WendyG Posted April 4, 2008 Share Posted April 4, 2008 Hi- My name is Wendy and my mom (78) was diagnosed with ED-SCLC with liver mets in Feb'07. She has had 11 month's out of 13 of chemo. She started with the standard, Etop/Carb ended that course in June and her scan at the end of August showed everything back and greater than that which showed on her May scan. We were devastated. I didn't want her to go on the standard second line treatment of Topetecan, because when she took her break, she wasn't all clear of the cancer, although a great reduction was achieved. Knowing that now she would be at her stongest, we choose to go with a different first line treatment of Irinotecan/Carboplatin, because of the great results in the Japanese study. By the next Pet in Nov. she was NED. We were overjoyed. She just completed(yesterday) her final round. We will have the scan next week and pray this chemo cocktail has done it's job and rid her of every remaining cancer cell. She fought cancer off before 30 yrs ago, but has had to live without her voice box. Needless to say, She is one tough cookie. I too am from the LCA site. I am not upset, I believe that we are not websites, we are people, with this terrible disease..and certainly am not in competition with each other..we are connected to each other. That said, please vote for John Atkinson, 38, dx with Stage 4 NSLC at the Golf Digest site. WE ALL need to raise awareness any way we can. I came up with the idea to get 162,000 votes by the end of April to represent the estimated deaths from lung cancer this year. If John wins, he plays golf on June 15th, which will be televised by NBC for an hour before the US OPEN. The website is as follows and you can vote once a day everyday during April and it wouldn't be bad if you passed this along to your friends, I hope we can band together to get this to happen: http://www.golfdigest.com/magazine/usop ... _longvideo Quote Link to comment Share on other sites More sharing options...
Patti B Posted April 4, 2008 Share Posted April 4, 2008 Wendy- Welcome to the site. Glad you found us altho wish you had not had the need to. It does sound like your mom is a tough cookie!! Good for her!! So glad it seems like the chemo is working for her. Will send up a prayer for another GREAT scan for her. Please let us know the results. Hugs to both of you - Patti B. Quote Link to comment Share on other sites More sharing options...
Connie B Posted April 4, 2008 Share Posted April 4, 2008 Welcome to the site, and I hope your mom does well with her treatments. We are way ahead of you regarding the Golf Digest site and voting for John Atkinson. We have it posted in the Lung Cancer Events and everyone is voting and has been. Quote Link to comment Share on other sites More sharing options...
WendyG Posted April 4, 2008 Author Share Posted April 4, 2008 Patti and Connie- Thank you for your wishes and prayers for her next scan. The doctor is very encouraging and said yesterday that he expects good results. I pray for them. All this chemo has taken a toll on her, so we are praying for more than an 8 week break this time around. I didn't see the contest in the other category, so I hope I didn't offend anyone, I came up with the idea of 162,000 votes by April 30th, I just think that would make a statement and a goal. Thanks so much, Wendy Quote Link to comment Share on other sites More sharing options...
MsC1210 Posted April 4, 2008 Share Posted April 4, 2008 Hello Wendy and welcome I am glad you have joined us Christine Quote Link to comment Share on other sites More sharing options...
recce101 Posted April 4, 2008 Share Posted April 4, 2008 "WendyG" ...I didn't see the contest in the other category, so I hope I didn't offend anyone... No danger of that around here, Wendy, just a big welcome to the LCSC! I agree, your mom is one tough cookie, and you don't sound especially flimsy yourself. We could use more proactive advocates like you. Best wishes and Aloha, Ned Quote Link to comment Share on other sites More sharing options...
Ry Posted April 5, 2008 Share Posted April 5, 2008 Welcome to our board. I am glad you joined us. I hope your mom gets good news. Keep us posted on how she does. Rochelle Quote Link to comment Share on other sites More sharing options...
Wendy Posted April 5, 2008 Share Posted April 5, 2008 Hi Wendy! LC Awareness is always welcome here. We definetly can use all the help we can get. Thanks for posting the information on the golf vote, someone may have missed it and yours is another reminder of how we can help. I hope your moms scans come back clean next week. Keep us posted how she does. Wendy from MN Quote Link to comment Share on other sites More sharing options...
WendyG Posted April 5, 2008 Author Share Posted April 5, 2008 Hi all- Christine, Thank you for your kind welcome. Ned- Thank you, Ned,love your name!! Rochelle- Thank you for your well wishes and I will make sure I let you all know the results. And Wendy- Gotta love that name. Thank you for your well wishes on the scans too. I am glad that I didn't offend anyone as I find my way around. I will keep you posted on the results..Do I do that here or in the SCLC category? Thanks to all Wendy Quote Link to comment Share on other sites More sharing options...
RandyW Posted April 5, 2008 Share Posted April 5, 2008 you can share results in either good news or test time forums. EIther way we always love to hear great news!!! Prayers and Hugs! Quote Link to comment Share on other sites More sharing options...
ztweb Posted April 5, 2008 Share Posted April 5, 2008 Wendy, I am so glad you joined us, but I am so sorry that you needed to. Please know you have my prayers... Jen Quote Link to comment Share on other sites More sharing options...
StrahDawg Posted April 8, 2008 Share Posted April 8, 2008 Hi and welcome glad you joined. Quote Link to comment Share on other sites More sharing options...
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