Jump to content

Deb W

Members
  • Content Count

    65
  • Joined

  • Last visited


Reputation Activity

  1. Like
    Deb W got a reaction from Tom Galli in Question for my fellow survivors   
    Hi Lou,
    I had Stage 1B and was scheduled with my surgeon to follow up 6 months later.  In the meantime, I had some new symptoms around the 4th month post surgery.  I didn't feel comfortable with calling my surgeon with these symptoms because he seems so busy.   So, I wrote about it here and asked if everyone had a oncologist - I didn't and it seemed to me I should have one.     Many suggested that I see an Oncologist.  I did just that and was sent for a MRI with and without contrast which showed inflammation.  It turned out that the inflammation  may have been caused by the original surgery.  I am now back on the regular  6 month schedule and will have another scan in April.  While at the Oncologists office - my surgeon popped in and wanted me to know he was tracking my case.  So, it was good to know the Oncology team at the hospital talks to each other.   I believe after the scan in April if everything goes well it will be a year for the next one.  It sounds like the second opinion is the way to go.
    Deb
  2. Thanks
    Deb W got a reaction from Schoolie2 in Intro   
    Hi Amy,
    Welcome.  I was also diagnosed with 1B (upper left lobe), and it was found accidentally when my PCP ordered a chest X-ray for back pain I was experiencing on my right side.  I had a lobectomy in March of last year.  I didn't have chemo and so far so good on post surgery scans.  Glad you have the warrior attitude...it will serve you well!  Wishing you all the best with chemo...we're here for you.
    Deb
     
  3. Like
    Deb W reacted to Rower Michelle in Scan Time (again)   
    Hi All, 
    Somehow the last three months just flew by doing blissfully normal things.  I'm up for the semi-annual brain MRI and CT Scan next Wednesday afternoon results scheduled for Thursday morning.  I've got the usual activities planned to help pass the time.  Overall I'm feeling pretty good heading into this scan, which is 15 months on targeted therapy.  For some reason the scanxiety hasn't hit yet (am I getting "used to" this????).    I just started the LiveStrong Program at the YMCA so I'll probably be too sore and wiped out to have the worry monkeys take over.  
    Irrespective of the results we are heading to Amelia Island the last week of January for our normal winter trip which I am really looking forward to.   In the meantime, I've placed a call to the clinic this morning to obtain the Valium for the MRI so I am locked and loaded for this go round.  Any prayers, thoughts, ju ju or good karma is appreciated as I head into this next round.   I'll keep you all posted. 
    Michelle 
  4. Like
    Deb W got a reaction from Rower Michelle in Scan Time (again)   
    Hi Michelle,
     
    I am sending thoughts and prayers your way!  Have a wonderful trip!
    Deb
  5. Like
    Deb W got a reaction from DFK in Scan Time (again)   
    Hi Michelle,
     
    I am sending thoughts and prayers your way!  Have a wonderful trip!
    Deb
  6. Like
    Deb W got a reaction from Tom Galli in Scan Time (again)   
    Hi Michelle,
     
    I am sending thoughts and prayers your way!  Have a wonderful trip!
    Deb
  7. Like
    Deb W reacted to Curt in Happy New Year - 308 Days Post Lobectomy   
    It’s been 308 days since I had an upper right lobe lobectomy.   I’m spending this New Years Eve with my wife and three sons (7, 9 and 11) at an indoor water park.  Walking the stairs probably isn’t like it would have been last year but I’m able to do it and here to enjoy it.   I’ll add making it easier to climb stairs to the list of resolutions (I’ve got a few).   Another year in the books.  I hope 2020 is a little healthier, a littler easier and a lot happier for everyone here.  ❤️🌟💫💪🏼🥊💥🥂
  8. Like
    Deb W reacted to BridgetO in Scanziety   
    Finally got my scan results after 9 days. NED! Yay!  Thanks for all the support.
  9. Thanks
    Deb W reacted to Robert A. in Upcoming CT scan & MRI Monday   
    Best wishes.
     
  10. Like
    Deb W got a reaction from Tmk in Upcoming CT scan & MRI Monday   
    The oncologist said overall it looks good.  I'm going to take that as excellent news because I don't have to go for another scan until April so I'm back on the 6 month scan interval until 2 years pass.  Thank you for your thoughts and good wishes.
    Deb
  11. Thanks
    Deb W reacted to Tom Galli in Upcoming CT scan & MRI Monday   
    Deb,
    I think "overall it looks good" and a 6-month scan interval with no treatment warrants a celebration.  So Yes, you got excellent news!
    Stay the course.
    Tom
  12. Like
    Deb W got a reaction from MBinOregon in Upcoming CT scan & MRI Monday   
    The oncologist said overall it looks good.  I'm going to take that as excellent news because I don't have to go for another scan until April so I'm back on the 6 month scan interval until 2 years pass.  Thank you for your thoughts and good wishes.
    Deb
  13. Like
    Deb W got a reaction from Rower Michelle in The Results... mostly good news!   
    Michelle,  That is such good news.
  14. Like
    Deb W got a reaction from Rower Michelle in Upcoming CT scan & MRI Monday   
    The oncologist said overall it looks good.  I'm going to take that as excellent news because I don't have to go for another scan until April so I'm back on the 6 month scan interval until 2 years pass.  Thank you for your thoughts and good wishes.
    Deb
  15. Like
    Deb W got a reaction from Curt in Upcoming CT scan & MRI Monday   
    The oncologist said overall it looks good.  I'm going to take that as excellent news because I don't have to go for another scan until April so I'm back on the 6 month scan interval until 2 years pass.  Thank you for your thoughts and good wishes.
    Deb
  16. Like
    Deb W got a reaction from Barb1260 in Upcoming CT scan & MRI Monday   
    The oncologist said overall it looks good.  I'm going to take that as excellent news because I don't have to go for another scan until April so I'm back on the 6 month scan interval until 2 years pass.  Thank you for your thoughts and good wishes.
    Deb
  17. Like
    Deb W got a reaction from Tom Galli in Upcoming CT scan & MRI Monday   
    The oncologist said overall it looks good.  I'm going to take that as excellent news because I don't have to go for another scan until April so I'm back on the 6 month scan interval until 2 years pass.  Thank you for your thoughts and good wishes.
    Deb
  18. Like
    Deb W got a reaction from RonH in Upcoming CT scan & MRI Monday   
    The oncologist said overall it looks good.  I'm going to take that as excellent news because I don't have to go for another scan until April so I'm back on the 6 month scan interval until 2 years pass.  Thank you for your thoughts and good wishes.
    Deb
  19. Like
    Deb W got a reaction from Susan Cornett in Upcoming CT scan & MRI Monday   
    The oncologist said overall it looks good.  I'm going to take that as excellent news because I don't have to go for another scan until April so I'm back on the 6 month scan interval until 2 years pass.  Thank you for your thoughts and good wishes.
    Deb
  20. Like
    Deb W got a reaction from Susan Cornett in The results are in...   
    Fantastic news!
  21. Like
    Deb W got a reaction from Mally in Scanziety Season.   
    Fantastic news!
  22. Like
    Deb W got a reaction from Roz in Scanxiety group   
    Hi Ro,
    Wishing you all the best and hoping for more good news.
    Deb
  23. Like
    Deb W got a reaction from Claudia in My Pet Scan Today   
    Wishing you all the best Claudia.
  24. Thanks
    Deb W reacted to Rower Michelle in MRI of Spine Tomorrow   
    Hi Deb
    Unfortunately this comes with the territory. The oncologist’s best defense is a strong offense of constant vigilance.  That’s really what this game is all about.  What you’re experiencing is “perfectly normal “ with full throttle survivor mode starting to kick in. 
    I told my onc at the last appointment I was rewriting his job description: from now on he’s in charge of “only” the science, medicine, numbers and worry.  
    Let the docs take on the worry as you power walk for a great cause!  Bring it on Deb! You’ve got this! 
    Michelle
  25. Thanks
    Deb W reacted to Tom Galli in MRI of Spine Tomorrow   
    Deb,
    I wish it were not so but "watch and wait" diagnosis is a very common lung cancer plight.  The inflammation explanation is also common. My last PET in 2018 showed inflammation at the 3.2 to 3.5 SUV level in the plane of my pneumonectomy scars.  It is s a chronic pain area and I suspect all chronic pain sites show inflammation that complicates nodule diagnosis. Pleura involvement is also very difficult to categorize. It is such a thin tissue and does not definitively respond in scans and is very difficult to biopsy without surgery.
    I'm tired of worrying about scans and results.  Thankfully, I am a long tenured survivor but I still go through the scanziety drill. My next scheduled scan is March 2020 and the countdown looms on my calendar.  I wish I had a magic wand!
    Stay the course.
    Tom  
×
×
  • Create New...