Robert Macaulay

I didn't get no durva gift basket! Man Bob you get all the goodies! 😁
I haven't gotten a rash or even itching all that much. I did notice my skin is extremely dry though. Back spasms have stopped and now it's just sore muscles...I can handle soreness just not that spasming crap!
My doc said I get a pet scan next month. Tis the season to get pet scanned...fa la la lala....🎄🎅

Just received a box delivered by Fed Ex from the makers of  durvalumab  thought at first it was my drugs for tomorrows infusion as the doctor yesterday was saying she is the one giving approval now. It was a thank you gift with no expense spared, Water bottle. cream for itching, Calendar to mark any problems that might arise and nice red back to carry all that in with there logo very prominent. Oh well beggars cannot be choosers.
Funny thing while getting my last infusion there was woman in the chair next to me and kept looking over and was reading a magazine i could not talk as my right hand had the drip in .Shen then says to me you look like Robert De Niro and then called the two nurses over to reveal her great discovery and they agreed. I just shook my head and smiled. 
Never a dull moment
Bob
 

Bob
I also had put on weight between stress eating and not being as active so my weight is fine right now. 

I went up to 208 pounds prior to my treatment in March this year on purpose. During the treatment stayed at 200 pounds.The last two full doses of chemo in July i lost all my hair and dropped to 172 pounds. Now steady at the 200 pounds mark since late August when starting durvalumab and decided to keep my hair short less grey hairs that way lol.

I went up to 208 pounds prior to my treatment in March this year on purpose. During the treatment stayed at 200 pounds.The last two full doses of chemo in July i lost all my hair and dropped to 172 pounds. Now steady at the 200 pounds mark since late August when starting durvalumab and decided to keep my hair short less grey hairs that way lol.

Watch the weight gain.  It was fluid build up for me, Pleural Efusion.  Mine was more rapid then a pound every two weeks though.

Update....saw the doc today. Asked if this muscle pain spasm stuff was likely related to the durva. She said she really didn't know. Could be durva or could just be an injured muscle or rib. She asked me if I wanted to stop treatments. I said no! LOL It looks to me like the durva may be helping to shrink the tumor so I'd rather just continue treatments and see if this muscle stuff goes away or continues. I asked if it comes back bad again, can we try a steroid and does she think it might help? She said absolutely. Soo...game plan in place at least!
Now that I've been wrapping my ribs, it's really eased up. I can move. And sleep. I'm good for now. 
I've noticed that every 2 weeks at my checkups, I've been gaining a pound! What if durva actually makes me fat!!?? Wouldn't THAT be a hoot!? 😆
 

Sorry to hear that you could try Ibuprofen extra strength works for me.

Hi All
Just got back from Victoria and my temperature light came on one hour into the drive lucky there was gas station nearby as the temp gauge stayed steady topped the bottle up and hoped for the best and that solved the problem the rest of the way down and all the way home.
Seen the Doc and her resident assistant and the were very pleased with the Ct scan as it showed no progression and the tumour shows slight decrease since the last scan in July, She also said my lung were still bit inflamed but that is from the radiation and is normal. Both were very pleased with my condition and blood work i only now see the doctor once month during infusions instead of bi-weekly. She has scheduled another Ct scan in three months time and told me not to bother coming down to the clinic as she will call me at home with the results.
One thing the resident doctor mentioned i thought was intresting this drug works for a very long time after your finished the treatment.On infusion number six this week and no side effects at all but he said the can come at any time so onward to the six month mark which is piece cake compared to a full dose of chemo. lol
Bob

Great news Bob! Hoping it continues to go smoothly!!
 
Ro

Hi All
Just got back from Victoria and my temperature light came on one hour into the drive lucky there was gas station nearby as the temp gauge stayed steady topped the bottle up and hoped for the best and that solved the problem the rest of the way down and all the way home.
Seen the Doc and her resident assistant and the were very pleased with the Ct scan as it showed no progression and the tumour shows slight decrease since the last scan in July, She also said my lung were still bit inflamed but that is from the radiation and is normal. Both were very pleased with my condition and blood work i only now see the doctor once month during infusions instead of bi-weekly. She has scheduled another Ct scan in three months time and told me not to bother coming down to the clinic as she will call me at home with the results.
One thing the resident doctor mentioned i thought was intresting this drug works for a very long time after your finished the treatment.On infusion number six this week and no side effects at all but he said the can come at any time so onward to the six month mark which is piece cake compared to a full dose of chemo. lol
Bob

So someone posted this link on another thread.
https://www.inspire.com/groups/american-lung-association-lung-cancer-survivors/discussion/duravalumab-imfinzi-patients-support-group/
I just browsed through it to see what side effects they were having.  At least now I'm not AS worried about my back spasms/pains...looks like it's happened to others too! 😝

Hurray Bob! I'm so happy it's agreeing with you! 😁 

yay for Bob and durvalumab!

Great news!

Hi All
Just got back from Victoria and my temperature light came on one hour into the drive lucky there was gas station nearby as the temp gauge stayed steady topped the bottle up and hoped for the best and that solved the problem the rest of the way down and all the way home.
Seen the Doc and her resident assistant and the were very pleased with the Ct scan as it showed no progression and the tumour shows slight decrease since the last scan in July, She also said my lung were still bit inflamed but that is from the radiation and is normal. Both were very pleased with my condition and blood work i only now see the doctor once month during infusions instead of bi-weekly. She has scheduled another Ct scan in three months time and told me not to bother coming down to the clinic as she will call me at home with the results.
One thing the resident doctor mentioned i thought was intresting this drug works for a very long time after your finished the treatment.On infusion number six this week and no side effects at all but he said the can come at any time so onward to the six month mark which is piece cake compared to a full dose of chemo. lol
Bob

Hi All
Just got back from Victoria and my temperature light came on one hour into the drive lucky there was gas station nearby as the temp gauge stayed steady topped the bottle up and hoped for the best and that solved the problem the rest of the way down and all the way home.
Seen the Doc and her resident assistant and the were very pleased with the Ct scan as it showed no progression and the tumour shows slight decrease since the last scan in July, She also said my lung were still bit inflamed but that is from the radiation and is normal. Both were very pleased with my condition and blood work i only now see the doctor once month during infusions instead of bi-weekly. She has scheduled another Ct scan in three months time and told me not to bother coming down to the clinic as she will call me at home with the results.
One thing the resident doctor mentioned i thought was intresting this drug works for a very long time after your finished the treatment.On infusion number six this week and no side effects at all but he said the can come at any time so onward to the six month mark which is piece cake compared to a full dose of chemo. lol
Bob

Hi All
Just got back from Victoria and my temperature light came on one hour into the drive lucky there was gas station nearby as the temp gauge stayed steady topped the bottle up and hoped for the best and that solved the problem the rest of the way down and all the way home.
Seen the Doc and her resident assistant and the were very pleased with the Ct scan as it showed no progression and the tumour shows slight decrease since the last scan in July, She also said my lung were still bit inflamed but that is from the radiation and is normal. Both were very pleased with my condition and blood work i only now see the doctor once month during infusions instead of bi-weekly. She has scheduled another Ct scan in three months time and told me not to bother coming down to the clinic as she will call me at home with the results.
One thing the resident doctor mentioned i thought was intresting this drug works for a very long time after your finished the treatment.On infusion number six this week and no side effects at all but he said the can come at any time so onward to the six month mark which is piece cake compared to a full dose of chemo. lol
Bob

Kleo
My bet is this time next week you can stop looking but maybe still scratchin. If you can avoid the cough and mine is very slight not even a concern to the doctor and your still good to Go, Your are on your way  for the four infusion blue ribbon 😉
 

Ok now y'all got me scratchin and lookin for rashes. 🤨

Opal-
Scans are your friend.  That is the only way to see how things are going.   I have had many scans PETs and CTs.  Also MRI. Sometimes there are discoveries and you make adjustments.  Think positive!

Robert- 
I pray that you get good results from your CT.  I wanted the Durvalumab to work for me.   Based on the technical data it works well for a lot of people. 

Thanks Eagle13
I have no illusions and very glad to be receiving this treatment and if it is not working I am sure they will find something for me to try. lol 

Thanks Eagle13
I have no illusions and very glad to be receiving this treatment and if it is not working I am sure they will find something for me to try. lol 

Thanks Eagle13
I have no illusions and very glad to be receiving this treatment and if it is not working I am sure they will find something for me to try. lol