Sis Posted September 11, 2006 Share Posted September 11, 2006 Hello Everyone, I write once again with questions about my sister and her treatments. We recently had a scare about a CT result. Now we're hearing conflicting stories about her oncologist's observation vs. his partner's earlier observations. Our family is so confused and frightened. One day we panic, the next day we feel releif and hope. My sister and her husband are both very intelligent and well educated people. Somehow, when receiving information from the doctor, they sometimes can walk away with different interpretations (or confusing the facts relayed). I'm leaving on Thursday to visit them out West. Can anyone give me some suggestions on how to better communicate with their doc (without trying to sound like I'm butting in)? As always, I thank you all for sharing your wisdom. Sis Quote Link to comment Share on other sites More sharing options...
Kasey Posted September 11, 2006 Share Posted September 11, 2006 One thing that helped us tremendously was the use of a tape recorder. Be sure to inform the dr. ahead of time............if there is a concern on his/her part, well I would be concerned about the dr. There should be no objection to doing this. My husband is hearing impaiared and we were faced with the same problem as your sister, we came away with different takes on what had been said. The tape recorder solved it for us. Hope this helps. Kasey Quote Link to comment Share on other sites More sharing options...
RandyW Posted September 11, 2006 Share Posted September 11, 2006 My best advice is this. This is your sisters life here. Ask questions. It sounds like a sit down of all 5 people here. 2 Doctors, Sister and Husband, and yourself. If there are doubts about Diagnosis, Ask to see test results like scans. Treatment options, of course and anyhting else you want to know about. Sit Down with sis and husband before and let them know your thoughts about all this of course to avoid same questions for Doctors. If you and Sisters husband Do not advocate no one will. She is not Doctors only patient so you need to ask away. Quote Link to comment Share on other sites More sharing options...
MsC1210 Posted September 11, 2006 Share Posted September 11, 2006 Hi Sis, You have some wonderful advice here already. I will add that in addition to asking to SEE the test results, request copies and more importantly, if there is ANY doubt as to whether everyone understands what is being said, ask the Doctor to explain it in terms that are basic. And if it still is unclear, ask them to repeat it or write it down for you. Keeping you all in my thoughts and prayers, Chris Quote Link to comment Share on other sites More sharing options...
Darrell Posted September 12, 2006 Share Posted September 12, 2006 Some great advise already Sis. Run with it. Go out west and take care of business!!! Best of luck and I pray your trip is fruitful. Darrell Quote Link to comment Share on other sites More sharing options...
Sis Posted September 13, 2006 Author Share Posted September 13, 2006 Thank you for all the great ideas. I truly appreciate all your help. Will report results when I return. Thanks again everyone. Sis Quote Link to comment Share on other sites More sharing options...
gail Posted September 13, 2006 Share Posted September 13, 2006 So very glad to hear you are heading West. You will be so glad you went. I don't see that you need to worry about butting in. I know I wouldn't care if my sisters asked questions. find a computer out west annd let us know gail Quote Link to comment Share on other sites More sharing options...
MsC1210 Posted September 13, 2006 Share Posted September 13, 2006 Sis, Have a safe trip. We will be waiting to hear from you. Sending tons of prayers!! Chris Quote Link to comment Share on other sites More sharing options...
KatieB Posted September 18, 2006 Share Posted September 18, 2006 Hey sis, what I did on the 3 occasions I couldn't attend a dr. appt. I sent my dad along with a hand-held tape recorder. Between him and my mom, neither would remember everything or remember only their interpretation of what was really said and it just made send to get it on tape. Also, emotions are very high during office visits. It's scary! And the patients memory could be affected by medications. Perhaps you could bring this up to your sister as a means of getting all the info, so that it could reviewed later when they've had a chance to process and also as a means to compare with reports/treatments/scans. Keep us posted, and welcome to our support family. Quote Link to comment Share on other sites More sharing options...
ma's kid Posted September 18, 2006 Share Posted September 18, 2006 Sis, Many prayers for your sis and I am so glad you are heading west! You've gotten great advice. One of the things that I did with my mom was to get a small journal and write down every single question I/we had. Ditto to what Chris said about not being shy asking the doc to speak in layman's terms. Safe trip and please update as you can Libby Quote Link to comment Share on other sites More sharing options...
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