TamD Posted April 30, 2004 Share Posted April 30, 2004 Hi everyone. I have things to get off my chest and this is the place to do it. My mom has nsc with mets to brain. She has been going through chemo with a set back due to low platelet count. She went back a couple of weeks ago for her treatment and explained to her nurse that she has been very short of breath. They told her that she had fluid on her lungs and that is causing the shortness of breath, she could get it drained if she wanted to or if it got worse. So, after watching her struggle to even carry on a converstation I had enough and called her doctor to explain just how bad it is, and they said she should go get it drained. Well my mom was very afraid to get this done and it took her a day and a half to decide to go get it done. Yesterday we went to the local hospital (which is not were she goes to get chemo) and they ran a lot of tests. There was no fluid on her lungs. They did the c-scan two different ways and nothing showed. It did show that her tumor is cutting off the blood supply to her lung and is compressing her wind pipe. They said that they did not feel comfortable giving her any other advice as they are not her doctors and don't know her case. WHich I am fine with. We had a great experience at this hospital. So he suggested she go home,call her onc. and get her in. (She has a chemo appt this Thursday May 6) This doctor said do not wait until Thursday get in as soon as you can and get some answers to what is going on. She called when she got home and they said, we will see you Thursday. As I was not there I could not say, no get in sooner. So she said ok. I don't understand. Why did one doc say fluid the other said no. One said get in noe the other said you can wait. Who and what do I believe. My mom just goes along with what her doctor tells her and does not stand up for herself. If it were up to me we would go to another doctor and get another opinion. SHe is on a clinical trial and it worked for awhile and now her tumor is growing agian. I am just so frusterated and I wish she would stand up for herself and say this is what I want done. Thanks for letting me vent. I am going to try and talk to her tonight and see what she thinks. Tammy Quote Link to comment Share on other sites More sharing options...
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