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Deb W

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  1. Like
    Deb W got a reaction from Roz in Not great news on PET CT   
    Hi Lexi,
    I just ready your post.  I totally understand the anxiety.  Hang in there.  So glad that you've found someone in the medical community that is such a good advocate.  Wishing you all the best and sending positive vibes.
    Deb
  2. Like
    Deb W got a reaction from LexieCat in Not great news on PET CT   
    Hi Lexi,
    I just ready your post.  I totally understand the anxiety.  Hang in there.  So glad that you've found someone in the medical community that is such a good advocate.  Wishing you all the best and sending positive vibes.
    Deb
  3. Thanks
    Deb W reacted to LouT in Carbo/Alimta/Keytruda -   
    Deb,
    So glad to hear that you are feeling better after that rough treatment.  Not having had chemo I can only imagine how difficult it must be as I saw my Mom go through chemo and radiation.  It was tough, but the good news is you're feeling better and my hope is that continues for you.  Also, the reduction in meds should help you feel better.  Stay strong Deb...everybody is pulling for you.
    Lou
  4. Like
    Deb W got a reaction from jack14 in Carbo/Alimta/Keytruda -   
    Thanks for sharing your experiences - they mean a lot.  Today is day 7 and I feel so much better.  I guess I thought it would be the same each time.  This time I had the side effects a day earlier and they lasted a day longer than usual.  I was really getting worried and e-mailed my oncologist.  I thought he increased the dose---it was really that bad.  He said it was due to being anemic now and the carbo.  His plan is to take Carbo away next time (2 weeks away already), reduce the Alimta dose and keep the Keytruda....that is of course if there are no new nodules (fingers crossed).  Thanks so much for your support.
    Deb
  5. Sad
    Deb W got a reaction from jack14 in Carbo/Alimta/Keytruda -   
    Hi everyone,
    I'd appreciate hearing about your experience if you've had this triplet.  I had my fourth (and hopefully final) treatment.  The side effects seem worse this fourth time.  I had the treatment last Tuesday, and then Wednesday and Thursday I seemed fine then  bam....by Friday  and Saturday I could barely get out of bed.  The side effects seem worse this time.  Today, I managed a short walk, but I still didn't feel very stable.  Depending on how the next scan goes, I might be taken off the carbo and kept on the Alimta and Keytruda.   Honestly, I don't think I can take the carbo drug again.  
  6. Like
    Deb W got a reaction from Steff in Carbo/Alimta/Keytruda -   
    Thanks for sharing your experiences - they mean a lot.  Today is day 7 and I feel so much better.  I guess I thought it would be the same each time.  This time I had the side effects a day earlier and they lasted a day longer than usual.  I was really getting worried and e-mailed my oncologist.  I thought he increased the dose---it was really that bad.  He said it was due to being anemic now and the carbo.  His plan is to take Carbo away next time (2 weeks away already), reduce the Alimta dose and keep the Keytruda....that is of course if there are no new nodules (fingers crossed).  Thanks so much for your support.
    Deb
  7. Like
    Deb W got a reaction from Rower Michelle in Carbo/Alimta/Keytruda -   
    Thanks for sharing your experiences - they mean a lot.  Today is day 7 and I feel so much better.  I guess I thought it would be the same each time.  This time I had the side effects a day earlier and they lasted a day longer than usual.  I was really getting worried and e-mailed my oncologist.  I thought he increased the dose---it was really that bad.  He said it was due to being anemic now and the carbo.  His plan is to take Carbo away next time (2 weeks away already), reduce the Alimta dose and keep the Keytruda....that is of course if there are no new nodules (fingers crossed).  Thanks so much for your support.
    Deb
  8. Like
    Deb W got a reaction from Tom Galli in Carbo/Alimta/Keytruda -   
    Thanks for sharing your experiences - they mean a lot.  Today is day 7 and I feel so much better.  I guess I thought it would be the same each time.  This time I had the side effects a day earlier and they lasted a day longer than usual.  I was really getting worried and e-mailed my oncologist.  I thought he increased the dose---it was really that bad.  He said it was due to being anemic now and the carbo.  His plan is to take Carbo away next time (2 weeks away already), reduce the Alimta dose and keep the Keytruda....that is of course if there are no new nodules (fingers crossed).  Thanks so much for your support.
    Deb
  9. Sad
    Deb W got a reaction from GaryG in Carbo/Alimta/Keytruda -   
    Hi everyone,
    I'd appreciate hearing about your experience if you've had this triplet.  I had my fourth (and hopefully final) treatment.  The side effects seem worse this fourth time.  I had the treatment last Tuesday, and then Wednesday and Thursday I seemed fine then  bam....by Friday  and Saturday I could barely get out of bed.  The side effects seem worse this time.  Today, I managed a short walk, but I still didn't feel very stable.  Depending on how the next scan goes, I might be taken off the carbo and kept on the Alimta and Keytruda.   Honestly, I don't think I can take the carbo drug again.  
  10. Sad
    Deb W got a reaction from Tom Galli in Carbo/Alimta/Keytruda -   
    Hi everyone,
    I'd appreciate hearing about your experience if you've had this triplet.  I had my fourth (and hopefully final) treatment.  The side effects seem worse this fourth time.  I had the treatment last Tuesday, and then Wednesday and Thursday I seemed fine then  bam....by Friday  and Saturday I could barely get out of bed.  The side effects seem worse this time.  Today, I managed a short walk, but I still didn't feel very stable.  Depending on how the next scan goes, I might be taken off the carbo and kept on the Alimta and Keytruda.   Honestly, I don't think I can take the carbo drug again.  
  11. Like
    Deb W got a reaction from Lisa Haines in Scanziety again...   
    Hi everyone,
    Well, it's time to see if the chemo is working.  I'm having the 8 week scan tomorrow at 9am.  If it is not working, I believe the plan will be to start Trabecta.  Any positive energy you can send my way will be greatly appreciated!  
    Deb
  12. Like
    Deb W got a reaction from LouT in Scanziety again...   
    Thanks so much.  I've heard that some people don't get side effects at all (maybe you'll be one of them).  My rough days with nausea and fatigue are days 4 and 5 and just knowing that it's temporary helps a lot.  I created a side effect journal, and I've now been through 3 treatments and it's the same each time.  Good luck and I hope the triplet works for you.  Today is day 11 and I have my usual energy  and feel like I've never been sick.  Keep us posted on how it goes for you.
    Deb
  13. Like
    Deb W got a reaction from LouT in Scanziety again...   
    Hi Jack,
    I've been told that immunotherapy can take a while to show shrinkage.  Hang in there!
  14. Like
    Deb W got a reaction from Tom Galli in Scanziety again...   
    Thanks so much.  I've heard that some people don't get side effects at all (maybe you'll be one of them).  My rough days with nausea and fatigue are days 4 and 5 and just knowing that it's temporary helps a lot.  I created a side effect journal, and I've now been through 3 treatments and it's the same each time.  Good luck and I hope the triplet works for you.  Today is day 11 and I have my usual energy  and feel like I've never been sick.  Keep us posted on how it goes for you.
    Deb
  15. Thanks
    Deb W reacted to MBinOregon in Scanziety again...   
    Deb,
    🙏🤞 Wishing you a good scan AND not too long of a wait to get the results - the waiting is the worst part.
    MB
  16. Like
    Deb W got a reaction from PaulaC in Scanziety again...   
    Good news. After two treatments, the lymph node tumors(s) shrunk 25%.  The nodule on the left lung (very small) was reduced very slightly.  The pleura - I don't know if that can be measured but he's telling me it's very small amount and hard to measure.  The plan is to continue on the same triplet - Carbo, Alimta and Keytruda for 2 more treatments, and then drop the Carbo.  That is, of course, it the shrinkage continues.  Trabecta is still an option for me should the other treatment not work.  No whine, but wow, day 4 and 5 are rough for me after chemo - probably will need to cancel the family's planned social distancing 4th. 
    Thanks to all for you thoughts, prayers and comments.
    Deb 
  17. Like
    Deb W got a reaction from jack14 in Scanziety again...   
    Hi Jack,
    I've been told that immunotherapy can take a while to show shrinkage.  Hang in there!
  18. Like
    Deb W got a reaction from Susan Cornett in Scanziety again...   
    Good news. After two treatments, the lymph node tumors(s) shrunk 25%.  The nodule on the left lung (very small) was reduced very slightly.  The pleura - I don't know if that can be measured but he's telling me it's very small amount and hard to measure.  The plan is to continue on the same triplet - Carbo, Alimta and Keytruda for 2 more treatments, and then drop the Carbo.  That is, of course, it the shrinkage continues.  Trabecta is still an option for me should the other treatment not work.  No whine, but wow, day 4 and 5 are rough for me after chemo - probably will need to cancel the family's planned social distancing 4th. 
    Thanks to all for you thoughts, prayers and comments.
    Deb 
  19. Like
    Deb W got a reaction from Lisa Haines in Scanziety again...   
    Thanks so much.  I plan on attending the zoom meeting on Friday.  This is the 3rd treatment and  I'm still overwhelmed by the side effects hoping that somehow they will lessen.  But I took your advice, Lisa, and I'm sitting out on my balcony.  Actually, feeling like I might be able to eat something soon!  
    Lisa, your story is so encouraging...thank you.  I am hoping the triplet continues to work, but I've gotta say that the thought of having yet another round of this seems almost impossible to bear.  However, I know that tomorrow will be better and by the time the 3 weeks are up, I'll be able to manage it.  So very happy for you that you are stable.  I'm also following info on the MET mutation.
    Thanks for sharing your stories and words of encouragement.  I really appreciate it.
    Deb
  20. Like
    Deb W got a reaction from Robert A. in Scanziety again...   
    Good news. After two treatments, the lymph node tumors(s) shrunk 25%.  The nodule on the left lung (very small) was reduced very slightly.  The pleura - I don't know if that can be measured but he's telling me it's very small amount and hard to measure.  The plan is to continue on the same triplet - Carbo, Alimta and Keytruda for 2 more treatments, and then drop the Carbo.  That is, of course, it the shrinkage continues.  Trabecta is still an option for me should the other treatment not work.  No whine, but wow, day 4 and 5 are rough for me after chemo - probably will need to cancel the family's planned social distancing 4th. 
    Thanks to all for you thoughts, prayers and comments.
    Deb 
  21. Like
    Deb W got a reaction from Claudia in Scanziety again...   
    Good news. After two treatments, the lymph node tumors(s) shrunk 25%.  The nodule on the left lung (very small) was reduced very slightly.  The pleura - I don't know if that can be measured but he's telling me it's very small amount and hard to measure.  The plan is to continue on the same triplet - Carbo, Alimta and Keytruda for 2 more treatments, and then drop the Carbo.  That is, of course, it the shrinkage continues.  Trabecta is still an option for me should the other treatment not work.  No whine, but wow, day 4 and 5 are rough for me after chemo - probably will need to cancel the family's planned social distancing 4th. 
    Thanks to all for you thoughts, prayers and comments.
    Deb 
  22. Like
    Deb W got a reaction from jack14 in Scanziety again...   
    Good news. After two treatments, the lymph node tumors(s) shrunk 25%.  The nodule on the left lung (very small) was reduced very slightly.  The pleura - I don't know if that can be measured but he's telling me it's very small amount and hard to measure.  The plan is to continue on the same triplet - Carbo, Alimta and Keytruda for 2 more treatments, and then drop the Carbo.  That is, of course, it the shrinkage continues.  Trabecta is still an option for me should the other treatment not work.  No whine, but wow, day 4 and 5 are rough for me after chemo - probably will need to cancel the family's planned social distancing 4th. 
    Thanks to all for you thoughts, prayers and comments.
    Deb 
  23. Like
    Deb W got a reaction from jack14 in Scanziety again...   
    Hi everyone,
    Well, it's time to see if the chemo is working.  I'm having the 8 week scan tomorrow at 9am.  If it is not working, I believe the plan will be to start Trabecta.  Any positive energy you can send my way will be greatly appreciated!  
    Deb
  24. Thanks
    Deb W reacted to LUNGevityKristin in Scanziety again...   
    That's great news!  Sorry about having to cancel the 4th.
  25. Thanks
    Deb W reacted to BridgetO in Scanziety again...   
    Great news!
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