j ross Posted May 24, 2005 Share Posted May 24, 2005 hello my name is jennie and I have been reading this forum for quite some time. My daughter, Sarah (Nadri) has posted in the past. My husband Barry was diagnosed with NON-small cell Lc in May 04. He had surgery but the surgeon found the cancer had spread to the pluera and some additional spread in the left lung where the main tumor was located. The surgeon removed the main tumor and cleaned up what he could.He also performed a plueradesis.[sp] The first onc. we saw told him to go away and do what he wanted as this may be the last summer he would have and come back for chemo when he felt like it. The sugeon was not happy and refered us to another onc. Barry, who is a never smoker, had four round of gemzar and carboplatin with few side effects. The onc said that 90% of what was there on diagnosis was gone. Barry who seems quite sensitive to symptons did however feel some activity. He was then at our suggestion in December 04 given iressa. All symptons have now gone. Barry feels normal. Works part-time, does the garden, etc. etc. I still find the whole thing surreal. I read the net a lot and worry as the infomation seems to be that the ireesa does not last?? I would appreciate any input or comment that anyone may have. Thank you all for being here Jennie P.S we live near London in the uk. Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted May 24, 2005 Share Posted May 24, 2005 Welcome Jennie from across the pond. Glad you found us and that is great to hear Barry is doing well on Iressa, so glad. Stay with us and keep us posted. Prayers for continued success. Rich Quote Link to comment Share on other sites More sharing options...
Doughnut Posted May 24, 2005 Share Posted May 24, 2005 Hi Jennie. I too am from England and I remember your daughter's post for that very reason. I'm here because of a friend with small cell so I don't know much about non small cell. Although my gran had non small cell it was a long time ago and I was pretty young. I've decided to jump in with both feet - the worst that can happen is they can boot us off for being cheeky! Good luck to you, Dee Quote Link to comment Share on other sites More sharing options...
Ry Posted May 24, 2005 Share Posted May 24, 2005 Welcome...glad to hear that all is well. Quote Link to comment Share on other sites More sharing options...
Don Wood Posted May 24, 2005 Share Posted May 24, 2005 Welcome, Jennie. Sounds good that your husband has responded favorably. My wife has also responded favorably to each treatment, and staved off the beast many times. She is 2 1/2 years from diagnosis. Keep us posted. Don Quote Link to comment Share on other sites More sharing options...
jang Posted May 24, 2005 Share Posted May 24, 2005 Welcome Jennie.. glad you found us. Quote Link to comment Share on other sites More sharing options...
Michael Lewis Posted May 24, 2005 Share Posted May 24, 2005 Jennie, Welcome to you and your husband. I, too am diagnosed with NSCLC. Right now the prognosis is a year at best, but I feel good and am doing fairly normal things. Physicians use statistical data for prognoses. Your husband (and I hope myself) are, or can be "exceptions to the rule". You will find many here who will give evidence of this. Glad he is feeling well. Michael Quote Link to comment Share on other sites More sharing options...
J.C. Posted May 25, 2005 Share Posted May 25, 2005 Welcome Jennie, Glad that your husband is responding to the Iressa treatments. Just keep us posted. Hugs J.C. Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted May 25, 2005 Share Posted May 25, 2005 Jenny,welcome to our support family.There are several here doing well on iressa and tarceva.My onc hasn't given to trying it yet on me as she says it works on about 15% of the patients. Glad it is working for your husband. Quote Link to comment Share on other sites More sharing options...
Calintay Posted May 25, 2005 Share Posted May 25, 2005 Welcome prayers for your husband and of course yourself as well! Quote Link to comment Share on other sites More sharing options...
Maryanne Posted May 25, 2005 Share Posted May 25, 2005 Hi Jennie, First of all, I am so glad he found an Oncologist that helped him. He certainly was blessed there, as according to the other one he seem to have little hope. Of course that is not the case. There is always 2nd opinions and you seem to have found the right one. Just keep doing what you are doing. Try not to read too much on the internet as that could make you confused and scared. We are here for you for all the support and first hand knowledge you may need. We have an excellent topic here, LC in the News which gives up to date reports of what is happening with new advances and technologies as they are posted on the internet. At this point just thank G-d he is doing fine. Just take one day at a time. Try to relax, and enjoy life. Make plans, go places. Live for today and look foward to tomorrow. We are always here when need us. Prayer going out to him for continued success. Maryanne Quote Link to comment Share on other sites More sharing options...
j ross Posted May 27, 2005 Author Share Posted May 27, 2005 Just want to say thank you for your welcome. We have our next appointment next month. We are going to ask if adding avastin to the medication might be a good idea as it stops cancer growth by a different process. May be that by attacking the disease on more than one front would work? It's not available in the uk but where there is a will... Best wishes to all. Jennie Quote Link to comment Share on other sites More sharing options...
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