11Amber11 Posted December 4, 2020 Share Posted December 4, 2020 Hello all, My name is Amber and I was diagnosed in October last year after “pulling a muscle” in my back. Turned out to be broken ribs caused by mets from Lung cancer (primary tumor in the R upper lobe with spreading to lymph nodes and bones such as the ribs, spine, pelvis, thighs, scapula). The neck of my left femur was almost eaten through so I had surgery the next week to put a rod in my thigh. No rehab!!! I realize I should have gotten rehab as i didn’t move enough after the surgery and lost so much of my range of motion and flexibility. (I’m certified in yoga and now I can’t hardly even lunge!) I got a second opinion and a referral to MDAnderson for a clinical trial of Poziotinib. I started it over Christmas last year ( i should have waited) and dealt with the side effects until Feb when a scan showed a lot of progression. It unfortunately didn’t work for me. I started carboplatin/alimta/keytruda in March and had several scares with fevers etc right when Covid was gearing up. Absolute insanity. A UTI and infected port later I changed oncologists for the third time (it was a crazy roller coaster of a ride with oncologists oct-may). Things finally settled down and I got on track with my maintenance infusions of Alimta & Keytruda. I started having severe flare ups of an arthritic nature and they became more and more frequent over the summer. I tried OT/PT but it just helped get around the pain. I saw a rheumatologist and was prescribed steroids which knocked out the inflammation and nerve pain (from arthritic symptoms from keytruda such as swollen joints). I felt like million dollars the first week or so. I was then given Methotrexate to build in my system as we started to decrease the steroid. I feel pretty good physically except after my Alimta infusion. It takes a few days to recover but it’s waaaaaay better than what I’ve previously gone through, So now I look at my life and sigh. I withdrew my kids from school as “distance learning” did not work for us. My husband hides in work and alcohol as he has always done and I’m trying to find the spiritual significance of all of this. I’m not Christian but live in a very conservative/Christian area. I’ve finally found counseling for the kids and myself but am struggling with the idea of staying with my husband. The life I have left I want to live for me. But that’s a big leap and I’m trying to find the courage to do it in the middle of this madness. Sorry, not a feel good uplifting post but it’s a nutshell of the last year. Thanks for reading and I’m happy to find a place for support and information. Have a great week:) Amber Link to comment Share on other sites More sharing options...
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