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Deb W

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  1. Thanks
    Deb W reacted to Robert A. in Upcoming CT scan & MRI Monday   
    Best wishes.
     
  2. Like
    Deb W got a reaction from Tmk in Upcoming CT scan & MRI Monday   
    The oncologist said overall it looks good.  I'm going to take that as excellent news because I don't have to go for another scan until April so I'm back on the 6 month scan interval until 2 years pass.  Thank you for your thoughts and good wishes.
    Deb
  3. Thanks
    Deb W reacted to Tom Galli in Upcoming CT scan & MRI Monday   
    Deb,
    I think "overall it looks good" and a 6-month scan interval with no treatment warrants a celebration.  So Yes, you got excellent news!
    Stay the course.
    Tom
  4. Like
    Deb W got a reaction from MBinOregon in Upcoming CT scan & MRI Monday   
    The oncologist said overall it looks good.  I'm going to take that as excellent news because I don't have to go for another scan until April so I'm back on the 6 month scan interval until 2 years pass.  Thank you for your thoughts and good wishes.
    Deb
  5. Like
    Deb W got a reaction from Rower Michelle in The Results... mostly good news!   
    Michelle,  That is such good news.
  6. Like
    Deb W got a reaction from Rower Michelle in Upcoming CT scan & MRI Monday   
    The oncologist said overall it looks good.  I'm going to take that as excellent news because I don't have to go for another scan until April so I'm back on the 6 month scan interval until 2 years pass.  Thank you for your thoughts and good wishes.
    Deb
  7. Like
    Deb W got a reaction from Curt in Upcoming CT scan & MRI Monday   
    The oncologist said overall it looks good.  I'm going to take that as excellent news because I don't have to go for another scan until April so I'm back on the 6 month scan interval until 2 years pass.  Thank you for your thoughts and good wishes.
    Deb
  8. Like
    Deb W got a reaction from Barb1260 in Upcoming CT scan & MRI Monday   
    The oncologist said overall it looks good.  I'm going to take that as excellent news because I don't have to go for another scan until April so I'm back on the 6 month scan interval until 2 years pass.  Thank you for your thoughts and good wishes.
    Deb
  9. Like
    Deb W got a reaction from Tom Galli in Upcoming CT scan & MRI Monday   
    The oncologist said overall it looks good.  I'm going to take that as excellent news because I don't have to go for another scan until April so I'm back on the 6 month scan interval until 2 years pass.  Thank you for your thoughts and good wishes.
    Deb
  10. Like
    Deb W got a reaction from RonH in Upcoming CT scan & MRI Monday   
    The oncologist said overall it looks good.  I'm going to take that as excellent news because I don't have to go for another scan until April so I'm back on the 6 month scan interval until 2 years pass.  Thank you for your thoughts and good wishes.
    Deb
  11. Like
    Deb W got a reaction from Susan Cornett in Upcoming CT scan & MRI Monday   
    The oncologist said overall it looks good.  I'm going to take that as excellent news because I don't have to go for another scan until April so I'm back on the 6 month scan interval until 2 years pass.  Thank you for your thoughts and good wishes.
    Deb
  12. Like
    Deb W got a reaction from Susan Cornett in The results are in...   
    Fantastic news!
  13. Like
    Deb W got a reaction from Mally in Scanziety Season.   
    Fantastic news!
  14. Like
    Deb W got a reaction from Roz in Scanxiety group   
    Hi Ro,
    Wishing you all the best and hoping for more good news.
    Deb
  15. Like
    Deb W got a reaction from Claudia in My Pet Scan Today   
    Wishing you all the best Claudia.
  16. Thanks
    Deb W reacted to Rower Michelle in MRI of Spine Tomorrow   
    Hi Deb
    Unfortunately this comes with the territory. The oncologist’s best defense is a strong offense of constant vigilance.  That’s really what this game is all about.  What you’re experiencing is “perfectly normal “ with full throttle survivor mode starting to kick in. 
    I told my onc at the last appointment I was rewriting his job description: from now on he’s in charge of “only” the science, medicine, numbers and worry.  
    Let the docs take on the worry as you power walk for a great cause!  Bring it on Deb! You’ve got this! 
    Michelle
  17. Thanks
    Deb W reacted to Tom Galli in MRI of Spine Tomorrow   
    Deb,
    I wish it were not so but "watch and wait" diagnosis is a very common lung cancer plight.  The inflammation explanation is also common. My last PET in 2018 showed inflammation at the 3.2 to 3.5 SUV level in the plane of my pneumonectomy scars.  It is s a chronic pain area and I suspect all chronic pain sites show inflammation that complicates nodule diagnosis. Pleura involvement is also very difficult to categorize. It is such a thin tissue and does not definitively respond in scans and is very difficult to biopsy without surgery.
    I'm tired of worrying about scans and results.  Thankfully, I am a long tenured survivor but I still go through the scanziety drill. My next scheduled scan is March 2020 and the countdown looms on my calendar.  I wish I had a magic wand!
    Stay the course.
    Tom  
  18. Like
    Deb W got a reaction from Curt in Tick Tock - Scan Time   
    Fantastic news Curt!
  19. Like
    Deb W reacted to Curt in Tick Tock - Scan Time   
    My first six month CT scan post lobectomy.  Not a thought crossed my mind until I put the robe on and sat down in the CT waiting room.  Then the anxiety begins.  Getting the IV provided some distraction.  I don’t mind needles and the  nurse who put it in was nice.  Then laying there staring up at the CT Machine all the “what if’s” start in.  On to the doctors waiting room.  I’m lucky that I get a CT Scan then meet with the doctor right after.  The hour in between is enough worry for me.  Sitting in the waiting room.  Tick Tock it’s like time is frozen.  From the waiting room to the exam room.  More waiting.  More wondering and worrying.  Is it taking so long because there is something wrong?  Are they reading my CT and trying to figure out what something is on there is?  Is my headache from the CT Contrasts or the stress?  The Doctor comes in.  We talk for five minutes. All clear.  NED.  Got there at 1:50 and was gone by 3:20.  I am so thankful they do it that way.  The hour and a half of worry is more than enough for me.  I really wish it was the same for everyone.  Next CT is March 2020.  
  20. Like
    Deb W got a reaction from Tom Galli in Scanziety Season.   
    Fantastic news!
  21. Like
    Deb W got a reaction from BridgetO in MRI of Spine Tomorrow   
    Just wanted to thank all of your for your kind words.  It turns out that the tumor board believes that  enhancement on the PET adjacent to the left upper lobe was due to healing that's going on from surgery where the upper portion of the left lung was removed as the SUV was 1.8 and 2.2.  I am thrilled with the result of course, but I didn't expect to be completely wiped out today.  My body is reacting now to 3 weeks of waiting and testing (which I know you're all familiar with).    To add to this my new and only oncologist didn't call me even after he wrote in the portal that he would call and we would discuss how to proceed.  So frustrating, so I just finished writing "on the portal" that there was no need to call me as I'm sure he's too busy.  But demanded he let me know when the next scan should.  I am thinking I should have just stuck with my surgeon (not exactly a warm guy) who is also a thoracic oncologist (I didn't know that before)!  Will be moving my care to a NCI for the next scan (thanks Michelle).  Thanks again to all.  I really appreciated your support.
    Deb
  22. Sad
    Deb W got a reaction from Tom Galli in MRI of Spine Tomorrow   
    The oncologist finally called me back.  He said that the enhancement that showed up on the PET will need to be watched.  I will need a scan in 3 months to see if it grew or not.  So...maybe not out of the woods just yet.  The Onc's  phone call seemed a little different than his comments on the portal.  my case will be discussed at the tumor board next Tuesday which is what he told me was happening last Tuesday.  Said he'd call after the meeting....we'll see!
  23. Like
    Deb W got a reaction from Rower Michelle in MRI of Spine Tomorrow   
    Just wanted to thank all of your for your kind words.  It turns out that the tumor board believes that  enhancement on the PET adjacent to the left upper lobe was due to healing that's going on from surgery where the upper portion of the left lung was removed as the SUV was 1.8 and 2.2.  I am thrilled with the result of course, but I didn't expect to be completely wiped out today.  My body is reacting now to 3 weeks of waiting and testing (which I know you're all familiar with).    To add to this my new and only oncologist didn't call me even after he wrote in the portal that he would call and we would discuss how to proceed.  So frustrating, so I just finished writing "on the portal" that there was no need to call me as I'm sure he's too busy.  But demanded he let me know when the next scan should.  I am thinking I should have just stuck with my surgeon (not exactly a warm guy) who is also a thoracic oncologist (I didn't know that before)!  Will be moving my care to a NCI for the next scan (thanks Michelle).  Thanks again to all.  I really appreciated your support.
    Deb
  24. Like
    Deb W got a reaction from Tom Galli in MRI of Spine Tomorrow   
    Just wanted to thank all of your for your kind words.  It turns out that the tumor board believes that  enhancement on the PET adjacent to the left upper lobe was due to healing that's going on from surgery where the upper portion of the left lung was removed as the SUV was 1.8 and 2.2.  I am thrilled with the result of course, but I didn't expect to be completely wiped out today.  My body is reacting now to 3 weeks of waiting and testing (which I know you're all familiar with).    To add to this my new and only oncologist didn't call me even after he wrote in the portal that he would call and we would discuss how to proceed.  So frustrating, so I just finished writing "on the portal" that there was no need to call me as I'm sure he's too busy.  But demanded he let me know when the next scan should.  I am thinking I should have just stuck with my surgeon (not exactly a warm guy) who is also a thoracic oncologist (I didn't know that before)!  Will be moving my care to a NCI for the next scan (thanks Michelle).  Thanks again to all.  I really appreciated your support.
    Deb
  25. Like
    Deb W got a reaction from Tom Galli in Scanziety Season.   
    Thinking of you Tom...I understand the scanziety and I'll use your words...stay the course!
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