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  1. Today
  2. Registration is now open for LUNGevity's 2020 International Lung Cancer Survivorship Conference! At this transformative weekend conference designed by and for people with lung cancer, you will: -Learn how to live well with lung cancer -Connect with other survivors and caregivers -Hear world-renowned researchers discuss the latest treatments -Learn how to manage your lung cancer experience Join us April 24-26 in Rockville, MD -> http://bit.ly/ilcsc2020
  3. Just wondering if there is anyone on this site who is taking part in the Amgen clinical trial for KRAS mutation G12C the drug is AMG 510
  4. Marie I’m happy to hear about your husband’s progress. It sounds like you are doing the right things so keep up the good work and you’ll find him recovering very nicely. Lou
  5. He’s been very active in the mornings the last couple of days, even doing some gardening and house cleaning, and then takes it easy in the afternoons and evenings. He tried just taking Aleve last night but didn’t sleep as well so he may need the Percocet for a couple more nights. Other than a bit of dull pain, numbness, and a bit of a cough, he is doing great! We will see the surgeon next on Monday and then follow up with the oncologist regarding next steps. His appetite seems to be coming back slowly but I bought him Boost (like Ensure, but better tasting I’m told) to drink if he’s not hungry.
  6. So glad all went well, MarieE. My husband had a pneumonectomy and I was amazed he was up and walking shortly after his surgery. Home is definitely the best place. Sending so much love and well wishes to you and your husband. we are all here for you! XX
  7. Yesterday
  8. Hosted by our very own @Tom Galli! Hear from lung cancer experts and learn about support programs and resources offered by LUNGevity Foundation and Cancer Support Community. Lunch will be provided. Speakers will include Dr. Thuy Le, medical oncologist; Dr. Brandon Hill, thoracic surgeon; and Dr. Wilhelm Lubbe, radiation oncologist. More information and registration here: https://lungevity.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=894
  9. When I heard this word used recently, twice, I thought it was one of my father's made-up words like "surgerize" and "confliction" risen from his memory to finally enter the world of Merriam-Webster. And so they have, sort of. Apparently, "maturation" is a word some doctors use to answer any and all questions asked by patients inquiring as to why something or other health-wise is happening to them. In short, "maturation" means wear and tear. If Mick Mulvaney were the doctor, he might have said: "It happens all the time. Get over it!" Fortunately, he wasn't. Rather, he is the acting White House Chief of Staff, a man who likewise may be asking his doctor a few questions. The answers to which will likely not be "maturation." "What were you thinking?" might be first and foremost. For a cancer patient (yours truly) who has survived above and beyond the call of his oncologist's original prognosis, "maturation" - to quote Boston Red Sox television announcer and Hall of Famer, Dennis Eckersley - "Is a beautiful thing." Diagnosed at age 54 and a half when all bodily functions were "performing within normal parameters" - to quote Commander Data from "Star Trek: Next Generation" - thinking I'd outlive my original prognosis from late February, 2009, and have senior-type moments 10-plus years later, was unrealistic, if I were to interpret my oncologist's rather grim demeanor. Yet here I am, Medicare card in wallet and still writing cancer columns as if cancer was only an astrological sign rather than the dreaded and feared disease, that it is. However, having cancer doesn't mean that I don't experience similar aches and pains as the rest of you. It simply means "Other than that, Mrs. Lincoln, how was the play?" A sarcastic reference to the fact that other things are still occurring, despite the obvious. Cancer doesn't preclude other older age medical realities from rearing their predictable ugly head: gray hair, bone loss, muscle weakness, memory loss, to name a few; it just complicates them and, in so doing, confuses you. It complicates them by ignoring them for fear that they are cancer-related and thus life-threatening and visiting a doctor would merely confirm your worst fear: dying/death, an upside down version of what you don't know not hurting you. And by neglecting to see a doctor, the symptoms (for me, it was a pain in my upper left arm/shoulder which turned out to be a rotator cuff problem) become worse and more severe than otherwise would have become if you simply went to the doctor in the first place, and you end up suffering needlessly because it's actually not cancer, it's "maturation.'' So you're confused like "Bob's Big Boy" used to be: You don't know whether to stay or go. When you're diagnosed with a "terminal" disease," you want to live, but it's extremely difficult not to think about dying. It dominates your brain and preoccupies your mind. Old age and living a full retirement become signposts in the distance that you can never quite read. And since you can never quite read them, you're not really prepared for what they say. Some of what they say or infer is that you're going to be visiting doctors more regularly than you ever have, and it's not necessarily all bad. It's merely a sign of your times which are now changing and you're living beyond a certain age, unexpected as it may have initially been suggested. As such, maintenance will be required to keep the older body and brain functioning. Ignoring symptoms, as my doctors have made clear to me, is NOT GOOD. Neither is assuming that such and such or so and so is good, bad or indifferent. It is what it is and It may be something or it may be nothing. Presuming facts and feelings which are not yet in evidence is a bit like putting the cart in front of the horse. I know I'm afraid of dying. What these more recent pains and subsequent visits to the doctors have also shown me is that I can't be afraid of living.
  10. Survivors and Care Givers, For Texans and anyone proximate to the Dallas--Fort Worth area, I'm hosting my first Lunch and Learn on Saturday, November 9th in Plano Texas. Here are the registration details. I'd love to meet all of you in person so if your schedule allows, come on down to Plano all you all! Stay the course. Tom
  11. How do you juggle jobs and caring for your loved one? Do you have any tips you can share?
  12. When my (90 year old) Mom was diagnosed we stage IV lung cancer in April, my daughter & fiancé decided to get married on 10/19/19 in hopes my Mom would be there. My mom decided then that she would give chemo a try so she would be at the wedding and at the wedding she was! She was amazing throughout all the weekend festivities staying until the very end of each event. I and her grandson walked her proudly down the isle to our seats in front, tears flowing. But the absolute topping on the cake was the last song at the wedding reception was “I had the time of my of life”, she got up and was dancing and all the guests circled around she and her dancing partner and cheered. It was the perfect ending to what was a perfect day.
  13. Katum - I am happy to hear that you and your mom are making the most of your time together - even if it's in the hospital. Take care, Steff
  14. RonH A belated heartfelt thank you for Isabelle49 sharing on Durvalumab forum......Elizabeth and I did some PM as we both live in the same area, are familiar with the medical community and most importantly, discussed her grand daughters upcoming wedding on November 9th. Take Care, DFK
  15. Katum, So very sorry that your mom’s symptoms have not eased, but glad she is eating and enjoying the Astros pennant run. I do hope the WBRT takes hold quickly. Short term memory loss is a typical side effect. Stay the course. Tom
  16. Last week
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  18. Everything in the last month seems to be happening at light speed. My husband's cancerous lung mass first was found as an incidental finding on a CT scan taking for another purpose. That was followed by a PET scan and biopsy (confirmed squamous cell lung carcinoma), MRI of the brain, bone scan, and breathing function tests. We consulted locally with an oncologist, a radiation oncologist and a thoracic surgeon. The mass is just under 5 cm. At this point they don't believe it has spread. My husband is very active and has no symptoms whatsoever although he complains of some minor discomfort since the biopsy. All of the doctors consulted and agreed that a lobectomy was the best route since the the tumor is right up against the heart in the upper left lobe. We quickly scheduled surgery but then started having second thoughts and want to be sure we've done all our homework first. We are reading about proton radiation and also considering traveling to one of the large cancer centers for a second opinion. My husband is concerned about the long recovery with surgery (he's not a good patient). I've started going through all of the information on this site and am finding it helpful, but a bit overwhelming - like everything else about this. ETA: I guess in a way we're fortunate it was found. If it had not been an incidental finding on that first CT scan, he may never have received any screening since he never smoked and there was no history in his family.
  19. Hi everyone! It’s been a little while since I’ve posted about my mom but she hasn’t really been doing too well. She has been on chemotherapy (no immunotherapy) since March with no “progression” of the tumors in her lungs, but the brain Mets did increase so she recently underwent more targeted brain radiation to get rid of those. We have been trying to get her into a clinical trial, but so far she hasn’t qualified because the cancer in the lungs hasn’t significantly progressed. She has been having an absolute terrible time lately though with severe coughing and chest pain. She honestly can’t get through an entire sentence now without violently coughing up mucus/liquid/blood. We have tried everything for the coughing - she has had pleural effusion in the left lung in the past, has had it drained, then had a pleurodesis. She had pleural effusion in the right lung a few months ago and had it drained, but there wasn’t much there and that didn’t help. Her oncologist says he has no idea what’s causing the coughing and severe chest pain since chest x rays aren’t showing much fluid so basically she has just been trying to deal with it for the last few months. We have finally got an appointment at MD Anderson in 2 weeks to discuss the possibility of a clinical trial, so I’m really hoping she qualifies this time. I guess my question is, has anybody had terrible coughing and chest pain while on chemotherapy but have it go away or get better once starting a clinical trial? I’m getting extremely worried that maybe the chemo has damaged her lungs or airway and that’s whats causing her symptoms and she will have to live with this for the rest of her life even when she isnt taking chemo. She’s just so miserable right now and I can tell that she is starting to give up hope which isn’t good. She was so positive in the beginning and this has really taken a toll on her both physically and mentally. She’s just in so much pain and the pain medication her oncologist is giving her isn’t helping. We’re all holding out hope that she will qualify for a trial and her symptoms will begin to get better because I don’t think she will agree to do anymore chemo if she doesn’t qualify. I’m just really hoping someone might have some experience with this? Thank you all so much!!
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