islandgirls Posted March 12, 2021 Share Posted March 12, 2021 Today was Boyfriend’s first infusion. He was diagnosed in the wee hours of the morning on February 1st, Stage IV NCSLC with brain nets. He has no actionable mutations, only HER2 and a PD-L1 expression of 0%. His suggested treatment is the Triplet. As mentioned in my other posts, it has been a battle in itself just to get him here. But I am grateful that he has chosen treatment. We have those of you here that have answered our questions in the past month to thank for giving him the information that helped him make that decision. I wanted to update all of you and will continue to do so. I have seen from my quest for information on how much experiential accounts help those of us who are new to all of this, do I am hoping my updates will help others to pay it forward. His daughter went with him today, so I will be seeing him tomorrow. So far he is just tired... which is another huge problem right now. He wakes every night around 1:30 AM and is awake until 5:00 AM or so. Tried melatonin, some OTC things and his oncologist gave him Ambien last weekend, which is not really working. Of course the dexamethasone he was/is taking for the brain mets (stopped that but now doing the few doses for the treatment) certainly contributes to his sleeping problems. Of course I fret about this, as sleep deprivation is serious for anyone, but especially him as he enters treatment. Any insight on that is appreciated. I will keep you posted... one day at a time! 💜 ChiMama, LouT, TJM and 1 other 4 Quote Link to comment Share on other sites More sharing options...
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