LA NYC Posted August 6, 2022 Share Posted August 6, 2022 Hi. I’ve been following this site and all of you for some time now and really find you to be such a wonderful community of supportive people. I’ve certainly learned a lot from your stories and admire your strength and care for one another. I am a 58 year old former smoker, active and fit, although I have been dealing with extreme fatigue for a long time now. I am normally a high energy person, so that’s a bit frustrating. In March 2021, a 13mm nodule was found (CT scan)in my upper right lung, alongside scarring which was found in both lung apices. A PET followed and only showed minimal uptake in SUV(1.7) there was also a very small punctuate calcified nodule in left lung that was of no concern. I was told that the nodule was most likely the result of scar tissue and fibroblasts and that I also had mild bronchiolectasis. Plan was to follow up with CT scans and watch. After a couple of CT scans over the past year, nodule remained “persistent” but did not grow. My doctor offered a blood test that finds circulating tumor proteins and gives a risk assessment on suspicion of malignancy. I went from a pretest probability of about 19% malignancy to a strongly positive test now stating almost 80% chance. That led me to a Needle biopsy, which I just had yesterday. I won’t get the results until next week, but the radiology asst. was pretty certain it was not cancer. He specializes in these biopsies and was pretty confident. I would like to know if anyone else has had a similar experience or had a “liquid biopsy” along with CT scans to make your diagnosis. If in fact this nodule is benign, does anyone know why I would have(as my Dr. Reported) a strongly positive amount of CTC’s in my blood? He said I was the first patient who had a positive result since he’s been using this test. Wishing all a happy weekend and good thoughts and wishes. Izzy, Justin1970 and LouT 3 Quote Link to comment Share on other sites More sharing options...
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