cpk went up to 216 and Dr said drink more water. This week cpk is up to 430.He asked what I'm doing different.Told him I've been taking 2 antibiotics for tooth infection and I've been working out with weights and treadmill every  night while watching tv. Dr said stop the weights and drink more water and check labs next week .Dr said cpk number not high enough yet to make changes to meds but if it increases meds will have to change. Now that puts my stress level to the roof I need this medication. So I stopped COQ10, stopped treadmill and the weights and drinking lots of water. Forgot to mention my first 3 month scan is on Feb. 21st