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Alisa

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Everything posted by Alisa

  1. Alisa

    New York bound

    I know of a really good Family Style Italian Restaurant on 55th & 2nd Avenue. Not the same as going to Times Square of Little Italy as far as scenery goes, but it's a really good, moderately priced Restaurant - called Angelo's Restaurant Pizzeria. Also, Chinatown is a lot of fun with great, inexpensive restaurants.
  2. http://www.upi.com/HealthBusiness/view. ... 1832-3434r Researchers devise lung cancer antibody United Press International - USA AMHERST, Mass., April 11 (UPI) -- Researchers said Tuesday they have developed a lung cancer antibody that appears to kill deadly cells, but spare healthy ... Researchers devise lung cancer antibody United Press International - USA AMHERST, Mass., April 11 (UPI) -- Researchers said Tuesday they have developed a lung cancer antibody that appears to kill deadly cells, but spare healthy ...
  3. Alisa

    New York bound

    You will be right near my office! I'm sure you will be busy, but just in case, here's my cell phone no. - XXX-XXX-XXXX. This is a great opportunity to help with lung cancer awareness. Enjoy New York!!!
  4. Randy, you mentioned you would PM any research you may come across. Could you please post it to the group so we all can benefit? If not, maybe you can copy me on the PM. Thanks and take care, Alisa
  5. Carleen, I ached through every word you wrote. I just want you to know I am praying for you and Keith also. As for IVF, I had my twins 16 years ago, and I wasn't covered by insurance. I just used up all my credit cards and cash advances and everything else. My husband (now ex-husband) was a student at the time and we had no money, but we had credit cards! I maxed out all my cards, because it took 4 in vitro's before it took. I am still paying off my credit cards, but that's OK. Anyway, I know you are so overwhelmed right now, but keep this in mind. When you are feeling better, maybe you can get back into the IVF saddle and worry about the debt later (I know this may not be the best advice, but I also know the reality of the IVF expense). Love and hope, Alisa
  6. Right, I understand all that. But what about the instances where the test said a treatment would not be effective, but in fact, was effective and patients showed great response and/or are NED after the same treatment the test said would be ineffective? That's all I meant when I said in my opinion, I think it pays to wait until it is more accurate but I would never 100% rule anything out. But I think this is a GREAT START and I am very excited to see how this all develops. Thanks you so much for all the information.
  7. So, with all this information, it still seems to me that chemo sensitivity testing is a waste at this time. But I think we've come far in this area and hopefully they will perfect the test soon. And when they do, I bet we, on this board, will be the first to know.
  8. I read an article written by a cancer patient that had this testing done and it showed she would not respond to a particular chemo cocktail. She went ahead with it anyway, cause it was the protocol treatment at her hospital and she had full response. Had she listened to the sensitivity test, she would not have used this treatment. She is currently NED. I don't remember all the details, but I think the article was posted here at lchelp.
  9. I have to say that the three oncs that I have spoken to about this all say the same thing that Rob is saying. But I think they are making progress in that field ....
  10. Alisa

    Warren is gone

    Donna, I am so sorry for your loss. I know you hated to post that message, but it was a beautiful, honest message anyway, and it brought tears to my eyes. Please take care.
  11. Has anyone heard of Zeolite? My girlfriend (another cancer survivor) swears by it, but my herbologist told me it's garbage. I'm afraid to take it, but I'm afraid to miss something promising also. Thanks for any input.
  12. Bob, please accept my condolences and prayers. I was on a few boards with Fay and am shocked and saddened by the news.
  13. Thank you, Connie. I'm so anxioux about my nodules while my doctors are not. I'm thankful for the studies they are doing, but the conclusion seems so far away.
  14. How many years do you think it takes to know if the "nodule" being watched is scar tissue or not? I've been watched for about 2 years, no change. My drs. think it's scar tissue but of course can't guarantee.
  15. Alisa

    Brian K Osberg

    I am so sorry to hear this. Please accept my thoughts and prayers. Love, Alisa
  16. I have been going through the same thing for the last 2 years! I have a 7mm nodule right near where my right middle lobe was removed. I get a CT scan and/or PET about every 6 months. Nothing lights up (but may be too small) and there has been no change in years. My oncologist and the radiologists all feel it is scar tissue. So, I remain on "watch and see" status. Thanks for starting this thread, Connie! I'm sure there's a bunch of us with these "innocent" nodules.
  17. Connie, my love and prayers are on the way to you now!!! Have a Happy Holiday and enjoy the New Year. I look forward to your post-surgery message. Love, Alisa
  18. Alisa

    Phooey

    I'm sorry to hear the side effects are strong with this combo, but I read (I think on PubMed) that this 3-chemo cocktail has shown great success. At least there's a strong chance for some light at the end of this tunnel .... Love, Alisa
  19. Leslie, I'm so happy it is tolerable for you! I look forward to more upbeat posts from you. Enjoy your holidays!! Love, Alisa
  20. Hey, Leslie, you are one tough cookie! I'm glad to hear you still have fight in you. That's half the battle, so hang in there! I will be praying for you during this hurdle.
  21. Hi. It's Alisa. I have never been to Germany for treatment nor do I know anyone who did. Dr. Raymond Chang is my specialist and I know he has sent people to Germany for some sort of dendric cell thing (not sure of correct name). But I personally don't know about it. Dr. Chang's website is www.meridianmedical.org and his telephone no. is 212-683-1221. Take care.
  22. That is great news, Leslie!!! Very happy to share it with you.
  23. Heather, I have a couple of nodules in the same lung where my lobe was removed that they have been watching for 2 years now. They are too small to light up on PET and 2 small to biopsy. All of my doctors and the radiologist think it's scar tissue and just plain benign type nodules that anyone can get. But of course with a lung cancer history, it makes me nervous anyway. Because of them, I still get scanned every 6 months. As for now, all my doctors consider me NED, but I'm still cautious. Fondly, Alisa
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