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G.A.M.

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  1. Haha
    G.A.M. reacted to TJM in Introduction...3.5 cm Right Lower Lobe mass   
    It is definitely "hard"....too much?
  2. Like
    G.A.M. got a reaction from DMaddox in Introduction...3.5 cm Right Lower Lobe mass   
    I wish I'd gotten that tip before it happened a couple of times. 
  3. Like
    G.A.M. got a reaction from KM_NRP in Introduction...3.5 cm Right Lower Lobe mass   
    I wish I'd gotten that tip before it happened a couple of times. 
  4. Like
    G.A.M. reacted to Judy M2 in Introduction...3.5 cm Right Lower Lobe mass   
    KM, MuGard is great for mouth sores but is very expensive. I was lucky that my chemo nurse just gave me a bottle. You might ask your oncologist if they have samples. 
    FYI, my targeted therapy drug Tagrisso also can cause mouth sores (mucositis) because it goes after rapidly growing cells like hair, nails and those in the mouth and stomach lining. Earlier this week I had a recurrence of mouth sores after a busy and stressful week before. I used the leftover MuGard a couple of times and the mouth sores are gone. 
  5. Like
    G.A.M. reacted to LexieCat in Introduction...3.5 cm Right Lower Lobe mass   
    Glad you're feeling a bit better. Don't forget to take a daily dose of Miralax if you're taking anti-nausea drugs regularly. Trust me, I learned the hard way that taking anti-nausea drugs before I start to feel queasy is a recipe for the most horrible, painful constipation imaginable. Taking the Miralax helped, as did cutting back on the anti-nausea meds until needed. 
     
  6. Like
    G.A.M. reacted to KM_NRP in Introduction...3.5 cm Right Lower Lobe mass   
    Update: Had Mediastinoscopy on April 2.  Anesthesia wasn't my friend this time.  Still have a swollen neck area and talking in a whisper.  That's all improving though slowly.
    First Chemo was Tuesday April 13, 2021.  Felt great until Saturday late afternoon.  Thought it was a great idea to make some food I was craving, then ate a BIG serving.  Well, that won't happen again.  I'm instilling a 5 bite rule for myself.  Eat and wait, otherwise its a night and next day of horribleness.  This morning nausea is better but I have began to developed small blister on my throat.  Keeping an eye on them.  However, today is much improved over the last day and half.  I am taking my Zofran and Compazine more regular since the nausea set in.  
     
    So, just adjusting to my new life for a spring / summer.  My new saying: It could be better, it could be worse. 
    Have a great day everyone. 
  7. Like
    G.A.M. reacted to Jesse L. in Introduction...3.5 cm Right Lower Lobe mass   
    I've been following your thread as our diagnosis is quite similar... I had an annual CT last December and they noted a suspicious 1.8 cm. X 1.2 cm. nodule in my RLL. More scans and a biopsy indicated it was an adenocarcinoma. So, on 2/25 I had a VATS procedure  to have the RLL removed. While that was quite successful, they unfortunately found two affected lymph nodes and removed them as well. So, after all tests were done I went from 1a to 3a in a hurry. Currently, I'm in a course of adjuvant chemotherapy, four courses started 4/5 three weeks apart with Carbo/Alimta to perhaps kill any stray rogue cells looking to set up shop elsewhere. Just to let you know here that the chemotherapy hasn't been too bad for me but it does affect everyone differently; just tired (they call it fatigue) a lot and a few small stomach issues (stay away from spicy foods). I still try to get at least a 4 miles walk in daily, weather permitting. But you got to play it by ear...what works for me may not work for you. I know I was told by medical that even some movement helps with chemotherapy side effects...
    Well, even though its been a rush, so far so good I guess. I'm here to tell you that whatever post surgical pain you feel will get better, it's just going to take a good amount of time is all. And the lobectomy overall wasn't  the worst...I had a lot more issues post surgery when I had my prostate removed. I usually always slept on my right side and that won't happen for some months yet for sure. As to your lung volume, that will come back over time so you won't hardly notice a difference unless you're really exerting yourself. I do lots of walking and breathing exercises to expand lung volume and capacity and that really does help.  
    Stay in touch and keep us informed of your progress...this website is great in that we're all pulling for each other! Take care...
  8. Like
    G.A.M. got a reaction from LouT in Introduction...3.5 cm Right Lower Lobe mass   
    I had things in the reverse order. Lobectomy (upper right, 3 cm mass) and then chemo. Mine was caught early by accident when my gall bladder decided to call it a day.
    I hope your outcome is great. Seems like they caught it early. Be glad you have mandatory physicals, I guess.
    Best,
    Glenn
     
  9. Like
    G.A.M. got a reaction from Tom Galli in Introduction...3.5 cm Right Lower Lobe mass   
    I had things in the reverse order. Lobectomy (upper right, 3 cm mass) and then chemo. Mine was caught early by accident when my gall bladder decided to call it a day.
    I hope your outcome is great. Seems like they caught it early. Be glad you have mandatory physicals, I guess.
    Best,
    Glenn
     
  10. Like
    G.A.M. got a reaction from KM_NRP in Introduction...3.5 cm Right Lower Lobe mass   
    I had things in the reverse order. Lobectomy (upper right, 3 cm mass) and then chemo. Mine was caught early by accident when my gall bladder decided to call it a day.
    I hope your outcome is great. Seems like they caught it early. Be glad you have mandatory physicals, I guess.
    Best,
    Glenn
     
  11. Like
    G.A.M. reacted to KM_NRP in Introduction...3.5 cm Right Lower Lobe mass   
    Update: Had my Mediastinoscopy on Friday April 2, 2021.  Anesthesia wasn't a friend post-op.  Just the Nausea/ Vomiting/ feeling super crappy.
    Definitely longer an 1 inch incision (glued) and still very swollen/ bruised.  I literally feel like I was throat punched.  However, I can still eat.  I do run short of lung volume at the end of sentences.  Still talking in a whisper but gets a tiny bit louder everyday.  Biopsy results came back as expected with only one node (S7) being positive.  So, treatment plan remains the same.  Chemo then surgery. 
     
    Staying the course, Tom !  and looking forward to being able to yell at ignorant telemarketers again that make fun of my voice when they call me!
  12. Like
    G.A.M. reacted to D iane in Small Cell Diagnosis   
    So sorry just me.   We went to our primary Dr. Friday for flu shots, husband also got the pneumonia vaccine.  I asked, how did we go from pneumonia showing on a scan (August 2019) to SCLC in a little over 8 weeks? Scary indeed!!!!!  Is this how fast it's growing and spreading?
    May I ask how old your husband is?  Mine is 60.  I feel horrible for our children (33 and 26) this is way too young for them to lose a parent.  I am being as positive as I can.  I feel there's no use for all doom and gloom right now.  Let's get him in the chemo chair and see how these 3 cycles go.  He will be getting Tecentriq, Carboplatin, and etoposide.  All three on the 1st day and the etoposide for 2 days, then 2 weeks off.  We see the MO (medical oncologist) again on Thurs and hope to get started next Monday.  We also have PET scan and brain MRI scheduled.  I will be crushed if he has brain mets already, but I'll worry about that when the time comes.  His physical condition has also changed. Most noticeably is weight loss, constipation, and he is having pain.
    My very best wishes to you.
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