Jump to content

mhutch1366

Members
 View Profile  See their activity

  • Posts

    2,646

  • Joined

  • Last visited

  • Days Won

    1

 Content Type 

Posts posted by mhutch1366

    What do you know about Neuronton?

    in GENERAL

    Posted

    Just wanted to clear up --

    I said Neurotontin is serious medicine for NERVE pain, as opposed to percocet or darvocet, which are good 4-6 hours and taken as needed.

    I has to find the proper balance in dosage, I am good at 900 mg a day, I can't take 1800 per day.

    I take morphine for the pain, Vioxx for the pain due to inflammation, and neurontin for the pain from the c6? nerve pain.

    I mention serious, because my dad who is suffering froma pinched nerve in hs back started to take it (100 mg 3x day) at my recommendation, and thefirst dose had him seeing things almost. I think he thought it was INSTEAD of the darvocet. I told him again it was long term medicine for serious pain. I think he understands now. I originally had it prescrived for compression of the shoulder trunk nerve, and it does work.

    so I still believe it's serious medication. IT does work.

    JudyB, good luck. Back/nerve pain sucks.

    XOXOXOX

    MaryAnn

    Are you taking CISPLATIN ?

    in GENERAL

    Posted

    Donna,

    I know cisplatin is rough, I believe the amifosdine /ethyol also protected me from the worst of the neuropathy as well as the hearing loss and middle ear damage.

    Just goes to show, every year, every MONTH, progress is being made on some front in the war against cancer.

    I'm glad it isn't fifty years ago. My kids would be motherless.

    MaryAnn

    PET and Brain MRI tomorrow

    in MEMBER UPDATES

    Posted

    Sounds like a wonderful response!!

    The diagnostic tests are nothing to get upset about, truly, I have had dozens of MRIs and CTs. They never did any PETs on me, and so they won't start now.

    My tumor shrank, and when they took it out, it was DEAD. And I don't think it shrank as much as your mom's sounds like it did.

    Try not to worry ahead, it doesn't help.

    Prayers for your mom's surgery next week.

    XOXOXOX

    MaryAnn

    Prayers Needed

    in HOPE

    Posted

    Denise,

    Prayers going out for your mom.

    I had days like that too, darned emotional rollercoaster.

    I hope she can relax enough to enjoy the wedding, or else maybe she'd be more comfortable staying home?

    She can pm me anytime if she wants to talk, I remember too well what it was like.

    XOXOXOX

    MaryAnn

    LAST RADIATION TREATMENTE TODAY

    in HOPE

    Posted

    Congratulations on finishing the Radiation , and also getting rid of the pesky Percoset.

    Enjoy your break. Eat well, rest up, relax, enjoy the small things.

    I know I too am grateful to the support and prayers I receive from this board and "the family" here.

    XOXOX

    MaryAnn

    Need to vent

    in GENERAL

    Posted

    Heather,

    People who say something about my weight get the "You really don't want to go on the fightforyourlifeagainst cancer diet, do you? " (I also have an obvious disfigurement from losing the collarbone etc so I'm kinda lopsided if you look). That stops that right in its tracks.

    I don't particularly care if people know about it.

    I will expand on that, if questioned, and tell them I liked that thirty pounds, I earned it over twenty years and giving birth to two children, and I'd be very happy to have it back, thank you very much.

    All this with a grin.

    You do have a terrific figure. Why not be a cancer advocate?

    Eitherway, life is way too short to let people irritate you with stuff like that. So choose to not be irritated.

    XOXOX

    MaryAnn

    What do you know about Neuronton?

    in GENERAL

    Posted

    Neurontin is a pain medication for long term use, needs to be taken regularly, also/originally used for seizures.

    NIH put me on it for my shoulder when I started getting nerve compression and severe pain that broke through the morphine.

    They wanted me to take 900 mg twice a day, but I could only handle 300 mg am and 600 mg pm. This stuff had me walking into walls. Needs to be taken religiously regularly, otherwise you have to build up the blood levels and pain relief from scratch.

    Serious medication, best talk to a neurologist who is CURRENT on it.

    A separate class of pain relief from Vioxx/celebrex and morphine/oxycontin/darvocette. I take neurontin, vioxx and extended relief morphine on a daily basis to cope with my pain.

    Hang in there, Judy. There's no reason to live with pain today.

    If you haven't already tried Vioxx or/and Celebrex, check them out first, they're NSAIDs. If one doesn't work, try the other, Vioxx didn't work for my ex but Celebrex did.

    I only had to start on the neurontin after the prosthetic chest wall started slipping and the scoliosis got worse.

    Any more questions, pm me and I'd be glad to talk more...

    XOXOX

    MaryAnn

    I'm Dixie, but just barely.....

    in JUST FOR FUN

    Posted

    I got a 55% Dixie score.... based on the responses from being raised in New England, with the exception of y'all.... I did a winter in New Orleans so I know the difference between y'all and all y'all. I don't credit living the last 20 yrs in Maryland with much. Some of the answers were from the midwest or the Great Lakes region (huh?).

    Think that maybe that's cause 55% (or so ) of the US is South of the Mason Dixon line?

    I'm thinking about it..... :roll:

    MaryAnn

    Has anyone done stem-cell transplant?

    in GENERAL

    Posted

    That is a fairly normal way to proceed for multiple myloma, and non-hodgkins lymphoma and other blood cancers, but I didn't know that they were considering it for solid type tumors.

    Basically you undergo whole body radiation and kill off all your bone marrow and other growing cells. That means living in a sterile environment in the hospital for about 6 weeks... and then the injection of stem cells... and then waiting until they seed and begin to regenerate your blood...

    There's plenty of people that have had the procedure, but for other reasons, so the procedure itself is not experimental.

    If that's the way you decide to go, good luck with it. It is a serious investment of time.

    Prayers going out for you.

    XOXOXOX

    MaryAnn

    About to have the port flushed.....

    in GENERAL

    Posted

    Hey, Fay.

    Didn't even know that could happen! I'll lend you my oncologist's nurses, the best in the States.

    The worst thing port flushing does to me is give me a salty throat.

    Some ducks have all the luck. :)

    Toes crossed for an uneventful port flush.

    XOXOX

    MaryAnn

    Moments of Light

    in GENERAL

    Posted

    Carleen,

    I am honored to belong to this group of people, cut out from the populace by a disease diagnosis but then given such a rare gift... to be able to see moment to moment, the beauty of the small things.

    To quote something Dave W wrote a while ago,

    ""You so very eloquently put how I feel daily. It's a humbling experience to be given such a gift, even at this terrible price! God Bless, Dave""

    Enjoy each day, Carleen, with its joys and love...

    XOXOXOX

    MaryAnn

    I've been in the hospital...

    in NSCLC GROUP

    Posted

    TAnn,

    I'm glad you're near the end of the series... things will get better. Congratulations on tumor reduction! That's really great to see this soon.

    The only way is through it and out the other side, so hang in there, and soon it will be just another postscript to the cancer war you're waging... we're all waging.

    Hang tough.

    XOXOX

    MaryAnn

    When you were younger, did you ever....

    in JUST FOR FUN

    Posted

    Some ducks have all the luck, Becky.

    For me, Boobs are a pre cancer memory......

    Last time I really had any I was still nursing Heidi, and she's 8.....

    Actually that's a good thing, because with the prosthetic chest wall, I have one pointing north and one pointing north west.......

    Good thing my surgeon was not especially a picasso fan, no telling what I'd look like today....

    :lol:

    CT today

    in MEMBER UPDATES

    Posted

    That was nice of them to anticipate your worry....

    Good news!! Congratulations, may you take many more of these little steps and one day find yourself waay out from diagnosis.

    Stay well.

    You are in my prayers, all of us are.

    XOXOXOX

    MaryAnn

×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.

  I accept