yellowbow

Thank you for answering. We are with Hospice now. I could not get any help,so I had to call them. John did not go to the ER last night. He did start to take the treament and it helped. The EMT's did come they could not understand why the Hospice would kick us out. But I guess Blue Cross and Blue Sheild couln't pay becaue Hospice has it tied up! What a cro888? So I gave John treament back to back and than about 15 mins. later of Morphine Sulfate put in nebulizer . Plus I gave John a half hour later 1 Xanax 1mg MSIR 15mg I guess I have to keep John well druged

Are there rules the same everywhere? Does anyone know what they are? I know when you call them in no treament it stops except for comfort. But if you want to call DR. you have to call them first, than they call DR. If you want to go to ER you have to call them and if you go to ER, they revoke you. And if you go back you have to start all over with them? Is this right? Thanks for any infro.

Prayers are going your way. A big tight hug! for you and family.

I know how you feel. I was like this why so long for getting test done and than treaments takeing so long to start. Wanting John to get them and getting better and on with life! Well it donesn't work that way. Some days I find myself wanting to get off this crazey ride,wake up from bad dream. That song don't know name but, for the longest time it would come to mind ( smile thro your heart is breaking). So true with this cancer.

Thank you all for answering this very personal question. I was wondering this my self as I came to this site tonight. I guess because at the bank tday a teller asked how John was doing. She asked me if Hospice told me what could happen. I told her no. They Social worker asked me if I had a funeral home. That when the time came I could call them and not 911. John wants to pass here. This was very hard calling the funeral home. I did put it off for days. But they said you can have payment plans. And you know my parents have done the funeral planing for them selfs years ago but my mother's mother did this. My heart go's out to everyone here and hope we all find comfort by talking on the board. And Randy I have tried that blanket out of dryer by aaccident. Forgot I left it in dryer at night a litter damp so gave it a whill and boy did it feel good!

Thank you all for answering. They have givening us a bed, pottie, wheel chair,etc. But John can't use some of these things. Now he can't really even slide on the potty. Has to be letfed up and helped down. I can no longer help him up. John is 260 lbs,I am 98lbs. They have told me about some comminity service but have'nt heard anything yet. Were are out in the boonies and Don't have much. They don't even have a male nurse or orderly. They call my insurance co. telling about what is going on and they are trying to do something. But John keeps asking for someone to help him walk. But he can't walk and I just don't have the heart to tell him. I already told him he can't get out of bed. Yea that social worker should help me fill this out. Maybe Tuesday she can help me. I 'm trying to run the truck I don't know if they will think I'm working or not. I have a driver on it, he and fuel take just about all the money. The nurse did tell me the Dr. told her the tumer in to large in his brain. All this is one big nightmare. It has been false hope all along. Or did we expect too much.All John wanted was 2 more years. Thank you all again. Maybe tomorrow will bring better news and something will happen for the good. carol

Dr. told nurse ( Hospice ) there is nothing they can do for John. John can't stand him self. I'm haveing a hard time to get him on the pot. He went done on me at 3 in the morning the other morning. Couldn't get him up and had to call hospice and they finelly came. I don't know what to do. He doen't want to go to nursing home, wants to get a nurse but don't have money for that. Than he is worried he can't do anything. Doesn't want to live like that. Can't get any help. Social worker here today and she couldn't help me. What are they here for? Didn't remmber to bring paper for some kind of aid but had paper to get money for them, wanting to know are financial assessment. Sorry to vent but trying to get truck reg. in OK and running into road blocks and wondering if keeping truck running will help. It takes alot to run this truck. I needed to be 3 people today. thanks for reading Hope New Year brings better news for everyone!

So sorry for your loss. I'll pray for you and your family.

So sorry Gwen. My symathy to you and your family.

Hope your Mom is feeling better. Sending prayers and Huggs.

LOL This did bring a smile . I brought back the 1st time I had tequila. DH had me try it. They were happier times. Thanks, I needed that.

I have ordered the car magnets, pin for lung cancer and there 2006 tree orement. Very nice.

Oh Gwen,so sorry for your dad and you and family for this pain. Ipray that God wrap's his arms around you's all and takes the pain away. In my prayers

We can't go for SSI cause we still have the big truck. I did find a driver for it,but don't get much from that. May have to let it go. Alot going on with that now and takes alot to keep it going. But need something answered if you know Karen or amyone. John is having pain. He is on Fentanyl patch 50 Put another one on and have given 2 percocet 5-325mg and 2 morphine sul 15mg He still feels pain. This last morphine is suppose to be fast acting. John is a big guy 6'4" 150 w He said I won't be able to take care of him pretty soon. The Dr say's John is too week for Chemo or surgury. Praying for a turn around

I know where you are at. Today when John went down in shower. He told me it just wasn't worth it. I can't do anything. But I don't want to let go! We had high hopes but ,now it is all falling apart. I'm praying. Best to you and DH

John is in stage 1V nsclc. met to brain. Did have brain surgery. Said got it all and than radation. Now back again. It did srink in lung back in Oct. But John is in pain now on the other side. And didn't get to go for test today. He went down in shower, not hurt his self. They got John up and into bed and gave him ox. So now they are saying he might be to sick for treament.

Thank you all for answering. and for link. Hospice, is really helpful. They are so kind. It was the hardest thing to call them. I felt like we were giving up. I keep thinking how last Christmas was . Went back to see my parents,cause John said they are getting old and Mother having troubles. Never knowing what would happen to my John. Merry Christmas to all of you's and love and enjoy like it is your best ever! God Bless

Going for neck and spine scan tomorrow. The surgery that was suppose to be done Dec 4th never happened. Maybe good it didn't, People seem to think it was evpermemal! So it has been a very trying week. Couldn't find anyone to help take John for testing last week, so called in Hospice. They got us a bed and things and helping me get him to test. Them see if they stay or not. Insurance will pay for 180 days. But I have the deduckable starting again in Jan. Worry about paying that' still oue from last. Trying to run the truckbut, not making money. Don't know if I should still try to keep it going or not. Just to many things. If I didn't have to worry about this money thing. What happens If you can't keep up the Health Ins. payments?

Just so sorry for your loss. I will pray for you.

I'm so sorry to read about your dad. But don't give up. It's a shock. I know my husband has nsclc,mes to brain. We cried, and them decided to fight. I know it is hard. I put my tree up the other day and these icecle that hang look like tears. My tree is crying. But you have toenjoy your time together and give your dad hope. He can have many more years, nobody knows. But please enjoy your time together. Like the saying go's live each day as your last. This way you really get the most out of life! I will pray for you's all Bless Carol

I don't know if we should go back to 1st Dr. Back in Oct. fround cancer back in brain in Husband. Went to this DR ref. from OC DR Well he said sugurey again not radation. Ok set date. Well John is starting to have styems. But day before turkey day Dr office calls and cancels. Won't be back for 2 week! Hospital calls 5 days later and want infro on John for surgery. They never called and canceled. So I called where we go for chemo and today they take a chest exary and tommorw a MRI. Than next Wed we go and see them. If anything different, may not wait for this DR and sent us to NC. Now I'm thinking of calling the 1st DR that did the surgery. I wanted to call him when we first found out it came back. But John didn't want too. I should say this DR that went away said he could get rid of it and not come back by putting a can't think of word but it will come from a kdiver. Could be true? I'm so upset with this turn of events. But I know I'm going to call that 1st Dr tomorrow. I can't stand seeing John like this the last 3 days have been really bad. I'ts like starting all over again. Why can't it work the 1st time!? Sorry I'm venting but so many other things have happened lately. You wonder if you are doing wright thing or going the wright way. Thanks for and suggestion or infro Bless all carol

Hi I don't know if this can help or not. My husban d has nsclc and they wouldn't give him Avistan because oainf bleeding. Cause he had surgery on this brain that is where the cancer went too. He had to go back on the steroids for swelling and he would get sick. The darn cancer came back to the brain. H e will be going to surgery again on Dec. 4th. The Dr said he will get it all. Than he will have to get chemo again. Maybe it will take all the cancer away. I will pray for your sister and family. Never give up. carol

Congratulations! Best to all! The pictures are really nice.

My neighbor pasted Yesterday (Oct.31,2006). She had sclc and fought for 2 years. A young light put out at 45 . Please pray for her family. carol

The other week I got on QVC there community forman. THe one that any thing go ( with in Reason) I talked about this and haveing a month that just told about all kinds of cancer to bring everyone to know about . And than told about lung cancer. I had quite a few people reply and agree. Also told them about this site. And helped a woman decide to call a freind who has lung cancer,she was afaired too ,but she called her and felt good about that and now they are going to me. The Q is going to have a shoes on sale WEDNESDAY 18 at 7pm eastern time. It comes from NY Well Jane Trasey host it I'm going to email her and ask if she could mention lung cancer. Anyone can email her. Just go to QVC.com look for host and email her. Her sister had BC and her mother died from bc. But maybe if we say in away about lc she will say something. Elton John was on the Q last Friday. He said he would raise mony for any group. Too bad we couldn't get him. Prayers to all