berisa Posted February 9, 2004 Share Posted February 9, 2004 Hi, my dad is going to meet another private oncologist for second opinion tomorrow and hope he could provide the best treatment advice to my dad, especially let us know there is some solutions for stopping the progression of disease. You know, for SCLC, as far as I know, no drugs such as IRESSA for NSCLC for SCLC patients. I hope he could bring us some good news and wise advices. Please do keep my dad in your prayers. Will keep you all updated. Quote Link to comment Share on other sites More sharing options...
lynn Posted February 9, 2004 Share Posted February 9, 2004 Berisa, I'm hoping right along with you... Lynn Quote Link to comment Share on other sites More sharing options...
Guest Jonathan Posted February 9, 2004 Share Posted February 9, 2004 Ask about taxol or CPT-11. Jonathan Quote Link to comment Share on other sites More sharing options...
paddy Posted February 9, 2004 Share Posted February 9, 2004 Lots of Prayers and Positive thoughts on the way to you and your Dad, Love, Paddy Quote Link to comment Share on other sites More sharing options...
ginnyde Posted February 9, 2004 Share Posted February 9, 2004 Hope the new docs come up with a great treatment plan. Ginny Quote Link to comment Share on other sites More sharing options...
Cindy RN Posted February 9, 2004 Share Posted February 9, 2004 Hope they have something. Let us know what they say-Love Cindy Quote Link to comment Share on other sites More sharing options...
Ry Posted February 9, 2004 Share Posted February 9, 2004 Good luck with the second opinion. Wishing you all the very best. Rochelle Quote Link to comment Share on other sites More sharing options...
MO_Sugar Posted February 9, 2004 Share Posted February 9, 2004 Prayers and good thoughts. God Bless, MO Quote Link to comment Share on other sites More sharing options...
SandyS Posted February 10, 2004 Share Posted February 10, 2004 Berisa - Praying for some answers for your dad........keep us posted..... Hugs and prayers, SandyS Quote Link to comment Share on other sites More sharing options...
pritchie Posted February 10, 2004 Share Posted February 10, 2004 Berisa, Prayers being said for your Dad. Pamela Quote Link to comment Share on other sites More sharing options...
berisa Posted February 10, 2004 Author Share Posted February 10, 2004 The private oncologist comments that there is no proven record that any drugs could help to stop progression of disease for SCLC. What we mentioned such as TM, Decitabine, Thalidomine, Gleevec etc. are not recommended by him and he thinks it is not worth to try by paying huge money. He totally agrees what our current oncologists treat my dad in the past as well as now. He commented craniotomy is the right choice for dad since the location of tumor is fatal and it may cause death. We asked whether surgery could be done on my dad case and he answered we could try but he would not suggest my dad to do because SCLC is too extensive that it doesn't make sense whenever there is mets to particular place then treated the mets by surgery. He said we should let dad to keep the current good quality of life so he agrees not to start 2nd line chemo immediately. What he suggests us to do is : have the brain MRI at end of March (check for every 2 months) and keep monitoring the lung tumor and the current metastatic lymph node. We asked him which 2nd line chemo is better between Topotecan and CPT-11. He said since my dad had brain mets previously so, Topotecan is better for dad coz there is some articles told Topotecan could reach the brain. But, Topotecan's side effects and the toxicity is more than CPT-11. In fact, what we got from this consultation is concluded as there is nothing wrong in previous treatments, no meds we should try currently, and surgery is not suggested, what chemo we should choose later as a second-line chemo. I can say, there is nothing that could help to stop the disease progression and interestingly, my dad felt very satisfied about this consultation and he thoughts even the consultation fee is double to previous two oncologists. Maybe just bcoz he doesn't want to have surgery and doesn't want to be "Lab rat" (what he described) for testing drugs and there is someone on his side. Quote Link to comment Share on other sites More sharing options...
Guest Karen C Posted February 11, 2004 Share Posted February 11, 2004 Berisa, very interesting. Your Dad's situation sounds so unusual. He is very brave and so are you. God Bless you and your family, Karen C. Quote Link to comment Share on other sites More sharing options...
gerbil runner Posted February 11, 2004 Share Posted February 11, 2004 Berisa - Keeping you and your father in my prayers. Quote Link to comment Share on other sites More sharing options...
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