Cary

Hi Karen, I went and checked and found out that Rexall brands are actually included on the "approved" list above. The names the company goes by are Sundown, Rexall Sundown and Rexall. The link below talks about their production facility in Boca Raton FL. I'm not sure if you should increase the dose or not, I know people that have taken 500mg in combination with other treatments/supplements and have had very good results. At the present time my father is off all supplements except for salmon oil, whey protein, and macrobiotic/whole foods diet. He original went off due to whole brain radiation, then he started Iressa shortly after that. Then by the time the next scans were done, he was NED and we didn't want to add or take anything away. I have "back-up" treatments/supplements in place, in case he needs them in the future. I like being prepared.LOL Cary link to the Rexall sundown homepage: http://www.rexallsundown.com/pages/facilities.aspx Sundown® Benefits CoQ-10, 75 mg (75 mg CoQ10 per softgel, 2 per day)* Dist. by Rexall Sundown, Inc. 150 mg Ingredients APPROVED Sundown® CoQ-10 100mg (100 mg CoQ10 per softgel, 1 per day)* Dist. by Rexall Sundown, Inc. 100 mg Ingredients APPROVED Sundown® CoQ-10 50mg (50 mg CoQ10 per softgel, 1-3 per day)* Dist. by Rexall Sundown, Inc. 50-150 mg Ingredients APPROVED

Cheryl, I went and did a search at consumerlabs, Twinlabs has passed testing on other supplements, so twinlabs should be good. I wish when they conducted the testing they would include every brand name of supplement, but I guess it's cost prohibitive. We used pharmaceutical grade supplements(only available through a doctor) to assure quality, but it was $700-$800 a month. Once we found out about consumerlabs though we started buying supplements that had passed their testing, the cost was then around $100-$200 a month. Cary

Hebbie and Cheryl, Below is some information from www.consumerlab.com They test supplements to see if they contain what they're supposed to. A few brands had less than labeled or even no CoQ10; one had more than what was on the label. Many, however, contained what they were supposed to. They originally only posted the results of brands that passed, but have recently started to post the failed brands also. The site posts highlights of their studies. To get complete reports, you must subscribe. The list below is the complete list. Cary The following failed testing: BioSan™ Organic CoQ10 Ubiquinone (60 mg CoQ10 per capsule, 1-2 per day) Dist. by Nature's Distributors 60-120 mg Ingredients NOT APPROVED No detectable CoQ10 New Chapter® Bio-Grown CoQ10™ (22 mg CoQ10 per capsule, 1 per day) Dist. by New Chapter, Inc. 22 mg Ingredients NOT APPROVED Only 71% of claimed CoQ10 Pro Health™ Coenzyme Q10 (25 mg CoQ10 per capsule, 2 per day) Dist. by Pro Health, Inc. 50 mg Ingredients NOT APPROVED 175% of claimed CoQ10 The following contained the labeled amount of CoQ10: Amni® Chewable Co-Enzyme Q10 (100 mg CoQ10 per chewable tablet, 1 per day) Mfd. for Advanced Medical Nutrition, Inc. 100 mg Ingredients APPROVED Bronson™ Co-Enzyme Q10 30 mg (30 mg CoQ10 per capsule, 1 per day) Dist. by Bronson Laboratories 30 mg Ingredients APPROVED Country® Life Hypoallergenic Co-Q10 30 mg (30 mg CoQ10 per capsule, 1 per day) Dist. by Country Life 30 mg Ingredients APPROVED CVS® Pharmacy 100 mg Coenzyme Q10 (100 mg CoQ10 per softgel, 1 per day)* Dist. by CVS Pharmacy, Inc. 100 mg Ingredients APPROVED Enhanced Life Sciences Co Q-10 (150 mg CoQ10 per capsule, 1 per day) Dist. by Enhanced Life Sciences 150 mg Ingredients APPROVED Enzymatic Therapy Natural Medicines® Vitaline® Chewable CoQ10 100 mg Dietary Supplement Chocolate Flavored (100 mg CoQ10 per chewable tablet, 1-2 per day)* Dist. by Enzymatic Therapy, Inc. 100-200 mg Ingredients APPROVED Gary Null's Super Coenzyme Q10 (100 mg CoQ10 per tablet, 1-2 per day) Dist. by Gary Null & Associates 100-200 mg Ingredients APPROVED Innovative Natural Products Liquid CoQ10 10 mg CoQ10 per 1mL, 5mL per day) Dist. by Innovative Natural Products 50 mg Ingredients APPROVED Nature Made® Co Q10 (100 mg CoQ10 per softgel, 1per day)* Dist. by Nature Made Nutritional Products 100 mg Ingredients APPROVED Nature's Bounty® Q-Sorb™ Co Q-10 30 mg (30 mg CoQ10 per softgel, 3 per day)* Mfd. by Nature's Bounty, Inc. 90 mg Ingredients APPROVED Nature's Bounty® Q-Sorb™ Co Q-10 50 mg (50 mg CoQ10 per softgel, 2-3 per day)* Mfd. by Nature's Bounty, Inc. 100-150 mg Ingredients APPROVED Nature's Bounty® Q-Sorb™ Co Q-10 75 mg (75 mg CoQ10 per softgel, 1 per day)* Mfd. by Nature's Bounty, Inc. 75 mg Ingredients APPROVED Nutrilite® Coenzyme Q10 Complex Dietary Supplement (30 mg CoQ10 per softgel, 1-3 per day)* Dist. by Access Business Group International LLC 30-90 mg Ingredients APPROVED Olay™ Vitamins Ultra coQ10 150 mg (150 mg CoQ10 per softgel, 1 per day)* Dist. by Pharmavite LLC 150 mg Ingredients APPROVED Origin® Q-Sorb™ Co Q-10, 100 mg (100 mg CoQ10 per softgel, 1 per day) * Dist. by Target Corporation 100 mg Ingredients APPROVED Puritan's Pride® Q-Sorb™ Coenzyme Q-10 120 mg (120 mg CoQ10 per softgel, 1 per day)* Mfd. by Puritan's Pride, Inc. 120 mg Ingredients APPROVED Puritan's Pride® Q-Sorb™ Coenzyme Q-10 200 mg (200 mg CoQ10 per softgel, 1 per day)* Mfd. by Puritan's Pride, Inc. 200 mg Ingredients APPROVED Puritan's Pride® Q-Sorb™ Coenzyme Q-10 75 mg (75 mg CoQ10 per softgel, 1 per day)* Mfd. by Puritan's Pride, Inc. 75 mg Ingredients APPROVED Shaklee® Coenzyme Q10, Resveratrol & More, CoQHeart™ Dietary Supplement (30 mg CoQ10 per softgel, 1 per day) Dist. by Shaklee Corporation 30 mg Ingredients APPROVED Spring Valley® Q-Sorb™ Co Q-10, 150 mg (150 mg CoQ10 per softgel, 1 per day)* Mfd. by Nature's Bounty, Inc. 150 mg Ingredients APPROVED Sundown® Benefits CoQ-10, 75 mg (75 mg CoQ10 per softgel, 2 per day)* Dist. by Rexall Sundown, Inc. 150 mg Ingredients APPROVED Sundown® CoQ-10 100mg (100 mg CoQ10 per softgel, 1 per day)* Dist. by Rexall Sundown, Inc. 100 mg Ingredients APPROVED Sundown® CoQ-10 50mg (50 mg CoQ10 per softgel, 1-3 per day)* Dist. by Rexall Sundown, Inc. 50-150 mg Ingredients APPROVED Synergy Plus™ Super Strength Natural Coenzyme Q-10 60 mg (60 mg CoQ10 per capsule, 1 per day) Mfd. by Synergy Plus 60 mg Ingredients APPROVED Tree of Life CoQ10 30 mg (30 mg CoQ10 per capsule, 1 per day) Dist. by Tree of Life 30 mg Ingredients APPROVED Vitamin World® Q-Sorb™ Coenzyme Q-10 200 mg (200 mg CoQ10 per softgel, 1 per day)* Mfd. by Vitamin World, Inc. 200 mg Ingredients APPROVED Vitamin World® Q-Sorb™ Coenzyme Q-10 30 mg (30 mg CoQ10 per softgel, 3 per day)* Mfd. by Vitamin World, Inc. 90 mg Ingredients APPROVED Vitamin World® Q-Sorb™ Coenzyme Q-10 50 mg (50 mg CoQ10 per softgel, 2-3 per day)* Mfd. by Vitamin World, Inc. 100-150 mg Ingredients APPROVED Whole Health Premium Supplements Pure Crystalline Pharmaceutical Grade CoEnzyme Q10 Extra Strength Dietary Supplement 150 mg (150 mg CoQ10 per capsule, 1-2 per day) Dist. by Whole Health Products 150- 300 mg Ingredients APPROVED

Hebbie, Here is some additional information, some of it directly relates to lung cancer. It's interesting to note, that the levels needed for cancer are between 300mg-500mg/daily. Cary USE OF CoQ10 TO TREAT MALIGNANCIES By Dr. James Howenstine, MD. December 23, 2003 Biochemist, Dr. Karl Folkers Ph.D, was employed by Merck where he discovered vitamin B12 and learned how to make a synthetic version of it that sold all over the world ending pernicious anemia. He was considered for a Nobel Prize but did not win this honor. He had become very interested in CoQ10 which Merck could not pursue because it was not patentable as a natural substance. Dr. Folkers had learned that CoQ10 was able to slow the progression of muscular dystrophy. After leaving Merck he took a position as professor at the University of Texas in about 1965. CoQ10 is found in every cell in the body. Animal species have exhibited a direct correlation between CoQ10 levels and longevity.[1] The use of statin drugs produces significant falls in CoQ blood levels which may be the reason for the rising incidence of heart failure as statin drugs are widely used in the U.S. to lower cholesterol. Administration of CoQ10 improves energy output by the mitochondria of the cell. This improved energy output from CoQ10 therapy has proven to be quite valuable in treating neurologic disorders[2] such as Parkinson's disease, multiple sclerosis, amyotrophic lateral sclerosis, post-polio syndrome, Alzheimer's Disease, and strokes. While at the U. of Texas Dr. Folkers encouraged a cardiologist, Dr. Peter Langsjoen, to use CoQ10 to treat congestive heart failure with wonderful results. Dr. Langsjoen stated " The clinical experience with CoQ10 is nothing short of dramatic. It is reasonable to believe that the entire field of medicine should be reevaluated in light of this growing knowledge". Some patients at the U. of Texas with heart failure received CoQ10 but this therapy did not become adopted as a standard approach by conventional physicians. Dr. Folkers followed the course of 6 patients, who had cancer, who were taking CoQ10 for congestive heart failure until 1993. Four of them had lung cancer and 2 had breast cancer. All 6 experienced remissions of cancer thought to be due to CoQ10 therapy. Dr. Folkers recommended the use of 500 mg. of CoQ daily in patients with malignancies. Dr. Folkers began to raise money to pursue his dream of using CoQ10 to treat malignancies. Folkers persuaded one of his financial backers, who had developed small cell carconoma of the lung with widespread metastasis, to try CoQ10 by pointing out that CoQ10 would do no harm and it might help. His oncologist had advised him he had less than a year to live. He began to feel better and had no sign of metastases one year later. Fifteen years after the cancer diagnosis he remained well and free of metastases. The only therapy he received was CoQ10. In 1980 Dr. Folkers funded a trial of CoQ10 for breast cancer conducted by Dr. Kund Lockwood in Denmark. Dr. Lockwood treated 2 patients with breast cancer one with 300 mg.of CoQ10 daily and the other with 360 mg. daily. Both recovered. Dr. William Judy of Bradenton, Fl. received funding from Dr. Folkers to treat prostate cancer with CoQ10. Cancer of the prostate is typically hormone dependent at its onset and is effectively treated then by hormone inhibition. However, after two to five years it often becomes independent of hormone therapy and no amount of hormone inhibition at that stage is beneficial. Dr. Judy found 30 patients with hormone independent prostate cancer and treated them with 500 mg. of Coenzyme Q10 daily. Fourteen of the 15 who had no metastases to bone or lung proceeded to have their PSA values return to normal. Of the 15 patients who did have metastases to bone and lung when they started CoQ10 8 saw their PSA results return to normal suggesting improvement.. Dr. Judy then treated 6 patients with prostate cancer and elevated PSA values with CoQ10 and all 6 had their elevated PSA values return to normal after 120 days of CoQ10 therapy (500 mg.) daily. . Dr. Judy suggests a way to improve the absorption of CoQ10 capsules into the blood stream. Put the capsules of CoQ10 in hot tea which melts them. CoQ10 needs fat to get improved absorption. Add a teaspoon of coconut oil preferably but butter will also work. Drink the tea warm or hot. Footnotes: 1 Lass A Comparisons of Coenxyme Q bound to mitochondrial membrane proteins among different mammalian species. Free Radical Biology and Medicine 27 (1/2):220-26, 1999 2 Perlmutter David Brain Recovery.com pg 22, 55, 70-71, 91-2, 113-4, 144-5 © 2003 Dr. James Howenstine - All Rights Reserved

The fatal mistake people make in a clothing fire is to panic and run. Seconds count. The smothering action must be automatic. A trained, immediate response of STOP, DROP AND ROLL is extremely important. The running response occurs in all age groups, but it is prevalent in younger children. Scared children run to find water, they mistakenly think that only water can put out a fire and they run to find it. Everyone, especially children, must be taught to STOP, DROP AND ROLL. Parents and teachers should encourage children to practice by making a weekly game of it. Make sure that they understand when and where to use this technique. STOP, DROP AND ROLL ......excerpt from my daughters "Sparky the fire dog" fact sheet handed out at school. Cary

I was thinking if we could find an email address for the American Cancer Society, the whole board could write them and explain how this article, that is based on a very small group of patients is going to have a tremendous negative effect on cancer patients as a whole. Can you imagine how optimistic people are going to be treated at their future appointments. Some people are just going to "give up" when the doctor tells/shows them the article. Maybe someone can post a link to this thread in General so we can get more people involved. Cary

I find the article pretty strange also. I looked into it a bit more and it seems the American Cancer Society is having this study published in its Journal called "Cancer" Interdisciplinary International Journal of the American Cancer Society. The article is about 1/4 of the way down and is to be released in "print" on March 15 2004. http://jws-edck.wiley.com:8090/Cancer/N ... e?OpenView Cary

I converted it into a tiny url. I love that website. http://tinyurl.com/oxgz Cary

Cathy posted information about a laser treatment for lung cancer that's being preformed in Detroit. Here is the thread. http://www.buy2k.net/lungcancersurvivor ... azer#29837 Cary

http://www.nature.com/nsu/040202/040202-10.html Genetic advance could put healthier eggs and meat on supermarket shelves. 5 February 2004 MICHAEL HOPKIN Geneticists have engineered a mouse strain to produce omega-3 fatty acids, compounds known to help prevent heart disease in humans. If the feat can be transferred to livestock animals, they could be made to produce healthier eggs, milk and meat. The mice use a gene called fat-1, from the roundworm Caenorhabditis elegans, to convert omega-6 fatty acids into the healthier omega-3 version, explains Jing Kang of Harvard Medical School in Boston, who led the study1. Mammals can't ordinarily do this. Nutritionists recommend a diet with plenty of omega-3 compounds. But Western diets contain about ten times more omega-6 fatty acids than omega-3 ones, says Philip Calder, who studies nutrition at the University of Southampton, UK. "Most experts agree the ratio should be less than this," he says. A healthier diet can be achieved by cutting down on omega-6-rich margarine and cooking oil, and eating more flaxseed, soybeans or oily fish such as salmon. But this advice is often difficult to follow: many processed foods are loaded with omega-6 fats, and a recent cancer scare has made consumers wary of farmed salmon. Another alternative is to take dietary supplements such as fish-oil capsules. "But not everyone wants to take supplements - they want to eat food," says Kang. If farm animals can make these compounds themselves, he suggests, it may offer a way of bumping up people's omega-3 intake without a lifestyle overhaul. Many farmers already feed their chickens with ground-up fish to create omega-3-rich 'designer' eggs, but this is costly and time-consuming. Kang's transgenic method could offer a simpler route to the same goal, he suggests. "We are very confident we can do the same thing in livestock," he says. "I think it's an attractive idea." Perverse approach Not everyone agrees, however. "It's a perverse approach to the problem," says Sue Mayer of Genewatch, a UK group that campaigns against the spread of genetic engineering. She argues that the set-up costs to develop the project would be extremely expensive, and the process could be harmful to livestock. There is a high mortality rate for animals used by researchers to create transgenic breeds What's more, we don't understand the long-term effects of genetic engineering on animals, Mayer argues. But Kang's team insists that the transgenic mice are healthy. Researchers should make sure the mice don't suffer long-term health problems before attempting to transfer the technology to any other species, says Donald Jump, a physiologist at Michigan State University in East Lansing. "We need to do an evaluation in mice before we march forward," he argues. But the idea shows promise, Jump concedes. "In a perfect world, if you could get animals to make omega-3 fatty acids, it would be very beneficial." References Kang, J. X., Wang, J., Wu, L. & Kang, Z. B. Fat-1 mice convert n-6 to n-3 fatty acids. Nature, 427, 504, (2004). |Article| © Nature News Service / Macmillan Magazines Ltd 2004

I have seen this story on the internet for years and never put 2 and 2 together. Cary A man from Baraboo, Wisconsin, went to Tijuana, Mexico, to do some vacationing. As any visitor to this border town knows, the streets near the shopping areas are populated with stray dogs. The man took pity on one little stray and offered it a few bites of his lunch, after which it followed him around for the rest of the afternoon. When it came time to return home, the man had become so attached to his little friend that he couldn't bear to leave him behind. Knowing that it was illegal to bring a dog across the international border, he hid the dog in his carry-on luggage and managed to pass through the customs at the airport without incident. After arriving home, he gave the dog a bath, brushed his fur, then retired for the night with his newfound pet curled up at the foot of his bed. When he awoke the next morning, the man noticed that there was an oozing mucus around the dog's eyes and a slight foaming at the mouth. Afraid that the dog might be sick, he rushed him to a nearby veterinarian and returned home to await word on his pet's condition. The call soon came. "I have just one question," said the vet. "Where did you get this dog?" The man didn't want to get into trouble, so he told the vet that he had found the dog running loose in the street near his home in Baraboo. But the vet didn't buy it. "You did not find this dog in Baraboo. Where did you get the dog?" The man nervously admitted having brought the dog from Tijuana. "But tell me, doctor," he said. "What is wrong with my dog?" His reply was brief and to the point. "First of all, it's not a dog -- it's a Mexican sewer rat and second, it has hyperthyroidism.

Anticancer Res. 1999 Nov-Dec;19(6C):5583-6. (Abstract) Increased survival in brain metastatic patients treated with stereotactic radiotherapy, omega three fatty acids and bioflavonoids Gramaglia A, Loi GF, Mongioj V, Baronzio GF National Cancer Institute, Milan, Italy. Stereotactic radiotherapy represents a method to effectively treat brain metastases with high precision and with high doses. Few acute toxicities are associated with stereotactic radiotherapy, however delayed reactions may occur and after six months, 20% of patients can develop radionecrosis. To avoid this adverse effect, in patients with metastases localized in critical brain areas, a supplementation of Omega three fatty acids and bioflavonoids has been used. At the end of 1997, we initiated a series of retrospective studies to test the efficacy of stereotactic radiotherapy on 405 patients, and the prognostic importance on survival of various variables among which this type of supplementation. From the comparison of various survival curves with the Cox multivariate analysis, it emerged that the patients using this supplementation had a decreased risk ratio and an improvement in survival time. A decreased number of radionecrosis was noted. We suggest their use as radioprotectors. PMID: 10697622 [PubMed - indexed for MEDLINE] Source: http://www.ncbi.nlm.nih.gov/entrez/quer ... t=Abstract

This research indicates that maitake actually increases VEGF, which would be a negative thing for cancer patients. I don't know if the immune response outweighs the risk for increased angiogenesis/migration(mets)though. Cary Cancer Lett. 2001 Oct 30;172(2):193-8 Effects of maitake (Grifola frondosa) D-Fraction on the carcinoma angiogenesis. Matsui K, Kodama N, Nanba H. Department of Microbial chemistry, Kobe Pharmaceutical University, 19- 1, Motoyama-kitamachi 4-chome, Higashinada-ku, 658-8558, Kobe, Japan. We have reported that D-Fraction extracted from maitake (Grifola frondosa), activates immune competent cells, and indicates anti-tumor activities. The D-Fraction was observed to induce angiogenesis in vivo and to enhance the proliferation capability and migration capability of human vascular endothelial cell in vitro. The D- Fraction also increased plasma vascular endothelial growth factor (VEGF) concentration significantly. Also VEGF and TNF-alpha production by the activated peritoneal macrophages were enhanced. These results suggest that the anti-tumor activity of the D-Fraction is not only associated with the activation of the immuno-competent cells but also possibly related to the carcinoma angiogenesis induction. PMID: 11566496

This subject came up a few weeks ago, I believe we are still waiting for the company to reply to teresag's email. Here is a link to that thread. http://www.buy2k.net/lungcancersurvivor ... php?t=5207 Cary

**Edit for above post** I had originally thought this thread was on Cheryl's enemas, my fault. Please substitute all references pertaining to the word "butt" with "arm". I was not implying that Rich actually injects raw "*ss" meat up his butt, I was describing a hypothetical situation where Rich was injecting raw "*ss" meat up his butt by way of enema. I didn't mean to blindside Rich with my original post, I can see how he and others may have misunderstood the point of my message. Please accept my apologies. Cary

Rich, I don't think anyone will care if you eat the *ss of a donkey, but if you were to inject it up your butt that may be a problem. I'm not a doctor but putting raw "*ss" meat up your butt might be dangerous, but we won't discuss these side effects here. I don't know about everyone else, but if and when the day comes and I decide to put something up my butt(insert your joke here), I would like to know what side effects I could expect. In my experiences with people, they usually tend to discuss side effects, this doesn't mean they are dwelling on them. I believe they are just overly concerned about protecting their butts before beginning a new type of therapy. Cary

[/qoute].....If your game is not over, all of us, everywhere, everybody who finds themselves battling the "destructive evil" we can do it together and not let it take from us our good relationships with each other, our lauphter and especially our spirits. the bright light that is within all of us. We will all get tired and mad, we will all shed many tears, but working together using message boards and sharing information we can help each other win the game......... Thank you!! xoxo Chani Why would we not want someone with this attitude on the board. Are we not all in the same basic fight? Do we not want acceptance? Who better to accept us than other cancer patients and caregivers. There is no other cancer support group on the internet like this one, If ACOR is so great why are we all here on LCSC. I think she'll be able to remember that the treatments people are receiving here are not the same ones her father is going to receive. Everyone needs comfort and support and I for one am happy she is here. Cary

This is a Dave's original "Chihuahua" avatar from last year, as you can see it's from a different camera angle and removes all doubt. http://www.francoamericannovelty.com/Im ... /18077.jpg

Ry, Are you talking about those fat cells again LOL. I'm posting a nice sweet article just for you. Enjoy http://tinyurl.com/3czmy Cary

This isn't to positive, but hopefully things are changing. Lung cancer is mentioned in paragraph 5. Cary http://www.nytimes.com/2004/01/23/health/23CANC.html Study Devalues a Popular Idea on Evaluating Medical Trials By GINA KOLATA Published: January 23, 2004 new report by researchers at the Dana-Farber Cancer Institute in Boston has found little evidence to support a widely held belief about clinical trials of experimental cancer treatments: that patients who enroll in them fare better than those who do not. "There may be a difference in outcomes, but to our view it hasn't been shown," said Dr. Steven Joffe, a pediatric cancer specialist at Dana-Farber and an author of the paper, which is being published today in the British journal Lancet Many cancer specialists have long assumed that being in a clinical trial leads to a better outcome. The studies often take place at leading cancer centers, where care tends to be of the highest quality. In a clinical trial, patients are usually assigned randomly to receive an experimental therapy or the standard one. Dr. Joffe said he and his colleagues undertook the study after hearing "prominent folks in the field" speaking out at medical meetings "and saying that being in a trial contributes to better outcomes." The common view, he said, was that "extra care, extra monitoring, extra attention leads to better outcomes," regardless of whether the patients receive the standard therapy or the experimental one. Searching the medical literature, the investigators found two dozen published studies that compared outcomes among cancer patients who enrolled in a clinical trial to those who did not. The data were not ideal, Dr. Joffe said, because cancer patients who took part in the trials were often hard to compare with those who did not; patients in the trial group might be younger and healthier, for example. But over all there was no evidence that they had better outcomes. The only exceptions came in a few studies of children and of adults with blood cancers. "Those are settings where a lot of cancers are more treatment-responsive, so treatment makes more of a difference," Dr. Joffe said. Also, the pediatric studies tended to be from years when researchers were making enormous strides in treatment and when those patients getting the experimental treatments tended to do much better. "If you happened to catch a disease at one of those moments," Dr. Joffe explained, "then your study would show a difference." But for other cancers, like those of breast and lung, the study found no such effects. That may be because when experimental treatments helped in these diseases, their benefits have been modest, he said, adding, "To assume that being in a trial would add a quantum leap is not realistic." Cancer experts not connected with the Dana-Farber study said they found it convincing. "I'm in general accepting of the conclusion" that there is no good evidence that being in a trial improves patients' outcomes, said Dr. Harmon Eyre, chief medical officer of the American Cancer Society. "We always need to keep ourselves honest about the communication between doctors and patients. You can't overpromise." Dr. Archie Bleyer, director of community oncology and a professor of pediatrics at the M. D. Anderson Cancer Center in Houston, said the paper tended to confirm his suspicions about the overall benefits of clinical trials, but he noted that it did not ask whether quality of life might be better for patients in such trials. "The premise is, with the greater care in a trial, the quality of survival is likely to be better," Dr. Bleyer said. Rebecca Dresser, who teaches law and medical ethics at Washington University, said a crucial lesson of the findings was the importance of helping patients understand the purpose of clinical trials. "You want people to understand that the primary aim is to produce knowledge to benefit people in the future," Dr. Dresser said. "The notion that trials are done to benefit individual participants is incorrect." "I don't want to say I'm antiresearch," she went on. "But we really want people in studies to understand what it is they are doing." Dr. Joffe said he expected that patients would be willing to enroll in trials even if without the message that they would do better simply by being in one. They will even enroll their children. "My personal experience is that no one is going to sacrifice their child for the purpose of research, and we don't ask that," he said. "We say, `We think it is a reasonable thing to do for your child's care.' "

Karma, Thanks for posting the article. When are we going to see the dancing banana again? Cary

The treatments John mentions are a great combination and produce some amazing results. The problem is trying to obtain these treatments for Lung cancer, that's the biggest hurdle. First you have to locate the info, then when you call and finally talk to a Oncologist who's performing a "cocktail" treatment, they are unwilling to perform the "cocktails" on lung cancer patients.( a "cocktail" is multiple treatments combined usually pretty non-toxic, as John described in his post above) The only place I have heard of doing "cocktail" treatments for Lung Cancer is Block Medical(Illinois) - They also said they do diminished chemo( same as Metronomic ) and also Chronol Therapy - which is chemo. given thru an implanted pump based on the body's sarcadiam rhythms, That means that the chemo is given when it has its highest effect on the cancers cells and lowest effect on the good cells like nerve endings i.e.. neuropathy. ( I had read an article about an oncologist who was administering chemo to himself 24 hours a day at very low doses and it worked with no ill effects. So this sounds pretty good). Block Med. has said that you would have to go back and forth to every 3 -4 weeks to fill the pump up, which is the down side. The pump has been having good results. There is a new oral taxane, IDN 5390, made by an Italian company - Indena. " This opens up the possibility of "metronomic " chemotherapy with IDN 5390, which put simply means smaller and less toxic doses over a longer treatment time. " Idena is currently upgrading their production facility to accommodate the increased demand that full scale clinical trials are going to produce. There isn't going to be any new trials with this promising new drug for at least 1-2 years www.advancesinlifescience.com/news_75.htm My dad has been basically doing a modified "cocktail" treatment since Dec 2002 and he's had really good results. He currently is doing "multiple anti-angiogenesis/Cox-2 therapies" but we have done the chemo and radiation part in the last year. I don't believe any single agent is going to cure cancer, in the long run you are going to be hearing more and more of combination therapies, that allow cancer to be managed as a chronic disease(like diabetes). Cary

Oh, I didn't realize they were the same stories at first. I thought we would be able to compare notes on the 2 different studies/treatments. It's pretty amazing that a news station even ran this story, maybe this is just the beginning of the recognition that Lung Cancer so much deserves. Debi you should feel proud to live in a location that is recognizing Lung Cancer, maybe the letters we all sent are making a difference. Keep us appraised of the situation/further developments in Oklahoma. Cary

http://www.buy2k.net/lungcancersurvivor ... php?t=4589

I think Hebbie explained it best in her post(link). I have seen and heard of others getting the same type of results. As far as price goes, he does have a financial assistance program available for those individuals that are unable to afford his testing(2,500). http://www.buy2k.net/lungcancersurvivor ... php?t=4428 Cary