Tom K Posted June 29, 2006 Share Posted June 29, 2006 I had a PET scan 6/27/06 and the results were not what we hoped for. The good news; The right Paratracheal lymph nodes are smaller and showed no activity. These lymph nodes were the ones that lit up after surgery. The inconclusive news; My right lung had activity with a maximum SUV of 3.9 but no nodules were detected. The radiologist interpreted this as “Post Therapeutic Change” from the Surgery, Chemo and Radiation. Now for the bad news; “There appears to be a small low density in the liver near the dome of the diaphragm. This area shows activity with an SUV of 4.1. This would raise the possibility of metastatic lesion in the dome of the liver.” My Onc has ordered an MRI of the liver for next Wednesday. He tried to reassure me by saying it would be highly unusual for NSCLC to metastasis to the liver this quickly while on a first line chemo treatment. He did say I have developed pleurisy of my right lung and that it was possible the PET picked up the inflammation of the right lung and diaphragm which would account for the relatively low SUVs. He is a pretty positive guy but this has me scared. I really thought I would beat this cancer in the first round. I’d appreciate hearing from other patients and caregivers who have experience with mets to the liver. What treatments were prescribed? Are there symptoms I should be looking for? Thanks. Quote Link to comment Share on other sites More sharing options...
Kasey Posted June 29, 2006 Share Posted June 29, 2006 Wow Tom...........sorry you feel down about now. I have no experience with liver mets, BUT (to borrow Don Wood's phrase) don't borrow trouble .................at least not yet. PETs have been know to give false positives ~ and more often than we would like to think. Wait for the results of the MRI. Until then, how about feeling a LITTLE good about the other results. Let us know ASAP what that MRI says, okay? In the meantime, I'll be pulling for ya! Kasey Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted June 29, 2006 Share Posted June 29, 2006 I don't have any experience with mets to the liver here, but many people here do and I'm sure they'll be giving you input. Just wanted to give you encouragement and know I'm rootin' for you. Praying, too. Joanie Quote Link to comment Share on other sites More sharing options...
Don Wood Posted June 29, 2006 Share Posted June 29, 2006 Tom, sorry the liver met spoiled all the good news you have. Lucie has a large lesion on her liver that the surgeon said was benign but the onc thinks is not. The surgeon did not remove it, much to the chagrin of my wife and her onc. It has not caused her trouble yet, but it has not shrunk either, with two different chemos. We are playing the waiting game right now, with the present chemo. She is scheduled for a scan next week. Then we will know. I am not convinced it is cancerous since it does not seem to have invaded the liver at this point. We will see. Sorry I can't really give you any advice on this. Don Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted June 29, 2006 Share Posted June 29, 2006 Tom sorry to hear about the set back, no experience with liver mets. Prayers for nothing but the best. Rich Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted June 30, 2006 Share Posted June 30, 2006 Tom, I agree with what your doctor's and Kasey said...it could be inflammation or something else. Praying for a "good" explanation. Otherwise, I have no experience with liver mets. But, I know from experience here on the board, it is beatable! Keep fighting!! Take care and keep us posted. Prayers for next week and for the waiting. Quote Link to comment Share on other sites More sharing options...
Welthy Posted June 30, 2006 Share Posted June 30, 2006 Tom, No experience with mets either, but wanted to tell you to hang in there buddy! Two steps forward, one step back seem to be the norm for this crummy disease, but please wait until all the tests are completed. (I know, I know, easier said than done! ) Sounds like you are in good hands. Keep us updated. Welthy Quote Link to comment Share on other sites More sharing options...
carolhg Posted June 30, 2006 Share Posted June 30, 2006 I remain positive with your doctor. Quote Link to comment Share on other sites More sharing options...
ztweb Posted June 30, 2006 Share Posted June 30, 2006 Tom, I have no experience with this, but wanted you to know that you are in my thoughts. Don't jump the gun here...besides, you will find many here who have mets to the liver, and they are doing just fine! Keep that chin up, and keep praying! I will! Jen Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted June 30, 2006 Share Posted June 30, 2006 Hi Tom. You just finished with your treatment. Don't go by the radiology report on this. Go with your oncologist. Things show up on the first PET after your treatment that are not cancerous. You have low SUV's. Put it out of your mind as best you can. I truly believe there is nothing there. I completely side with your onc. The CT scan will tell more accurately. I have been in your shoes, and I wish I would have had someone with as much sense as I have to calm me down! Hang in there, guy! Cindi o'h Quote Link to comment Share on other sites More sharing options...
shineladysue Posted June 30, 2006 Share Posted June 30, 2006 Just sending prayers your way. Hang in there, you are being a lot of good advice from folks that have had experience with these situations. God Bless, Sue Quote Link to comment Share on other sites More sharing options...
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