Barb1260

PET SCAN-impression - no hyper metabolic activity in neck , chest, abdomen or pelvis nor skeletal. What does this note mean-The region of pulmonary consolidation upper right lobe minimal SUV of 2.0. This is the location of the original tumor. So I guess it’s not dead? It’s confusing that it says both. It also doesn’t give a measurement 

Michelle I’m doing the retail therapy happy dance today 

Hey Roseann. I’ve had nodules mentioned on a scan, not on the next and back on the 3rd. Not sure how they pick and choose what’s mentioned. I think they should mention every little thing. Thanks for the vibes. Still waiting....

Michelle I’m doing the retail therapy happy dance today 

Rosann,  Just finished my latest round of retail therapy--- Lands End was having a 60% off sale..... 

Hi Barb,
Thank you LexiCat and Barb, that helps a LOT, however, I am on my way still to some much needed reatil therapy, the waiting for the results has done fried my brain, So off I go 😃
 

That sucker sounds dead to me!  The low SUV is most likely inflammation and scarring from the radiation you had.  Your doc hit it with a motherload of radiation, so there's always some scarring as a result.  I think you can start walking on sunshine!  

PET SCAN-impression - no hyper metabolic activity in neck , chest, abdomen or pelvis nor skeletal. What does this note mean-The region of pulmonary consolidation upper right lobe minimal SUV of 2.0. This is the location of the original tumor. So I guess it’s not dead? It’s confusing that it says both. It also doesn’t give a measurement 

Speaking of  CT scan ,it is common to have different pictures when CT scans are taken on 2 different machines. The reason being there is no one standard for calibration of these machines among manufacturers. Not to get too deep in the boring world of photons , beams  and wavelengths, standard calibration insures that  all machines operate  under the same conditions and provide the same result.  Our health care system is great but  most of the time and due to competition, the left hand does not know what the right hand is doing.

Thanks LexieCat. 

Hey Roseann. I’ve had nodules mentioned on a scan, not on the next and back on the 3rd. Not sure how they pick and choose what’s mentioned. I think they should mention every little thing. Thanks for the vibes. Still waiting....

Ok so I’m freaking out. I fought for a PET scan and won, now it’s scanxiety for tomorrow and almost sorry for the win. This is 6 months after treatment was completed and I’m not ready for a bad result. The what if game is playing in my head. 

Roseann-I was told you stage the same or higher you can never go backwards but maybe all the docs do their own thing. Have a good night 

Got everything crossed for you, Barb. Keep us posted!

Ok so I’m freaking out. I fought for a PET scan and won, now it’s scanxiety for tomorrow and almost sorry for the win. This is 6 months after treatment was completed and I’m not ready for a bad result. The what if game is playing in my head. 

Silly cat-I had a bone scan last month which was 4 months after I finished the Durva. They saw nothing new or anything other than 2 prior rib fractures and 2 degenerative disks. I lied to get it because I never had one and with the old age aches and pains I wanted to be sure nothing was brewing. I’m going for a PET on the 4th. Have you had one since you finished?

Barb,
No, no, no, but yes I do understand the scanxiety you are feeling! Wholeheartedly, we want them so badly, yet, then, we are terrified of the what ifs. With that being said, we are better off with the knowledge of knowing exactly what those what ifs actually are, if anything. Could be a wonderful outcome like NED! Or if it isn't, well then, we can get our team of Docs on the ball right quick and get a plan in motion I say 😃
I had my bone scan on Monday, I go for my CT scan on Thursday. Ugh! I don't see my Oncologist until Nov 24th! But I get copies of my scans emailed to me, so I will be sure to be asking for an interpretation from my fellow Brainiacs lol!
I will be thinking of you tomorrow Barb, I will say a prayer that your scan will be a clean NED one
Take care 🙏
Roseann
 

Silly cat-I had a bone scan last month which was 4 months after I finished the Durva. They saw nothing new or anything other than 2 prior rib fractures and 2 degenerative disks. I lied to get it because I never had one and with the old age aches and pains I wanted to be sure nothing was brewing. I’m going for a PET on the 4th. Have you had one since you finished?

Ok so I’m freaking out. I fought for a PET scan and won, now it’s scanxiety for tomorrow and almost sorry for the win. This is 6 months after treatment was completed and I’m not ready for a bad result. The what if game is playing in my head. 

Roseann-I was told you stage the same or higher you can never go backwards but maybe all the docs do their own thing. Have a good night 

Tomm, you are just too much lol! glad your still NED and getting back to a normal pace once again 😃
Lindsay, my post Durva life is coming along, as I wait for my scans in November I'm starting to get a little squirrely here though, the scanxiety is starting to kick in! 
But, I am returning to my job part time next week Yay! so that will keep me occupied (Covid be damned) it will be a safe place to work, and I will be amongst friends and I just can't wait!
Question? Anyone else have a bone scan after they completed Durva treatment? I've never had one, I read up on them and I'm just curious, I do have arthritis, and I read an article that stated that ICIs' can cause it to become problematic and cause some cancer progression. I did not like that, at all. This is a short excert of the article from MedPage Today dated Oct 9th, 2020 I can't fit the whole article, and there is no link to share it, so should I be worried?
Thanks and Take care 
Roseann
***Cancer patients treated with immune checkpoint inhibitors (ICI) who develop severe arthritis may be at risk for progression of the malignancy, a single-center study suggested.
Almost 90% of patients treated with ICI develop immune-related adverse events, which can include pulmonary, gastrointestinal, dermatologic, and rheumatic events. Arthritis has been reported in almost 4%, with the most common presentation being a rheumatoid arthritis (RA)-like phenotype characterized by small-joint involvement.
In a cohort of 42 patients with ICI arthritis whose baseline Clinical Disease Activity Index (CDAI) was 15 and who were followed for a median of 7.4 months, the median time to arthritis onset was 2.8 months, according to Karmela Kim Chan, MD, of the Hospital for Special Surgery in New York City, and colleagues.
In a multivariable analysis that adjusted for time to onset of arthritis after initiation of ICI therapy and for the use of disease-modifying antirheumatic drugs (DMARDs), each one-point increase in baseline CDAI was associated with a 9% increase in the likelihood of cancer progression (HR 1.09, 95% CI 1.00-1.19, P=0.05), the researchers reported online in ACR Open Rheumatology.
 

Good Morning Durva Club!
It seems we have a lot to celebrate! Congrats SillyCat on completing your Durva, I hope your scans come back excellent, please update us once they are back!!!
I just made it to the halfway point, and I'm so excited, it seems to have gone a lot faster than I anticipated. Mind you, I'm only going once a month, so I don't feel my life has been THAT interrupted. (Thanks COVID)
I'm also happy to report that I've had very minimal side effects which has also been a blessing, I'm hoping these next 6 months don't change that. 
I'm curious what the next steps have been for some of you after you've completed treatment. I've talked with my onc about it, and it seems that it depends on how much of the tumor is gone/dead. I'd love to hear some real life stories of what to expect next. 
 

Sillycat...re the port... No wonder woman here. I watched my husband get stabbed in his port for 2 years before I started chemo then Durva.  His stab looked much more painful. I used to get weak in the knees. Just wanted to throw that out there in case anyone gets a port removed and ever (hope and pray not) has need for one. The vein route isn't so bad.
Opal

Thank you all for your input, I have some pondering to do, I reckon.
Tomm, when I have CT scans they use a vien, guess they are not skilled in using a port.
Barb, I kinda feel like you do, why tempt the cancer monsters at rest
Opal, you brave woman! You must be Wonder Woman in disguise! You go Girl 💥
Eagle13, hmm, I am happy, you are happy! Continued blessings Namaste 🙏
Michelle, meant to say in my earlier post love your photo, so nice to put a face to a name. You are lovely my dear! 
Good Day all!
Roseann

Silly at-I still have my port. I almost feel like if I take it out I’m tempting fate-as soon as it’s gone I will need it. 
I’m going to wait a while.