Bill Posted May 24, 2006 Share Posted May 24, 2006 my mothers oncologist ordered salvage chemo monday p.m. 780 mg of Alimta. she weighs 120. ok response except for some skin itchin and rash then suddenly starting late last nite worst ever extreme fatigue shortness of breath and ach and pains. severe right flank pain to. pains seems to move around to different parts of her body. this morning her legs ache. she is so weak and short of breath that she cant stand up without holding onto something and cant walk. she can barely talk cuz she must gulp for air. dr says that this is fairly common for Alimta with extreme advanced disease that has been treated with chemo over nad over. this is why he considers it salvage chemo. no more salvage chemo unless her condition improves and scans show that tumor mass in her right lung has shrunk away from her aorta and spine and her vision improves/ special thanks to Peggy for all the messages of support. I sharedcthem with my mother and she says thanx rob Quote Link to comment Share on other sites More sharing options...
Treebywater Posted May 24, 2006 Share Posted May 24, 2006 Praying for you and your Mama... That Alimta can be mean stuff.... I'm sorry she's having such a hard time. Quote Link to comment Share on other sites More sharing options...
Don Wood Posted May 24, 2006 Share Posted May 24, 2006 Rob, so sorry. Prayers continue. Don Quote Link to comment Share on other sites More sharing options...
pammie Posted May 24, 2006 Share Posted May 24, 2006 Will be keeping your mom in our prayers and you to Rob. pammie Quote Link to comment Share on other sites More sharing options...
carolhg Posted May 24, 2006 Share Posted May 24, 2006 I am so sorry that your mom has been having such a rough time. I hope things turn better real soon. Prayers Quote Link to comment Share on other sites More sharing options...
Ry Posted May 24, 2006 Share Posted May 24, 2006 I am sorry she is having problems with the Alimta. It is a harsh chemo--my husband had to ask for a break to get his strength up for the last 2 rounds. I hope the side effects are worth it. Quote Link to comment Share on other sites More sharing options...
Don M Posted May 24, 2006 Share Posted May 24, 2006 Rob: you and your mom have my prayers. Don M Quote Link to comment Share on other sites More sharing options...
stand4hope Posted May 25, 2006 Share Posted May 25, 2006 Hi Rob, You are very welcome for the PMs. I know how hard this is for you and your dad. As you can see below, I've traveled the road you and your dad are traveling and so has my son, and we feel your pain. I do pray that Alimta has done some good, but mostly I hope that your poor mother gets some relief from her horrible pain and breathing troubles. I had trouble getting my breath one time, just for about one minute, and just that one minute scared the wits out of me. It causes a very panicy feeling. Is your mom getting morphine? If not, please see if she can get it because it really helps them not feel panic. She may have to have large doses and frequent which will make her sleep a lot, but at least she won't be scared. Take care, honey, and God bless you! Peggy Quote Link to comment Share on other sites More sharing options...
RandyW Posted May 25, 2006 Share Posted May 25, 2006 Saying Prayers For all Of You. I hope that the salimta will help and her pain will be eased I know from experience this is not good to hear of.I pray she will get some relief and things will get better. The only experience I had with Pain was Morphine that Deb was on. There is a sticky in New Meds forum on pain and PM if I can help in anyway. always around. Quote Link to comment Share on other sites More sharing options...
Bill Posted May 25, 2006 Author Share Posted May 25, 2006 My mom has ben in the hopsital 4 times this month. her at home drugs are scattered all over the dining room table - newest drugs datedd yesterday are - 2 boxes of FENTANYL transdermal system - 5 in each box - 50 mcg/hr - 1 patch every 3 days morphine sulf 30mg tab SA - 1 every 8 hours alprazolam 0.5 mg tab - 1 tab 4 times daily temazepam 15mg capsule - 1 at bedtime I know that her hospital drugs are a little different. same as the at home drugs but she getsc diladid either 2 or 4 mg ( sp) IV every 3 hours and mscontin 30mg morning and eve instead of morphine every 8 hours. I think that mscontin may be same or simlar as her at home morphine though. in the hospital she also gets Ritalin every 4 hours from morning to 4 pm thanks for the replies and pain concerns. hope this is enough help her for now. mom has ben having hallucinations in the hospital. her memory is shot. doctors says its the patch causing amnesia. some one will visit her and she doesn't remember 5 min ;later. she also keeps saying that she sees a pair of hands over her head. hospital chaplain visits and says that hands over head vision is sort of common in terminal patients. this scares me. is this true. her doctor told me that she is so sick that she will die soon. the Alitma was given to try and buy her a little time but as I told you shes having lots of problems with it already rob Quote Link to comment Share on other sites More sharing options...
karenl Posted May 25, 2006 Share Posted May 25, 2006 Dear Rob and Bill Please know that we are thinking of the three of you. Mum also experienced hallucinations/delusions and personality changes, and I know how devastating it is to witness. I hope that things improve and that your Mom is able to be made comfortable. Love and best wishes to your family...... Karen Quote Link to comment Share on other sites More sharing options...
elnodel Posted May 25, 2006 Share Posted May 25, 2006 Rob, will be thinking of you and your mother -- hope that the pain is under control and the alimta does its stuff and gives her that extra time without any more dire side effects. Ellen Quote Link to comment Share on other sites More sharing options...
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