Patkid Posted March 2, 2006 Share Posted March 2, 2006 Don, I am so wowed by your self~advocacy. You are awesome. You hug the baby and implement your great plan and I will be on prayer patrol. Lots of love Pat Quote Link to comment Share on other sites More sharing options...
trish2418 Posted March 2, 2006 Share Posted March 2, 2006 Praying that everything goes well. Trish Quote Link to comment Share on other sites More sharing options...
mamasbabygirl Posted March 3, 2006 Share Posted March 3, 2006 Sounds like a very solid plan. Knowledge is power isn't it? Quote Link to comment Share on other sites More sharing options...
J.C. Posted March 3, 2006 Share Posted March 3, 2006 Don, You really checked all the possibilities and you are a strong self-advocate. Your posts are always educative and so well presented that even for me they are easy to understand and follow. The best for you, prayers and good vibes included. Hugs Jackie Quote Link to comment Share on other sites More sharing options...
bethluvswill13 Posted March 4, 2006 Share Posted March 4, 2006 Don- From the way you talk about your options...you'll be just fine. Your really wise when it comes to procedures. Good Deal! Quote Link to comment Share on other sites More sharing options...
MalouDP Posted March 4, 2006 Share Posted March 4, 2006 Wow Don you must be doing a lot of reading there. Seems like you are ready for this upcoming battle. Good luck and God Bless you. Love Malou Quote Link to comment Share on other sites More sharing options...
Ry Posted March 5, 2006 Share Posted March 5, 2006 Wishing you a very dark PET scan. I am also a fan of Bernie Siegel. You can get his entire set of books on tape very reasonable on e-bay if you're interested. They are very calming and inspirational to listen to. Good luck Don. Quote Link to comment Share on other sites More sharing options...
karen335 Posted March 5, 2006 Share Posted March 5, 2006 Don, I pray this treatment works for you. I read your post on the other site and it sounds very good. The doctors there seem to think it is a good thing for you... I recall Trishmiller in Florida. Her husband had CK and he is NED. Please keep us posted on how you are doing. MRI is a very noisy test. I have had 9 MRI's. Sounds like a jack hammer. Only problem I have is, I'm clastraphobic (sp?) Just know we are here for you... Karen Quote Link to comment Share on other sites More sharing options...
bunny Posted March 6, 2006 Share Posted March 6, 2006 Don, the truth is, I read your post last week but didn't know what to say. I am so angry you have to have more treatment. I want you to not have to worry about this during your "very long weekend" and enjoy that impossibly cute baby without all of this baloney... that said, your plan is so sound and you're so well informed, I have no doubt you'll be back to NED in no time... xoxo bunny Quote Link to comment Share on other sites More sharing options...
Patty Posted March 7, 2006 Share Posted March 7, 2006 So sorry & upset to hear that you have something else come back. I am really hoping that you are cured. It's great that you are so on top of everything. Do you know when you will find out anything for sure-if that's possible? You are in my thoughts and prayers, Patty Quote Link to comment Share on other sites More sharing options...
Patty Posted March 7, 2006 Share Posted March 7, 2006 Sorry, Don, never mind my silly question. I just read your post where you said your PET Scan will be on the 14th. I will just wait with you. Patty Quote Link to comment Share on other sites More sharing options...
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