paperback Posted January 31, 2008 Share Posted January 31, 2008 My mom is undergoing surgery for her brain met tomorrow and go figure I can't sleep. She can't get over the statistics and feels like she's fighting a losing battle. So I wanted to give her some encouraging stories while she recoups and starts chemo. Has anyone gone into remission, survived an extended period or have any hopeful stories I can share with her? Quote Link to comment Share on other sites More sharing options...
recce101 Posted January 31, 2008 Share Posted January 31, 2008 Here's a post from a 5-year SCLC survivor which is a great example: http://lungevity.org/l_community/viewtopic.php?t=18395 I've seen posts from other long-term SCLC members, and some of them should respond before long. Good luck and Aloha, Ned Quote Link to comment Share on other sites More sharing options...
ztweb Posted January 31, 2008 Share Posted January 31, 2008 Paper, Check out my dad's story! It is one I LOVE to share...though we were lucky that dad's was not extensive. However, I do know that Don from Texas had a brain met (if I remember correctly) and did cyberknife. There is just SO MUCH hope out there. Give mom my prayers, Jen Quote Link to comment Share on other sites More sharing options...
Connie B Posted January 31, 2008 Share Posted January 31, 2008 There are TWO SIDES to Stats and there's NO REASON She can't be on the SURVIVING SIDE!! I know of long term SCLC Survivors. Two of them are in my Lung Cancer Support Group. One is an 8 year and the other is a 7 year. They are both doing VERY WELL and they are CANCER FREE TODAY!! DO NOT read the Stats. They only pull us down and the Stats are 5 to 7 years behind anyway. Quote Link to comment Share on other sites More sharing options...
dchurchi Posted January 31, 2008 Share Posted January 31, 2008 I think I replied to another post, but please read my husband's profile. Alan is a 3 year survivor of ext SCLC also with brain met. Quote Link to comment Share on other sites More sharing options...
paperback Posted January 31, 2008 Author Share Posted January 31, 2008 Thanks to everyone who responded so far. It just seems so crazy to me the way it spreads and spreads. I'm just in week three and nothing new has come up yet. The surgery went really well she is awake and attentive. They said they will do some targeted radiation after and start chemo in ten days. Is there just no chance at all that we remove the brain met do the chemo and the tumor shrinks? It seems like a constant battle. Quote Link to comment Share on other sites More sharing options...
recce101 Posted February 1, 2008 Share Posted February 1, 2008 Delighted that the surgery went well! Your mom is off to a good start, and now we can look for and expect shrinkage when she starts the chemo. But yes, it will seem like a constant battle, or as some of us prefer to say, the "new normal." Aloha, Ned Quote Link to comment Share on other sites More sharing options...
BettyBP Posted February 15, 2008 Share Posted February 15, 2008 Paperback - I was where you are almost one year ago and I can tell you that besides some fatigue and hair loss from the chemotherapy..My Mom has felt great for months now and has been on the go, go, go. I too researched up and down and felt hopeless until I found this and one other site that has survivors that helped me out. I have found talking to folks that have SCLC or Caregivers of patients my MOOD changed as well as the rest of my family. Please remember this can be beat.... My Mom goes in this afternoon to set up her radiation treatments to her lung and she is determined to beat this!! Stay positive and eat healthy. My Moms doctor said her diet from day one has played a big role in her not losing weight and feeling good throughout chemo and radiation...... Quote Link to comment Share on other sites More sharing options...
Cindy RN Posted April 17, 2008 Share Posted April 17, 2008 I am one of the ones Connie spoke of I think. I was diag in Feb 2001 and still going. It relapsed in 2003 but made it thru that bout too. Read the profile below. Tell her there some of us! Cindy Quote Link to comment Share on other sites More sharing options...
lc46 Posted April 17, 2008 Share Posted April 17, 2008 My Mom is going on 20 months since DX with Ext Small cell-mets to liver,adrenal, brain and is still going strong!! There are survivors and our Moms can be one of the 5% Dar Quote Link to comment Share on other sites More sharing options...
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