karenwentzel Posted June 26, 2011 Share Posted June 26, 2011 Sorry I haven't posted any updates lately. I have been so tired lately that it's all I can do to log on and read the posts on GRACE and Lungevity. Here's the good news though. The reason I'm so tired is because while I am having daily WBR, I have gone back to work! I just finished my 2nd full week of work. I have been off chemo for a total of about 6 weeks now to do the WBR, and I feel so much better! I am still achy from all the bone mets, but I have been able to get by with Advil at work. I will have 4 weeks after next Tuesday to enjoy then will be rescanned. If there is any progression, I will start back on chemo (blah). I will take it though cause for now, it's my friend. I am growing some hair back!!! -Karen Quote Link to comment Share on other sites More sharing options...
RandyW Posted June 26, 2011 Share Posted June 26, 2011 what color cape are you wearing SuperWoman!!??? that sounds awesome for you!! take care and keep us updated!! Quote Link to comment Share on other sites More sharing options...
jaminkw Posted June 26, 2011 Share Posted June 26, 2011 Wow, Karen, you've been through it since Feb. And back to work! I really admire people who can work and do treatment. How is the WBR? People don't say much about it. The one who did in a group here in Key West scared me to death thinking of having it. Sounds like you are handling it well. Judy in KW Quote Link to comment Share on other sites More sharing options...
Annette Posted June 26, 2011 Share Posted June 26, 2011 Very glad to see you posting - and actually reminded me that Sara is now going through the WBR treatments too. From things she has said I think that she may be copying you - now we have two super women! Annette Quote Link to comment Share on other sites More sharing options...
paulette3 Posted June 26, 2011 Share Posted June 26, 2011 Karen, I'm so glad you're feeling better. And I hope you continue to improve. Wow! Back at work! You go girl! Paulette Quote Link to comment Share on other sites More sharing options...
Muriel Posted June 26, 2011 Share Posted June 26, 2011 Glad you are feeling better. And working, too! Wow. Keep us posted, PLEASE! Muriel Quote Link to comment Share on other sites More sharing options...
eric byrne Posted June 26, 2011 Share Posted June 26, 2011 Hi Karen, Good to hear from you again,you really are something special,going though treatments and continuing to work?I hope you are taking care not to overdo things.Sorry to hear you are going through this WBR,I am thinking and praying for you and Sara that the treatments you both are going through are 100% effective with minimal side effects. Quote Link to comment Share on other sites More sharing options...
karenwentzel Posted June 27, 2011 Author Share Posted June 27, 2011 Thanks everyone! The WBR has not been bad at all. I only am doing 14 treatments and will be done on Tuesday. My rad-onc says that usually the last week and a few weeks after is when the fatigue will hit. I have to say that the fatigue cannot be any where near as hard as with chemo. The worse part of WBR for me is the mask as I am claustrophobic. I just go to my happy place and before I can pray The Lord's Prayer 2 times, it's over! I see a bright light and taste/smell bleach during each treatment. I am told people report all kinds of wild stuff like this. -Karen Quote Link to comment Share on other sites More sharing options...
Bud Baker Posted June 27, 2011 Share Posted June 27, 2011 Wow, it sounds like you are doing a great job of hanging in there. I hope the fatigue doesn't get you down too badly afterwards, but if it does, there's nothing wrong with just taking it easy until you feel better. Glad you checked in. Quote Link to comment Share on other sites More sharing options...
Joppette Posted June 27, 2011 Share Posted June 27, 2011 Thanks for the update! I would struggle with the claustophobia too. But like you said, you close your eyes, say a comforting prayer, and God soothes the soul doesn't he? Good for you, you are amazing. Judy in MI Quote Link to comment Share on other sites More sharing options...
shineladysue Posted June 29, 2011 Share Posted June 29, 2011 Karen, good to know you are doing so well. Hope the fatigue won't get any worse and you will be able to continue working. Glad you are almost done treatments .. enjoy your break til scan time. Will be keeping you in my prayers. Hugs, Sue Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.