Jump to content

lilyjohn

Members
  • Posts

    2,663
  • Joined

  • Last visited

Everything posted by lilyjohn

  1. This is not really funny. I was just wondering how many here can relate to these things?? Just a little trip down memory lane. Subject: Fw: Memories of a Repressed & Abusive Childhood..NOT! I can see the flaws in this one, but basically it is typical of life in the 40's, 50's and early 60's. And don't forget the bomb scares in the spring around finals' time, when the whole school was evaculated while they looked through lockers and we had a ball in the nice weather happy for the recess...very innocent, indeed. My Mom used to cut chicken, chop eggs and spread mayo on the same cutting board with the same knife and no bleach, but we didn't seem to get food poisoning. Actually we seemed a lot healthier back then. My Mom used to defrost hamburger on the counter AND I used to eat it raw sometimes too, but I can't remember getting E-coli. Almost all of us would have rather gone swimming in the lake instead of a pristine pool (talk about boring). The term cell phone would have conjured up a phone in a jail cell, and a pager was the school PA system. We all took gym, not PE... and risked permanent injury with a pair of high top Ked's (only worn in gym) instead of having cross-training athletic shoes with air cushion soles and built in light reflectors. I can't recall any injuries but they must have happened because they tell us how much safer we are now. Flunking gym was not an option... even for stupid kids! I guess PE must be much harder than gym. Every year, someone taught the whole school a lesson by running in the halls with leather soles ! on linoleum tile and hitting the wet spot. How much better off would we be today if we only knew we could have sued the school system. Speaking of school, we all said prayers and the pledge and staying in detention after school caught all sorts of negative attention. We must have had horribly damaged psyches. I can't understand it. Schools didn't offer 14 year olds an abortion or condoms (we wouldn't have known what either was anyway) but they did give us couple of baby aspirin and cough syrup if we started getting the sniffles. What an archaic health system we had then. Remember school nurses? Ours wore a hat and everything. I thought that I was supposed to accomplish something before I was allowed to be proud of myself. I just can't recall how bored we were without computers, PlayStation, Nintendo, X-box or 270 digital cable stations. I must be repre! ssing that memory as I try to rationalize through the denial of t he dangers could have befallen us as we trekked off each day about a mile down the road to some guy's vacant 20, built forts out of branches and pieces of plywood, made trails, and fought over who got to be the Lone Ranger. What was that property owner thinking, letting us play on that lot? He should have been locked up for not putting up a fence around the property, complete with a self-closing gate and an infrared intruder alarm. Oh yeah... and where was the Benadryl and sterilization kit when I got that bee sting? I could have been killed! We played king of the hill on piles of gravel left on vacant construction sites and when we got hurt, Mom pulled out the 48 cent bottle of Mercurochrome and then we got our butt spanked. Now it's a trip to the emergency room, followed by a 10-day dose of a $49 bottle of antibiotics and then Mom calls the attorney to sue the contractor for leaving a hor! ribly vicious pile of gravel where it was such a threat. We didn't act up at the neighbor's house either because if we did, we got our butt spanked (physical abuse) here too, and then we got butt spanked again when we got home. Mom invited the door to door salesman inside for coffee, kids choked down the dust from the gravel driveway while playing with Tonka trucks (Remember why Tonka trucks were made tough... it wasn't so that they could take the rough Berber in the family room), and Dad drove a car with leaded gas. Our music had to be left inside when we went out to play and I am sure that I nearly exhausted my imagination a couple of times when we went on two week vacations. I should probably sue the folks now for the danger they put us in when we all slept in campgrounds in the family tent. Summers were spent behind the push lawnmower and I didn't even know that mowers came with motors until I was 13 and we got one without an automatic blade-stop or an auto-drive. How sick were my parents? Of course my parents weren't the only psychos. I recall Donny Reynolds from next door coming over and doing his tricks on the front stoop just before he fell off. Little did his Mom know that she could have owned our house. Instead she picked him up and swatted him for being such a goof. It was a neighborhood run amuck. To top it off, not a single person I knew had ever been told that they were from a dysfunctional family. How could we possibly have known that? We needed to get into group therapy and anger management classes? We were obviously so duped by so many societal ills, that we didn't even notice that the entire country wasn't taking Prozac! How did we survive?
  2. Subject: Only in America 1. Only in America.......can a pizza get to your house faster than an ambulance. 2. Only in America.......are there handicap parking places in front of a skating rink. 3. Only in America.....do drugstores make the sick walk all the way to the back of the store to get their prescriptions while healthy people can buy cigarettes at the front. 4. Only in America.......do people order double cheeseburgers, large fries, and a diet coke. 5. Only in America.......do banks leave both doors open and then chain the pens to the counters. 6. Only in America.......do we leave cars worth thousands of dollars in the driveway and put our useless junk in the garage. 7. Only in America.......do we use answering machines to screen calls and then have call waiting so we won't miss a call from someone we didn't want to talk to in the first place. 8. Only in America.....do we buy hot dogs in packages of ten and buns in packages of eight. 9. Only in America......do we use the word 'politics' to describe the process so well: 'Poli' in Latin meaning 'many' and 'tics' meaning 'bloodsucking creatures'. 10. Only in America......do they have drive-up ATM machines with Braille lettering. EVER WONDER Why the sun lightens our hair, but darkens our skin? Why women can't put on mascara with their mouth closed? Why don't you ever see the headline "Psychic Wins Lottery"? Why is "abbreviated" such a long word? Why is it that doctors call what they do "practice"? Why is it that to stop Windows 98, you have to click on "Start"? Why is lemon juice made with artificial flavor, and dishwashing liquid made with real lemons? Why is the man who invests all your money called a broker? Why is the time of day with the slowest traffic called rush hour? Why isn't there mouse-flavored cat food? When dog food is new and improved tasting, who tests it? Why didn't Noah swat those two mosquitoes? Why do they sterilize the needle for lethal injections? You know that indestructible black box that is used on airplanes? Why don't they make the whole plane out of that stuff?! Why don't sheep shrink when it rains? Why are they called apartments when they are all stuck together? If con is the opposite of pro, is Congress the opposite of progress? If flying is so safe, why do they call the airport the terminal? Now that you've smiled at least once, it's your turn to spread the stupidity and send this to someone you want to bring a smile to (maybe even a chuckle)....in other words, send it to everyone. We all need to smile every once in a while.
  3. As some of you know one of my thoughts about Johnny's care not being all it should be was that I suspected that he was at least partly misdiagnosed or I should say under diagnosed. I always suspected that at least part of what was in his lungs was fungus. The only tests he had were Ct scans and exrays. There is no way for me to know the truth for sure. Any information I gain is strictly to ease some things I question. I have seen several posts on this board about people who are or were dealing with fungus infection along with their cancer. My questions are: why was is suspected? What were the symptoms? How did they find it and how was it treated? Just one more attempt to ease my mind a little by knowing if my suspecions could be right. I always like to know as much as I can. This is important to my need for answers. I just want to know if I am possibly right.
  4. chalk one up for the red man!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
  5. Debbie My mom died in 1985 from lung cancer. I lived 2500 miles from her. Something told me to go home and see my family. Now you would think I would know that sense she had lung cancer but the kicker is I didn't know she had lung cancer. She had told me that she had a lump. I asumed it was in her breast. She never told me any differently. She had radiation treatments and was told it was gone. There were no follow ups. I got here to California to see her and found her very different. She would fall asleep all of the time. Not long before she had passed out one day coming into the house through the garage. It was a very hot day so everyone assumed it was the heat. Her ankle was treated and nothing else done. When I got here she seemed okay physically. Her attention wandered a bit and she would fall asleep. We took her to the doctor one day because she had made an appointment. She wasn't feeling right. It was then that I learned that she had lung cancer. Ten months after she had treatment. Later she ended up with pneumonia and was sent home with oxygen. Her mind started disappearing for hours. She was not the Mama I remembered. She had always been so strong. She worked hard all of her life. Now she was totaly dependant on my dad. She never had any pain. I was always thankful for that because my mom could not stand pain. I have no idea how she had 6 children at a time when they had none of the things they do today. I was the only one born in a hospital. I watched and saw her dignity going. I knew that she was dying. Still I was in denial. To make it shorter she kept getting worse and I had been here for 2 months. I had to get back to my family. The morning I left she was calling my name as I walked out the door. My husband told me that if I went back I would never leave. So I left with her calling me. To this day I can hear her voice calling my name. We stopped in Reno for one night. Then went for breakfast. When we got back to our room the maid was leaving. She had been leaving a note to tell me that Mama had died that morning. We came back for her funeral and stayed for another week. I never had a sign that she was with me in all of the years sense her death. Then last year after Johnny died things started happening that I couldn't explain. I told myself that I was doing those things even when my heart told me it was Johnny. Like you I kept asking for proof. I kept getting more and more but still I question. Sense his death I have had hundreds of signs. In my heart I know it is Johnny but my rational mind tells me to not believe. I have learned that my mind tells me that because I am afraid that if I ever really believe totaly that it is Johnny the signs will stop. I don't want that to happen so I deny them and question myself. I grieved for my Mama but I saw her suffer. No she didn't suffer pain but she suffered the loss of all that she had been. I know now that the cancer had probably gone to her brain but she was never tested nor treated for that. In it's way it was a blessing. Her mind hid the pain of the cancer. She never felt the pain. Because of what I saw with her I was almost relieved to see her not have to go through those things again. In her casket she looked like my mama again. Because of those things I was able to go on. I missed her but I had been so far away from her already that it was not a day to day thing. It made my grief no less just gave me more time to accept it. I finally did all of my grieving for her, my dad, my 3 brothers and Johnny's sister after Johnny died. I came to terms with their deaths but am still having a problem coming to terms with Johnny's. One night a few months after Johnny died I was in terrible shape. I was trying to read a book when I smelled something. It lasted such a short time that I couldn't tell what it was. The next night it happened again. Still I didn't know. The third night it came to me and never left until I realized what I was smelling was cooked tomatoes. Mama worked in a canery for over forty years. So many times we sat in the parking lot waiting for her to get off work with the smell of those tomatoes going through the whole car and following us for a long time after we left there. After over 17 years I finally had the sign that my Mama was with me. She came to comfort me and no one will ever make me believe any different! I still get signs from Johnny nearly every day and still I question. I will always question so maybe he will keep sending them to me. Our loved ones are with us. When we need them the most they are here but we have to be open to them. I never was until I lost Johnny and my need made me accept what I knew. Still I want more proof!!
  6. lilyjohn

    I Believe

    Becky thanks. I love Lonestar but actually it is Diamond Rio!! All great in my book. Country is in my blood even tho I am a California girl.
  7. lilyjohn

    I Believe

    There have been many times when my grief has had me on the down side of my emotions. Times when it was so bad I didn't think I could go on living.. Even worse I didn't know if I wanted to. So many times it was feeling that Johnny is still with me that kept me going. Many times that feeling came from a song that came on the radio at my lowest moment. The first time I heard that song was New Years eve 2002 less than a month after Johnny died and the night I first saw the container with his ashes. I cried all the way home that night. I was hysterical and have no idea how I drove without getting in an accident. When I tuned into the parking lot of by apartment this song came on the radio. I had never heard it before and as I listened to the words I became calm and felt that Johnny had seen my need and sent it to me. Every once in a while I need to be reminded of what I know in my heart. I think the words of this song can help someone else. If you have not heard it just read the words. I can only say that like it says I believe. Every now and then soft as breath upon my skin I feel you come back again and it as if you haven't been Gone a moment from my side as if the tears were never cried as tho the hands of time are holding you and me And with every breath I'm sure we're closer than we ever were I don't have to hear or see I have all the proof I need There are more than angels watching over me I believe I believe that when we die our life goes on It doesn't end here when we're gone Every soul is filled with light It never ends and if I'm right Our love can even reach across eternity I believe oh I believe People who don't see the most see that I believe in ghosts well if that makes me crazy then I am 'cus I believe there are more than angels watching over me I believe , I believe Every now and then soft as breath upon my skin I feel you come back again and I believe
  8. Boy does that hit the nail on the head!!!!!!!!!!
  9. A farmer had a number of hens but only one very old rooster. He decided that he needed a younger rooster to help service his hens. He bought a young rooster with a loud crow and a very proud strut. When the new rooster saw the old rooster he told him he had to stay away from all of the hens. He said they all belonged to him now because the old rooster was too old to handle the job anymore. The old rooster decided he would try to reason with the young one but to no avail. Finally he asked the young rooster if he could have just one hen. "No" said the young rooster "go away and don't bother me or my hens". The old rooster decided to try one more tactic. He said to the young rooster "why don't we have a race around the barn. If you win I leave and you have all of the hens with no more problems from me. If I win I get just one hen for company." The young rooster thought " I am young and strong and in good form. What will it harm and I can show all of my hens how fast and powerful I am." With that he agreed to the race. As they were getting ready to start the old rooster said 'You know I am old and slow and you are so much faster why don't you give me a head start?" The young rooster decided there was no harm in that. He could surely out run that old rooster with no effort so he agreed. The old rooster took off and was about 1/3 way around the barn when the old rooster took off after him. As they rounded the corner of the barn a shot rang out. The farmer lowered his gun and said to his wife "damn that's the third gay rooster this week."
  10. Up until a week or so ago I ignored this site. Never realized how much I was missing. Tonight having nothing better to do or not wanting to do it, I sat here for 2 hours reading all or most of the posts. Well you got me started and I have a few. Seeing as there are a few Texans on the board I thought it would be appropriate to start with a good Texas Joke so here goes. A man from out of state stopped into a local bar in West Texas. He sat on the bar stool and ordered a shot of whiskey. The bar tender came back with the biggest water glass the man had ever seen. He told the bar tender "I ordered a shot not that". The bartender place the drink in front of him and calmly stated "everything's big in Texas" A while later after consuming the one shot and part of another the man looked out the window as saw what he assumed to be a kangaroo hop by. Excitedly he said to the bartender " I didn't know the had kangaroo in Texas". The bartender looked at him shook his head and said " I told you before, everything's big in Texas. The man continued to drink one more shot and then another becoming more and more amazed at the size of things in Texas. After several hours he needed to use the bathroom and asked for directions. The bartender told him "go down the hall and take the first door on the right. Remember now the right hand door not the left." The man staggered down the hall and tried to remember what the bartender had told him. Thinking he had it right he opened the door on his left stepped in and immediately feel into the swimming pool. The last words heard from him as he sank out of site waving his hands were "don't flush it, Please don't flush it."
  11. It has been almost 3 days sense I made the post here. I am doing better but still have a way to go to get out of this slump. Thank all of you for your support. I know how hard it can be to try to help someone else when your own heart is breaking. As Shirley said been there, done that!! I was already sliding down that deep fall when I took those videos out to look at. I think that is probably why I did it. Sometimes it just overwhelms me when I see how many changes have taken place in my life in less than 2 years. Just seems like nothing is easy any more. I have pieces of my heart scattered in several different places and am trying to learn to get those pieces together again in this one beautiful place. I have been writing a story about mine and Johnny's lives. We were seperated in a most brutal way many years ago. We went on to live seperate lives and had families of our own but we never forgot. We never stopped loving eachother.. The short time we had was a wonderful gift and I would never want to have not had that time no matter how much pain I am in now.. I wrote about how I was after our seperation. I said "I was like a glass that had been shattered. You might be able to glue it back together but it will never be the same. There will always be a flaw..The only way to make it whole again is to return it to it's original mold and remake it. When I found Johnny again I was remade but now I have shattered again. I don't know if I will ever be together as much as I was before and then I was so flawed." I still feel that way sometimes. It doesn't take much to set me off. I decided yesterday that I would really do something. I never put anything off in my life before. I always just jumped in with both feet and got it done no matter what. Sense Johnny's death I find it so easy to just wait and keep waiting. I seem to have no direction. The job I had yesterday was to clean out one of my files. I save all of my check card reciepts and once my statement comes I throw the ones that are acounted for away..I hadn't done that is so long and needed the room. When Johnny and I had gotten our apartment together we needed everything. I went shopping and bought what we needed and saved the reciepts. We would go on rides and when we bought gas I saved those reciepts too. Everything from reciepts for his buiscuts and gravy he had me buy for his snack every night he was in the hospital to the desert we bought at a beautiful lodge on Lake Quinault the day before that nurse made that fatal remark. I never threw any of those things away.. When I got about half way through that file I found all of those reciepts. There are so many memories there. I remember how happy I was planning our life and shopping for the things we needed. Every date on those reciepts have special meaning. I sat there and cried as I relived every minute from those times. Such beautiful memories but now they hold so much pain. I kept thinking what if someone saw me there crying over gas reciepts? I felt so unhinged but I just couldn't stop and when I finished I couldn't throw them away. I put them back in that folder and I wonder if the next time will be any easier. I had to pack all of our things when I moved just 4 months after he died. I felt like I was stripping away our life together. I brought all of his things with me. I don't think I will ever be able to throw any of them away. The last set of clothes he wore are hanging in my closet unwashed. I know it is impossible but sometimes I can swear that I can smell his scent on them. I want so much to try to find some peace. He gave me a chance for a new life. He would want me to use it but it just feels so empty without him. It has been over a year now. The pain gives me small breaks but I feel like a part of me was ripped away and every now and then someone throws salt in the wounds...The only thing that helps besides all of you here is that I know he is near me all of the time. I can feel him sometimes but when I can't I start to doubt. That is just so hard!!!!!!! I started this post to thank all of you and ended up rambling again. I sure seem to be doing a lot of that latey. Again I say thanks and I thank you too for putting up with my rambles. Johnny used to say I would be perfect if I didn't talk so much. Then he would say "It's alright Mama, It's alright Darlin" How I wish I could hear those words again!!!!!!!!!
  12. lilyjohn

    Husband Mart

    I had the bottom floor then found all 5 in one. I'm finished shopping. I might end up with a dumb blond man!!!!!!!! Now I know a joke about that but I sure can't print it here!!!!!!!!!!! Oh by the way I am a NATURAL blond and I have heard all of the blond jokes already. That gives me the right to talk about a dumb blond guy!!!
  13. lilyjohn

    Husband Mart

    hey not fair!!!!!!!! That is a man joke. Just think what we women could come up with if we tried!!!!!!!!!!!!!!!!! I can find some good ones but I'm not sure they are acceptable here!!!!!!!!!Come on ladies lets get even!
  14. lilyjohn

    Just lost my mom

    Dearest Tammy My heart turly goes out to you. All of us here on this forum have lost someone very close to us be it mother, father or sibling or spouse or as in my case love of my life. Sometimes the pain can be overwhelming and you think that you are drowning. Others you just wish you could lay down and die too. That is not what life is all about no matter how much we hurt. We have to go on.. Take it one minute at a time. Sometimes that is all you can do. Even a day at a time or an hour at a time can seem so endless when you are in such unbearable pain. Take one minute and hold it and if you hold it long enough it will grow into two. It may take days or even months before you have hours of relief but I pormise you the day will come when you don't hurt all of the time. You have a very special day coming.. Concentrate on that as much as you can. Your whole life is ahead of you. Your mom knew that your wedding was coming. It gave her something to concentrate on besides what was happening to her. I know it is bittersweet now but just remember you have a part of your mom with you and you always will have. Hold on to that and do somethng speical during the ceremony to honor her. It may hurt to do that and make you cry but sometimes tears wash away a little of the pain. Someday you will be able to look back and say "this was my mom's part of the wedding" I'm sure she will be there to see.. After all she picked the date or had it planned. There is no way she is going to miss that day... You may not see her but she will be watching.. Believe that with all of your heart and you will know.. Bless you and please come here whenever you need to. We can never be your mom but we can all be your friends. Have a great wedding but more important have a great life!!!!!!!!!
  15. I just want to tell you something about some of the meds you are talking about and some that I read about in the other posts here. The Ambien is a Bensodyapine(sp) if it causes anyone to hulicinate make sure you are very carefull. Johnny tried the Ambien and didn't like it. At the time we didn't know it was from the same family as Ativan(Bensodyapines) witch he had already had a terrible reaction to with nightmares and hulcinations. Ativan is much stronger than Ambien or most of the other Besodyapines. Please be very carefull with these drugs. They can cause serious problems that may lead to other things much worse. I know it was a dose of Ativan given in Johnny's IV that started all of the things that led to his death. If you have a problem with one you will more than likely have it with the other. I have sense learned that these types of problems are very common with Ativan and most of them are dose related the rest are just caused because the person taking it is very sensitive to it. Johnny had taken the Ativan in very small doses earlier. It was when his dose was increased that he had the problem. I don't want to scare anyone off a medication that might work. I just want to warn you to be very careful.
  16. lilyjohn

    Bad day?????

    Thanks Ann Isn't it amazing how someone elses bad day can make us laugh and make our day a little lighter?
  17. lilyjohn

    The Road of Life

    I recieved this in my email today. A gentle reminder of what I have been learning but sometimes forget when the pain gets me down. I wasn't really sure where to post it. It could go in the foram for those of us who have lost a loved one. It could really belong in the Good News forum, But I chose this one because it is something that many of us are learning still and there are others who have so far to go one this road. I pray that each and everyone of us find the road less bumpy and that we realize we are really never alone. I hope someday no one will have to travel the road called cancer but until that day comes it is good to remember there is someone in the drivers seat who knows the way much better than any of us do. Lillian The Road of life At first, I saw God as my observer, my judge, keeping track of the things I did wrong, so as to know whether I merited heaven or hell when I die. He was out there sort of like a president. I recognized His picture when I saw it, but I really didn't know Him. But later on when I met Christ, it seemed as though life were rather like a bike ride, but it was a tandem bike, and I noticed that Christ was in the back helping me pedal. I don't know just when it was that He suggested we change places, but life has not been the same since. When I had control, I knew the way. It was rather boring, but predictable it was the shortest distance between two points. But when He took the lead, He knew delightful long cuts, up mountains, and through rocky places at break neck speeds It was all I could do to hang on! Even though it looked like madness, He said, "Pedal!" I worried and was anxious and asked, "Where are you taking me?" He laughed and didn't answer, and I started to learn to trust. I forgot my boring life and entered into the adventure, and when I'd say, "I'm scared," He'd lean back and touch my hand. I gained love, peace, acceptance and joy; gifts to take on my journey, My Lord's and mine. And we were off again. He said, "Give the gifts away. They're extra baggage, too much weight." So I did, to the people we met, and I found that in giving I received, and still our burden was light. I did not trust Him, at first, in control of my life. I thought He'd wreck it; but he knows bike secrets, knows how to make it bend to take sharp corners, knows how to jump to clear high rocks, knows how to fly to shorten, scary passages. And I am learning to shut up and pedal in the strangest places, and I'm beginning to enjoy the view and the cool breeze on my face with my delightful constant companion, Jesus Christ. And when I'm sure I just can't do it anymore, He just smiles and says... "Pedal." YOUR CROSS Whatever your cross Whatever your pain There will always be sunshine After the rain Perhaps you may stumble Perhaps even fall But God's always there To help you through it all
  18. First I will try to answer your question. No you will never feel normal again. Not the normal that you are hoping for. Whenever we lose someone we love we lose a part of ourselves. That can never be replaced. The thing that you have to remember is that you lost a part of yourself but you also have a part of her. When two people love it doesn't matter if they are siblings, Parent and child or husband and wife or lover. We give parts of ourselves for them to take and they leave parts of themselves for us to keep. Your mom will always be with you. Keep a sharp eye because if you do you will know that beyond a doubt. You were very fortunate to be so close to your mother. My mom had to work and support a large family. She worked in a canery and that meant long hours away from us and working nearly every minute that she was home. I really never got to know her until my teen years then I married and moved far away. She died in 1985 from lung cancer. I saw her less than 10 times in 14 years. I never knew what her dreams were or her hopes. I never saw her laugh in total abandon and I never saw her cry no matter what life handed to her until one of my brothers died. Over the years I have lost 3 brothers and both parents. I lost one boy that was close to my son and almost like another son to me. I saw another man who was my son's brother-in-law lay in a bed for 2 years unable to move a finger because of an accident that cost him a large part of his brain. He was like a younger brother to me. When Johnny died all of the hurt from all of those other deaths came back to me. I finally had to come to terms with them. Johnny's sister had been my best friend when I was younger. In 1974 she was murdered and I was not there for her when she may have needed a friend. Those things haunt me still but nothing ever compared to the pain of losing my Johnny. Sometimes life really sucks and it is hard to understand why some suffer so much loss and others never do. That is life. No one knows the answer. So many parts of me have gone on but I have so many wonderful parts of the people I love still with me. No matter how many people we lose it does not get any easier to handle. It does make us stronger. You may not feel it now but you will someday. It has been over a year sense Johnny died and still I find it hard to focus and do the things that I know need to be done. There was a time when that would have upset me but anymore it doesn't. I know now what is important in life. Take time to find yourself and love the ones that you have left with all of your might. Give them a little of your loved ones and as much as you can of yourself. Be thankful everyday of your life for the time you had with your mom. You were so lucky to have that. God bless you and I hope your pain will start to give you a few breaks soon. For now that is all you can look for. Take it a little at a time. You will learn that is all you can do.
  19. lilyjohn

    Rant

    Somehow I missed this post until a little while ago. Now I want to add my two cents worth. I'm all for getting together a commitee to choose *ss hole doctor or the decade. Anyone want to take me up on that? I'm sure that the only problem we might have is finding more people to vote than nomanees!! I know there are some really good and caring doctors and like Norme said you can not fault them if you ask. My solution is if you don't really want to know don't ask. If they tell you anyway tell them what they can do with their statisticss and nominate them for the afore mentioned title. Now sense Dean had the good sense to start this rant (he must have been reading my mind when he posted it) I have a few more things to add. If doctors spent less time reading statistics and more time trying to find a way to change them maybe they wouldn't be so bad. If they spent as much time trying to lift someones spirit and encourage them in their fight instead of blindsideing them with statistics and their own pre concieved notions about life and death maybe many more would have the heart for the fight. I believe too that when they start out with the attitude that a person who has lung cancer is a walking dead person they will not do a whole hell of a lot to make it turn out different. In fact they may (as I have seen) do things that will make the persons chances of becoming one of the bad statistics higher. Things like giving drugs that they would never give to someone else because they are dangerous for that particular person. Now too lets talk about emotional problems like anxiety and depression. There is an attitude that makes emotional problems and mental problems sound like they are all the same thing and leads people to think (especially doctors it seems) that if you have one of these problems your quality of life is not worth saving. Now I wonder why someone who is told they have cancer. The statistics are very bad and you have only xxxxx amount of time to live would feel either anxious or depressed? dahh!!!!!!!!! Seems to me like we need to open a school that teaches hope, bedside manners, alternative treatments and faith along with how to keep your eye toward what is good for patients instead of rattleing off doom and gloom before they have a chance to digest the fact that they have a serious illness!!!!!!! Ok Got that off of my chest so my rant is over for now. Who is next????????? I'm sure there are many other things that have been missed so lets hear them!! Heck just talking about it might make so much energy that we end up producing some new chemical that makes all of the things above just go away !!!!!!!!!!!!!!!!!!!!!!!!
  20. Norme what pain medication is he taking? Sometimes when you dig a little deeper you learn more about medications. What they give from the pharmacy does not always tell the whole story. If you have not done so already try looking it up on the web. Read several different sites. Sometimes you will learn about other problems caused by the medication and alternate medications that have the same effect without causing the problems the other does. Just a thought but it might be worth looking into. I did learn that the one drug I never suspected of causing a lot of problems was. That was of all things Albuteral. It causes shakes, memory problems, anxiety and sometimes makes a persons breathing even worse instead of better. Never would have known any of that had I not searched several sites and read them all. Take care and I hope you get the answer you need soon. When I was working with people who had alzheimers or demetia I often said that it took a persons life long before it killed them. After watching what happened to Johnny and reading some of the things on this board I see that cancer can do the same thing. Just one more thing that we need to try to find a way to change.
  21. lilyjohn

    Sh*t......

    Honey hang in there don't let this derail you. Say shi_ as much as you want to. If we all said it as many times as we feel like it they would censor this board and wash all of our mouths out with soap. But hey A good washing never hurt anyone. Getting dirty is such a relief sometimes or dirty mouthed that it would be worth a little taste of soap!!!!!!!! Don't buy trouble before you have to. Like the others have said this may be a very good thing. The one major draw back will be that you find it harder to trust what his doctors tell you anymore. In that case just ask for and get a second opinion. That will help put your mind at ease that he is getting the right treatment.
  22. Come on Gay we are all anxious to meet you. Just from reading Dean's posts we know what a wonderful part of his life you are. Now we want you to be a part of our "family" too.
  23. lilyjohn

    Doors

    Like everyone else has said you seem to have said so many of the things that are in my heart. People seem to shy away from us when we are in so much pain. Maybe because they are uncomfortable and don't really know what to say. They say things that they think we need to hear not realizing just how insensitive there words are. I think too that dispite the fact that everyone knows better some people think that if they get too close to someone who has experienced cancer or death that they will somehow "catch it" Just one more of the stigmas that we have to learn to live with. It has been over a year for me now. I do have good days but mostly I have good minutes. I call a good day or a good minute the ones when I don't feel like I just want to lay down and die too. Anything more than that is a bonus and that is when I feel that I have gained a little of paradise for myself. I now live in a place where I feel very close to nature and God. A God that I not only felt deserted me but betrayed me by giving me hope then not following through. I know now that I was wrong. Still it does not make it any easier. The one thing that makes it easier for me besides all of the wondrefull support on this board is the beleif or I should say the knowledge that God does exist and there is a reason for everything even our pain. I just keep trudging along hoping that someday I will know that reason. I can not promise you that things will get better soon. As everyone else has said how we cope is an idividual thing. I do know that there will be times when you think that you are doing well and handling things then like a frieght train from nowhere it will hit you again. Holidays and aniversary days are the hardest. Seeing that life goes on around us can make up very bitter and cause much pain our thought is "don't they know that the world has ended" the problem with that is that our world may have ended but theirs has not. There time may come but for now they need to hold on to what they have. We can not expect them to do any differently. We did that too before we came to this place in our lives that has left us so lost with no direction and few if any dreams. I say honor our loved ones with our grief and tears but also honor them with our laughter even if for now it is forced. In time we will be able to remember and laugh with our hearts not just our faces. Until then take each moment of peace that you find and cherish it. When something is treated with love and tears it will grow just as a plant grows when shown sunlight and given raindrops. My heart goes out to you and all of us who have been forced onto this road of pain and sorrow. Lillian
  24. We should all be so honest!!!!!!!!!!!!!!!! Ann I know you told me that you would not be very busy today at work but you must really have a lot of time on your hands!!!!!!!How on Earth did you find this? It could prove to be something to keep us all laughing if there are more like that to read.
  25. Sounds so true to me!!!!!!!! Don't forget to add tho that one of Satan's final tricks was to turn most medical practices over to corporations so they could gain much wealth and give him a new bunch of people who could afford all of his temptations. Then he made them too blind to see that sooner or later they would be the ones at the mercy of others like them selves and insurance companies!!!!!!!!!!!!!!!!!!!!!
×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.