Jump to content

RuthieThomas

Members
  • Content Count

    34
  • Joined

  • Last visited

  • Days Won

    13

Reputation Activity

  1. Like
    RuthieThomas reacted to KatieB in HAPPY BIRTHDAY TOM   
  2. Like
    RuthieThomas got a reaction from Beth 506 in Survivor / Advocate Conga-Line !   
    I just celebrated my 1 year "cancervesary" on Aug. 24; 1 year since my diagnosis of stage IIIb inoperable adenocarcinoma!  Yay me! So glad you guys are here (and I am, too)!
    This is the one and only time this pic will see the light of day...me in my wig! Every time I tried to wear it, my family would talk me out of it...they swear they liked the bald look better! 
    Ruthie

  3. Like
    RuthieThomas reacted to Susan Cornett in Scanziety: A Retrospection of a Lung Cancer Survivor   
    This book is a must read!!  I finished "Scanziety: A Retrospection of a Lung Cancer Survivor" over the weekend.  I highly recommend this book for patients, caregivers and friends of patients.  I don't think that most people understand what our bodies go through during treatment, and Tom certainly had a tough time.  I think the book also helps people understand that, while cancer patients do have a cloud of uncertainty that will follow us the rest of our days, we should live each of those days to the fullest.   I enjoyed this book and I enjoy Tom's comments and support in this forum.  His success story gave me hope when I had mentally started to give in to the dark place.
    Thank you, Tom.
  4. Like
    RuthieThomas got a reaction from KatieB in Survivor / Advocate Conga-Line !   
    I just celebrated my 1 year "cancervesary" on Aug. 24; 1 year since my diagnosis of stage IIIb inoperable adenocarcinoma!  Yay me! So glad you guys are here (and I am, too)!
    This is the one and only time this pic will see the light of day...me in my wig! Every time I tried to wear it, my family would talk me out of it...they swear they liked the bald look better! 
    Ruthie

  5. Like
    RuthieThomas reacted to Susan Cornett in Just need to clear my head...   
    Good morning!  I am always lifted by the good news and positive outcomes on this site so I'm here to share mine.  Last week's pet scan is clear.  We reset the clock and do this all again in 90 days.  
    Tom - I wanted to clarify my comment about my staging. Oncologist didn't change my staging because he later found mets; they didn't know it was there at the initial staging.  I was diagnosed after surgery as IIIa, before the team knew about the metastisis to my thyroid.  Had they known about that, they would have staged my cancer as IV.  So, for statistical purposes, oncologist considers me a IV.  He told me yesterday, though, that there weren't really any statistics to evaluate my case because it was unusual - mets to the thyroid is so rare and it was a distant mets site and tumors were removed at both the primary and mets sites.  He said my 5 year number is 30 to 40%.  I laughed and told him his numbers mean nothing to me - and he agrees - because I've already skewed the stats with the thyroid issue.
    I'm looking forward to walking in the Breathe Deep DFW event and have hopefully inspired my family and friends to dip into their wallets.  
  6. Like
    RuthieThomas got a reaction from LaurenH in Happy Birthday   
    Hi Donna!
    Sorry this is so late, but I check in so erratically that I miss a lot! Happy, happy belated birthday! My perspective on getting older has certainly changed since my diagnosis...congratulations on one more year of life!
    You are an inspiration to me.
    Ruthie
  7. Like
    RuthieThomas got a reaction from Monica7 in Survivor / Advocate Conga-Line !   
    I just celebrated my 1 year "cancervesary" on Aug. 24; 1 year since my diagnosis of stage IIIb inoperable adenocarcinoma!  Yay me! So glad you guys are here (and I am, too)!
    This is the one and only time this pic will see the light of day...me in my wig! Every time I tried to wear it, my family would talk me out of it...they swear they liked the bald look better! 
    Ruthie

  8. Like
    RuthieThomas got a reaction from LaurenH in Survivor / Advocate Conga-Line !   
    I just celebrated my 1 year "cancervesary" on Aug. 24; 1 year since my diagnosis of stage IIIb inoperable adenocarcinoma!  Yay me! So glad you guys are here (and I am, too)!
    This is the one and only time this pic will see the light of day...me in my wig! Every time I tried to wear it, my family would talk me out of it...they swear they liked the bald look better! 
    Ruthie

  9. Like
    RuthieThomas reacted to LaurenH in Survivor / Advocate Conga-Line !   
    I have been an advocate since September 2011, when my uncle was diagnosed with Stage IV lc. I joined LUNGevity as a volunteer event coordinator in 2012 and became a full-time staff member in 2014. I am grateful to interact every day with other people who are dedicated to and passionate about helping to spread awareness and get lung cancer research the investment it deserves.
    This is a photo of me and my uncle the day I got the job offer from LUNGevity. This fall, we will celebrate 5 years of survivorship!
    Lauren
    --
    Digital Community Manager
    LUNGevity Foundation
     

  10. Like
    RuthieThomas reacted to KatieB in Survivor / Advocate Conga-Line !   
    Oh-ay-Oh-ay!  Oh-ay-OOhOO-AH!
    I'm copying something that I saw posted on another one of our social media platforms.  
    Survivor Conga line!  (Insert Gloria Esteban singing: Come on baby shake your body do the conga!)
     
    Tell us how long You have been living, loving and laughing since you were diagnosed!  OR since you became a lung cancer caregiver/advocate (everyone can play)
    I'll start...
    I became a lung cancer caregiver and advocate September 13, 2002 (14 yrs ago-went to work for LUNGevity in 2010) and I am a 21 year cervical cancer survivor and 2 year genetic liver disease (stage 4) survivor.  
    (photo optional! HA!)
    Now you!
     

  11. Like
    RuthieThomas reacted to juke011 in Newbie Here   
    Ruthie...thank you so much for your kind words. I could never explain how difficult this is for me. I'm so glad to hear you made it through your treatment. Your story gives me hope that this "new normal" for my mom will pass. I need to look into palliative care. I need help managing her pain. Her life consists of sleeping, eating and taking pain medicine. It's so horrible to watch. She, like everyone else with cancer, deserves so much more! Thank you for keeping us in your prayer and you will be in mine. ~Stacy


    Sent from my iPhone using Tapatalk
  12. Like
    RuthieThomas got a reaction from AZhikeryogirunner in Hello from Arizona~ new member   
    Hi Yovana!
    I am also a newbie to this community, although I was diagnosed one year ago today. I'm not normally a "joiner" & hadn't explored the support groups offered locally, but have found much information, understanding & support from the wonderful group of people  here who are ready, willing & able to help in any way they can.
    Glad that your cancer was found when it was and you were able to have the VATS procedure; everything sounds great! Take care of yourself and please keep posting! Wishing you all the best.
    Ruthie
  13. Like
    RuthieThomas reacted to randii in My loved one has lung cancer   
    Hello,
    I'm very sorry for the late reply. However, I've been a bit busy lately. 
    We're doing great! He finally got the finances to start his treatment and he's not in pain as much as he used to be. And I feel like him and I were able to connect on a whole new level which was great for the both of us. Things are looking good and I hope it only gets better. 
  14. Like
    RuthieThomas got a reaction from KatieB in Announcement: Our Very Own Tom G !   
    I always love reading what Tom has to say...have already pre-ordered his book & looking forward to reading it!
  15. Like
    RuthieThomas got a reaction from LaurenH in Announcement: Our Very Own Tom G !   
    I always love reading what Tom has to say...have already pre-ordered his book & looking forward to reading it!
  16. Like
    RuthieThomas got a reaction from Tom Galli in Announcement: Our Very Own Tom G !   
    I always love reading what Tom has to say...have already pre-ordered his book & looking forward to reading it!
  17. Like
    RuthieThomas reacted to KatieB in Announcement: Our Very Own Tom G !   
    I was just made aware that LUNGevity volunteer LCSC message board moderator and lc survivor Tom Galli's book will be on Amazon and Kindle stores Sept 1!
    I look forward to reading it!
    "When people with lung cancer learn I’m a late-stage diagnosed 12-year survivor, they often ask what I did to survive. There is no answer for what, but I offer instead an answer of why I survived. The term of life during and after treatment varies for each of us but if we choose treatment, then we choose life. The important question then becomes what to do with the life treatment provides. This is the reason I wrote Scanziety. If I can live, so can you.”

  18. Like
    RuthieThomas reacted to Tom Galli in Not Sure Which Way to Go   
    John,
    In my long survival tenure, I've often examined my initial treatment decision in terms of your suggestion, avoid treatment and go to Vegas.  I won't to into details  but you can read about them on September 1st on the Amazon Kindle Store.  My book Scanziety publishes (shameless commerce message).  
    Here is my evolved thinking on treatment and life.  I now believe that if one chooses treatment, one is choosing life.  That choice implies a decision to do something with the life we are granted.  None of us, cancer survivors or not, know how much time we have.  Some cancer survivors get a prediction but it is only a prediction and in my case in turned out to be an irrelevant prediction.  But, this is an evolved philosophy, looking retrospectively.  It is not the way I behaved or thought during treatment.
    My treatment was a mayhem.  I completely forgot about the purpose of treatment and got mired in frustration, pain, despondence, and depression.  I know of many cancer patients who trudge that same path.  I lived through it and because I did, I can suggest to folks that cancer treatment does not need to upend your life.  I've watched some who took that advice enjoy life during treatment and enjoy it after.  As your Vegas analogy suggests, joy in living is the objective. 
    A take away for you, having read my treatment experience, is how to avoid it.  Early find, easy treatment, high survival prognosis are the opportunities for you.  I'd find it, fix it and finish it.
    The support network is hard but here at LUNGevity, we can match you up with a survivor who you can talk to and who understands what you are feeling.  If you are diagnosed with cancer, let me know if you want a in-person support resource.  I can make that happen.  Moreover, there are numerous cancer support group meetings and I've attended many.  I even went to a wedding of two survivors who found each other at a support group.  There are support network solutions.
    Stay the course.
    Tom
  19. Like
    RuthieThomas reacted to Tom Galli in Has Anyone Used/Combined Holistic Methods with Conventional?   
    John,
    With respect, I disagree.  I've heard and read about people trying to sell "non-conventional", "holistic methods" and the like in my 12 years of surviving this nastiness. I know people who died because they believed enough to try the non conventional.  Re-reading all your posts, it appears you are positioning yourself to peddle unproven methods using this site as a sales platform.
    You are saying: "I know for a fact that certain fasts" (classic scam statement), citing "Dr. Valter Longo" (not a medical doctor but a PhD genetics researcher with interest in aging and has two preliminary studies on fasting that he admits are not conclusive) and the "Rife Frequency Generator"(doesn't even work when plugged in) as curative measures.  I'll be frank.  Are you trying to get purchase on this site to offer "non-conventional" or "holistic methods" as a viable means for effective treatment of lung cancer? 
    I'm flagging your posts and bringing them to the attention of senior LUNGevity management for review.
    Tom
  20. Like
    RuthieThomas got a reaction from LaurenH in Boundary Enforcement?   
    Meloni,
    First of all, congrats on the completion of your surgery!  I wanted to address to "boundaries" issue with you. It sounds as if you are one of those people who puts others needs before your own, which can be a beautiful thing, but I feel that there are times when you and your wishes should come first & in my opinion, this is one of those times.
    I hope you can get through to your MIL that, although you appreciate her offer, that chemo is easier for you to get through when you're alone. I was that way...I always had a great nap & didn't want anyone there who I felt I had to "entertain"! Perhaps you could suggest that your MIL help in a different way (grocery shop, cook dinner, clean your bathroom), to be helpful, although, forgive me for being blunt, it sounds as if she wants to make herself feel better first & you come in second. By all means, tell your husband that you would rather not have MIL with you during chemo; he needs to back you up on this. 
    You have a big enough battle against cancer without also having to battle "helpful" family members also. If MIL gets mad, she'll get over it. Please don't take on her problem & feel any guilt whatsoever...if one of you has to feel upset right now, bettter it be her than you!
    As far as the teenager; good luck! I know they can be pretty self-absorbed.If no one else is putting Meloni first right now, then you need to. Please take care of yourself and hang in there! I hope I've not offended you with my bluntness, I tried to be diplomatic, lol!
    Ruthie
     
     
  21. Like
    RuthieThomas got a reaction from Tom Galli in Boundary Enforcement?   
    Meloni,
    First of all, congrats on the completion of your surgery!  I wanted to address to "boundaries" issue with you. It sounds as if you are one of those people who puts others needs before your own, which can be a beautiful thing, but I feel that there are times when you and your wishes should come first & in my opinion, this is one of those times.
    I hope you can get through to your MIL that, although you appreciate her offer, that chemo is easier for you to get through when you're alone. I was that way...I always had a great nap & didn't want anyone there who I felt I had to "entertain"! Perhaps you could suggest that your MIL help in a different way (grocery shop, cook dinner, clean your bathroom), to be helpful, although, forgive me for being blunt, it sounds as if she wants to make herself feel better first & you come in second. By all means, tell your husband that you would rather not have MIL with you during chemo; he needs to back you up on this. 
    You have a big enough battle against cancer without also having to battle "helpful" family members also. If MIL gets mad, she'll get over it. Please don't take on her problem & feel any guilt whatsoever...if one of you has to feel upset right now, bettter it be her than you!
    As far as the teenager; good luck! I know they can be pretty self-absorbed.If no one else is putting Meloni first right now, then you need to. Please take care of yourself and hang in there! I hope I've not offended you with my bluntness, I tried to be diplomatic, lol!
    Ruthie
     
     
  22. Like
    RuthieThomas reacted to Susan Cornett in Waiting for CTs and results!   
    Got my CT results - and a high five from my oncologist - yesterday.  There are "no areas of concern" in my first post-chemo CT.  He'll scan me every 3-4 months for the next two years and then a little less frequently after that.  I still have the small issue with my thyroid to deal with but both the ENT and the oncologist said it is highly unlikely that, if it is cancer, that it is metastatic lung cancer.
     
    Reading all of the survivor stories on this site have really buoyed my spirits.  Thank you for your kind words and support!
  23. Like
    RuthieThomas got a reaction from KatieB in Scan results - POST HERE!   
    LaurenH;
     
    Thanks! I'm sure we'll enjoy this summer of freedom.
     
    Ruthie
  24. Like
    RuthieThomas got a reaction from josie1961 in Scan results - POST HERE!   
    Great news yesterday re: CT scan. Following a scare last month on my routine scan which showed that my lung had collapsed again (which bought me another bronchoscopy & biopsy, which were good), my scan done on Monday revealed absolutely no abnormalities plus my lung is almost entirely re-inflated! Three months of freedom!  Yay!!!
  25. Like
    RuthieThomas reacted to Juliecroe in Glad to find you   
    Ruthie. As a newly diagnosed stage 4 just starting the process I find you inspirational. Love your spirit. Praying for you today.
    Julie Roe
×
×
  • Create New...