Darci Posted August 17, 2005 Share Posted August 17, 2005 Hi everyone...I think that this is the board that I should be moving too! We, I guess, are 99% sure that my FIL has NSCLC...won't know what type for 100% certainty until we have a tissue sample. I attended the appointment with them yesterday with the surgeon - we were missing a lot of information and I was finally able to get answers to many of our questions. We started out getting some information that we were not really prepared for - apparently he has a hiatal (sp?) hernia and a portion of his stomach has moved up into his chest cavity, and he probably has had a mild heart attack at some point. The inferior wall in the right ventrical of his heart is not functioning properly - not something serious enough to prevent him from having surgery. He has a 1 1/2 cm tumor in his right upper lobe. They are 99% sure it is non-small cell, but could not tell me what specific kind. They do not know right now if it has spread to his lymph nodes, although they are "highly suspicious" of two of his nodes, based on CAT and PET Scan results. As of now, they have scheduled a bronchoscopy and mediatinoscopy for Sept 1. If the lymph nodes come back neg, then they will do surgery (resection, upper lobectomy) on Sept 7. If the lymph nodes come back positive, then they want to do a 6 week round of chemo and radiation, and then surgery a few weeks after that. Because of his age, they don't feel that they can do the VAT procedure - something with not having clear fissures between the lobes. It is scary...and it was so hard to sit there with them and be the strong, clinical one to ask all the questions, but that is what they really needed from me. I think I did ok. They want me to write it all out and send to all of the kids, so that everyone knows exactly what we are up against. Right now, I think that they are just ready to get moving. The doctor and the fellow doctor (some kind of resident) were terrific, and spent a ton of time with us. I was very happy about that, and I think that it made them much more comfortable too. The doctor even had a lung transplant that was coming together this afternoon, and still was able to spend a lot of time going through all my questions. At least now we know...and now we can move on with dealing with everything. I want to thank everyone again for giving me the tools I needed to get the info the family needed. And he is feeling good for now...wouldn't even know that he has this..I guess that that is good for him too!! Quote Link to comment Share on other sites More sharing options...
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