LouT

There's not really much I can add to the numerous excellent responses by others but I'll add that I also had a lobe removed last April (right lower), done VATS and the process was much easier to go through than my overly active imagination allowed me to believe. I never needed any pain meds stronger than acetaminophen and ibuprofen and even those, only for a few days after getting home (I was in hospital 1 night).
Aside from some complications I experienced that I'm a now past (I'm part of the lucky 3% who do!), I've been doing fine
So far, NED. You'll do great, I just know it

Hi Dina. Your recliner should be helpful during your recovery. And Lou's Tips and Tricks are great.   

They may have already took biopsies of lymph nodes.  During surgery they typically take lymph nodes and biopsy then. Treatment is usually dependant on those results. It's something you can discuss with the surgeon or oncologist if you have one 

Mamma Om, thank you so much for sharing your story. That’s quite a lot that you’ve gone through! Thank you for the details of your experience, it helps hearing it from the perspective of someone who has other heath issues. I wish you the best in your upcoming journey 

Edivebuddy, thank you so much for your response. As far as I know it isn’t looking like there’s lymph involvement. I’ll confirm this with my surgeon though. Is that something they can see when they’re in there during surgery?

Bridget O, this is so encouraging to hear! I’m glad your surgery went smoothly and I appreciate the suggestion of the wedge pillow. I had spinal surgery 2 years ago so I will break out the slew of different pillows I used during that recovery. I also just purchased a recliner so I’m hoping that will help too. 

Lou! That “tips & tricks” post is AMAZING!! Thank you so much for sharing. It’s been really comforting to read and I’m definitely going to make sure I implement your suggestions. I greatly appreciate your reassuring words

Lauren,
Hi.  I’m glad you found us but sorry you need to be here.  Your dad is beginning a journey that can have a lot of twists and turns depending on many details.  I can’t give you particular detail regarding his condition, but I can tell you that I was diagnosed with lung cancer 4 years ago and am still here surviving and living my life.  So a LC diagnosis is no longer the definite death sentence that it once was and there is more hope than ever before.  This is a time for you (and your dad) to begin to learn about this disease.  This way you’ll be able to navigate these waters more successfully.
This is an article titled “10 Steps to Surviving Lung Cancer; From a Survivor” and it can be found here.  Both you and your dad need to read this.  It was written by a member who was first diagnosed at Stage 3 and then later Stage 4 and 18 years later was considered cured.  It’s not everybody’s story but there are many here (like me) who have survived for years, and there is great knowledge for any LC patient, and family. Time to begin learning about this disease; causes, diagnosis, treatments, etc.  Take a look at “Lung Cancer 101“. Last (for now) is a forum you may find interesting it is our “Caregivers Resource Center“. I can understand that at this point you are less interested in reading than in “getting something done” to help your father, but knowledge is power in battling this complex disease.  You can also look through some of the forums to read what other survivors have written to get a better idea of what your dad might go through now and in the future.
I hope this helps you.
Lou

Hello Dina.  Sorry you need to be here but glad you found us.  In 2019 I had a resection that turned into a lower-right lobectomy.  The surgery went better than I expected and here I am (almost 5 years later) and still NED (No Evidence of Disease).  A while back I put together some "Thoracic Surgery Tips and Tricks"  and it can be found here.  It can help you prepare for your surgery, get you through the hospital stay and also provides information for the post-op period.
I can understand how frightened you must be but know that many others (including me) have gone through it and almost universally you'll here us say that it was easier than we thought.  I'm not saying it is fun or that rehab is easy, but it wasn't the tragic experience I once expected it to be.  
Please continue to come here and read, post any questions or updates and let us help support you through this part of your journey.  Edivebuddy said it well, that LC is no longer the certain death sentence that it once was.
Lou

C2Morrow,
What a great user-name.  Congratulations on your progress and I look forward to hearing more from you and seeing the future updates.  This year's scans will mark my 5th year and if all goes well I can join your 5-year club. 
Lou

Hello Dina.  Sorry you need to be here but glad you found us.  In 2019 I had a resection that turned into a lower-right lobectomy.  The surgery went better than I expected and here I am (almost 5 years later) and still NED (No Evidence of Disease).  A while back I put together some "Thoracic Surgery Tips and Tricks"  and it can be found here.  It can help you prepare for your surgery, get you through the hospital stay and also provides information for the post-op period.
I can understand how frightened you must be but know that many others (including me) have gone through it and almost universally you'll here us say that it was easier than we thought.  I'm not saying it is fun or that rehab is easy, but it wasn't the tragic experience I once expected it to be.  
Please continue to come here and read, post any questions or updates and let us help support you through this part of your journey.  Edivebuddy said it well, that LC is no longer the certain death sentence that it once was.
Lou

Hi Dina A. I want to share my carcinoid lobectomy experience with  you. I also have immune system problems, like RA and Fibromyalgia and have COPD and asthma. I also had had lots of other surgeries, including 2x breast cancer and thyroid cancer. I was originally diagnosed with adenocarcinoma after a needle biopsy, in the right lower lobe. The cardiothoracic surgeon opted to remove the whole lobe. However, when sent to the pathologist, another small tumor was found that was initially diagnosed as small cell. Then, a few days before my 1st chemo/radiation, the Tumor Board took up my case and found that while the original tumor was adenocarcinoma, this 2nd one was neuroendocrine carcinoid. These tumors often appear in the digestive tract but are not unknown in the lungs. The good news was that removal of the entire lobe meant no need for chemo or radiation for either tumor. I have been cancer free for almost 6 years. However, there is a lesion or nodule now being seen in my (now called) right lower lobe so I have had chest X-rays, CT scan, and a recent PET scan. I don't know what happens next. I am seeing my oncologist soon. However, I had the surgery and was in hospital for 5 days. I had a chest tube, a heart monitor, a lung monitor to measure it fluid coming out of the chest and also in case of a partial lung collapse, and a catheter, but I was very comfortable and was getting respiratory therapy several times a day. I was told that removing the chest tube would be very painful, but it wasn't. Only took 5 seconds and done! I went home the next day. I took it easy for 5 or 6 weeks, and gradually got my strength back and my lung capacity up. I should mention that I was 74 at the time. I hope you can relax a little as going into this journey in fear will make it harder. Continue to ask questions of your Drs.  and here. I have had worse surgical and worse chemo/radiations than with my lung cancer. Best wishes! 
 
 
 

Hello Dina.  Sorry you need to be here but glad you found us.  In 2019 I had a resection that turned into a lower-right lobectomy.  The surgery went better than I expected and here I am (almost 5 years later) and still NED (No Evidence of Disease).  A while back I put together some "Thoracic Surgery Tips and Tricks"  and it can be found here.  It can help you prepare for your surgery, get you through the hospital stay and also provides information for the post-op period.
I can understand how frightened you must be but know that many others (including me) have gone through it and almost universally you'll here us say that it was easier than we thought.  I'm not saying it is fun or that rehab is easy, but it wasn't the tragic experience I once expected it to be.  
Please continue to come here and read, post any questions or updates and let us help support you through this part of your journey.  Edivebuddy said it well, that LC is no longer the certain death sentence that it once was.
Lou

Hello Dina.  Sorry you need to be here but glad you found us.  In 2019 I had a resection that turned into a lower-right lobectomy.  The surgery went better than I expected and here I am (almost 5 years later) and still NED (No Evidence of Disease).  A while back I put together some "Thoracic Surgery Tips and Tricks"  and it can be found here.  It can help you prepare for your surgery, get you through the hospital stay and also provides information for the post-op period.
I can understand how frightened you must be but know that many others (including me) have gone through it and almost universally you'll here us say that it was easier than we thought.  I'm not saying it is fun or that rehab is easy, but it wasn't the tragic experience I once expected it to be.  
Please continue to come here and read, post any questions or updates and let us help support you through this part of your journey.  Edivebuddy said it well, that LC is no longer the certain death sentence that it once was.
Lou

So very happy for you with your great results. Keep up the great work.

Welcome to the site Dee. Glad to hear your scans are good. I was diagnosed with small cell in Nov 2021. I have since been up and down with my scans but all is stable at the moment. Keep us updated.
Pam

Thank you 

Welcome Dee,
We're glad you found us.  This is a great place for support, knowledge, and hope.  Let us know if you have any questions, there is a large and varied group of survivors here to tap into.
Lou

Welcome Dee,
We're glad you found us.  This is a great place for support, knowledge, and hope.  Let us know if you have any questions, there is a large and varied group of survivors here to tap into.
Lou

That’s great for us both!!

May the Repotrectinib work until  Zidesamtinib is approved.
 

@edivebuddythank you so much for all the good information regarding radiation necrosis. I'll admit I've had a difficult time understanding this necrosis diagnosis from the beginning. Your story is quite eye-opening. I'm so sorry you had permanent damage. I honestly did not know that could commonly happen. You've given me a lot to think about. I'm going to print out your post for further study & research.
Also, thank you for the taletrectinib info. I've read about that one in my ROS1 group. But the one folks seem to be the most excited about is NVL-520 by Nuvalent. I'm following several people on that one and so far they are having good results with minimal side effects. NVL-520 is the one I will most likely try next if the Repotrectinib fails. My oncologist has applied to get that trial here at Emory, but it will take at least a year. Currently the closest location for me is Nashville, which is not too bad. But I'm praying the Repotrectinib will work at least until the Nuvalent trial is available here.
Thanks again for all the good information! - June
 

Totally agree which is why I maintain minimal google researching and rely on the Lord himself and my want to live. I am the red baron I'll

All is great. No scans till May unless something comes up.  

Hi I’m Dee. Was diagnosed with small cell in July 2021. Have been NED since. I’m here to connect, support and interact with others who understand.