mamasbabygirl Posted January 4, 2005 Share Posted January 4, 2005 Well, the CT scan shows that there is a tumor in her lung again and bone involvement, her T-8 vertebrae. He is recommending she start chemo after the WBR, but there may be a trip in between. We begged him basically to find trials that she could participate in bc she is so young and otherwise healthy. He said he has a good friend at MD Anderson, so he will let us know what kinds of trials are going on and let us know next week at her visit. We have to be ready to go there at any time. I am also going to look on my own. I guess the spine being involved is why she has so much pain. I hope the morpheine increase will help her soon. She is completely spent, depressed and keeps apologizing for putting us through this! That is the most ridiculous thing I have ever heard. I told her I'd walk to China if it would help. Gob bless everyone here!! Quote Link to comment Share on other sites More sharing options...
TAnn Posted January 4, 2005 Share Posted January 4, 2005 Lori, I am so sorry to hear that the news was not good. Your mom is very brave. Let me know if you end up coming to MD Anderson. I can give you some tips on how to navigate the facility. You can go to their website on your own and check out their trials. Just go to www.mdanderson.com and go to the thoracic department and click on clinical trials. They give you the requirements and goals for each trial. My prayers are with you and your mom. TAnn Quote Link to comment Share on other sites More sharing options...
stand4hope Posted January 4, 2005 Share Posted January 4, 2005 DARN!! That's not what I was hoping to hear, Lori. Did he say what chemo she's going to get? I'm sorry your mom is depressed, too. There has been a lot posted lately about ideas to help her get through this. Check on the General Forum. Keep us posted, and I will pray for your mom. Love, Peggy Quote Link to comment Share on other sites More sharing options...
shelliemacs Posted January 4, 2005 Share Posted January 4, 2005 i hated when my mom and dad were apologizing for putting me through it too. I used to say I was the one who was sorry for being healthy in front of them. When mom had LC dad used to say I beg God to give it to me instead of you and then when dad got LC my sister would say I would take it away if i could . now sis has cancer but of the breast. I just say I would cure you if i were able. but stop apologizing to me cause I don't need any apology, i need you mad enough to fight it and bitter against it to not let it win. i send mucho prayers for your moms recovery. Quote Link to comment Share on other sites More sharing options...
Don Wood Posted January 4, 2005 Share Posted January 4, 2005 Lori, sorry that the MRI wasn't clean. Tumors on the spine can cause excrutiating pain because there is such a nerve network in the area. Lucie had her main tumor at C8-T1 and even though chemo and radiation took care of it, she still has to stay on morphine because of damage in the area. BUT, she can still walk fine, use her hands, etc. You mom's tumors should be treatable. Don Quote Link to comment Share on other sites More sharing options...
Haylee_38 Posted January 4, 2005 Share Posted January 4, 2005 Lori, Sorry the news was not so good. Know you and mom are in my thoughts and prayers. Haylee Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted January 4, 2005 Share Posted January 4, 2005 Hi Lori, Sorry to hear that. Thoughts and prayers that they will come up with a good game plan to help your mom. Rich Quote Link to comment Share on other sites More sharing options...
john Posted January 4, 2005 Share Posted January 4, 2005 Try http://www.clinicaltrials.gov for finding clinical trials You can search for a location also, such as "NSCLC, Texas" Quote Link to comment Share on other sites More sharing options...
betplace Posted January 4, 2005 Share Posted January 4, 2005 (((Lori))) I am sorry for this setback. Hugs and prayers going out to you and your Mom for styrength Blessings Betty Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted January 5, 2005 Share Posted January 5, 2005 Lori Hugs to you and Mom ((())) Joanie Quote Link to comment Share on other sites More sharing options...
Fay A. Posted January 5, 2005 Share Posted January 5, 2005 I know this isn't what you hoped to hear, but the fact that your Mom's Onc knows someone at MDA will hopefully translate into an appointment and some good help for her. Hang in there, Lori. Tell your Mom she is being thought of. Quote Link to comment Share on other sites More sharing options...
karenl Posted January 5, 2005 Share Posted January 5, 2005 I hope that somthing positive comes through from MD Anderson for your Mom! I agree with you though, and encourage you to look on your own as well. My Mum is currently on a clinical trial that my sister located for her through her own research. Mum's first scan after two months of treatment showed a 30-40% reduction in the primary tumour! We have found that you need to be proactive with regard to treatment. Sounds like you have the right attitude!! (You know, they ARE doing some interesting trials in China............!!) All the best Karen Quote Link to comment Share on other sites More sharing options...
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