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mhutch1366

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Posts posted by mhutch1366

    I'm drowning too , prayers and advice needed

    in CAREGIVER RESOURCE CENTER

    Posted

    Dear ladies,

    None of you are pathetic because you feel stranded and overwhelmed.

    That you are doing so much with so little makes the magnitude of your achievements all that greater.

    We all have days where we would throw in the towel -- if we could find it.

    Point is, we generally all pick it up and get on with it. We are all doing the best we can under extraordinary circumstances.

    You are all in my heart, and in my prayers.

    XOXOXOX

    Love,

    MaryAnn

    I Win.....

    in NSCLC GROUP

    Posted

    Fay,

    What got me through was what at the time we called "Hutchitude".

    When my older daughter turned 14 I told her it was also her family legacy.

    In a nutshell, you got it.

    Take care, my friend.

    XOXOX

    MaryAnn

    JudyB update

    in GENERAL

    Posted

    Judy,

    Hope you're feeling great in no time. Seriously, slow and steady will get you there.

    Hope you have minimal problems with the steroids also. Nasty bit of work, those, even if medically they do work. Mentally very rough, roughest med I've ever taken.

    So feel better, and come talk to us again soonest.

    XOXOXOXOX

    MaryAnn

    Thanks, Rick, for your generosity...

    in GENERAL

    Posted

    I would like to thank Rick for 'gifting' me the ears flappin' in the wind bassett hound, after I remarked that I was glad to see him again, and that I had missed him. Truly a generous spirit!!

    And yes, I feel like that, the goofy grin with the ears flapping..... it's a truer avatar than you know, Rick.

    XOXOXOX

    MaryAnn

    Tbone or Tbone's Family

    in GENERAL

    Posted

    I don't think any of us would wish to do this over again, given a choice, even with the friends we've made here.

    But we don't have the choice. No sense wishing for different.

    What we can do is count the blessings we do have, and savor the moments that are good, and suspend the foreknowledge of this daXX disease. I choose this moment to be happy, to savor breathing, the love of my children, the satisfaction of a job I really like. What I can do something about, I will. Worrying never fixed anything, nor did anticipating. Tomorrow's cares will keep. I'll choose to deal with today, with the glass that's half full, and try to be good and remember everyone in my prayers.

    And I am glad if through the course of my bout with this disease I can help other folks out, get a few to quit smoking, dispense hugs as needed, shed a little light on an otherwise dark afternoon.

    Cancer is a part of my life, likely always will be. I have no choice about that. But it is NOT my whole life, NOT the focus of my life, and NOT going to win noway nohow. By proxy I can enjoy the family support that Tbone has, and the companionship that the married couples like Don and Lucie enjoy. Maybe someday....maybe not. But I choose to live life now, maybe more because of the da-- disease, because I KNOW I have that choice.

    Chin up, kid, and hang in there. It's all a matter of perspective.

    XOXOXOXOXOX

    MaryAnn

    Cancer has returned

    in NSCLC GROUP

    Posted

    Dear Grumpy,

    Well, you have to do what you have to do.

    I can respect that.

    That said, it's better to try and quit than not to try at all, if you don't KNOW that it's a problem.

    Self-fulfilling prophecies and all...

    XOXOXOXX

    MaryAnn

    Stress Test

    in JUST FOR FUN

    Posted

    Cute... Donna, real cute.

    Wait until I think of one... just dont' hold your breath....

    I love to laugh at em, but I forget em too fast to retell them.

    I may have to enlist the aid of the 8 year old....

    XOXOX

    MaryAnn

    (when cows fly... geesh.... )

    Pls pray I find the right words to tell my children

    in HOPE

    Posted

    Elaine,

    You'll feel much better once the air is clear, and this is all out in the air.

    Please don't beat up on yourself.

    Please also don't 'settle' for a doctor who won't give it less of a fight than you are willing to. Remember, you're paying him to work for you. If he won't work, find a doctor who will. There are plenty of therapies to try, and more in the chute every week.

    I believe, as my rad onc said, in 'guarded optimism'. Good phrase.

    Take one day at a time, put one foot in front of the other and don't forget to breathe... :)

    You could outlive me, and I'm not going anywhere, least not planning to.

    Hang tough,my friend.

    XOXOX

    MaryAnn

    Big Surgery Tomorrow

    in INTRODUCE YOURSELF!

    Posted

    Erin,

    It is not an easy surgery, nor is the recovery a piece of cake. BUT with persistence, you mom will get through it. It will hurt for a while, and there's those funny numb patches that don't seem to want to go away. Remember, if she seems grouchy, she's not having a lot of fun either. It is really important, I feel, that she do the arm limbering exercises as soon as the surgeon says she can, also, I found that occupational therapy in addition to physical therapy to be very useful. It helped me recover function that much quicker.

    With God's grace the tumors will be gone, and the reports from path will be good.

    I will certainly remember your mother in my prayers, as well as the rest of the family. I also pray that everything is straightforward and simple, and over sooner than you can say jackBquick!!

    XOXOX

    MaryAnn

    trying hard to survive

    in INTRODUCE YOURSELF!

    Posted

    Cindi,

    I wish you well. I am about your age, had similar serious radiation/chemo/surgery without the heart complications (had other complications earlier). It took me 7 months post surgery to get back to work, 11 months post diagnosis. I had pt for a year, also had other surgeries, then skin cancer on the tip of my nose. Hang in there, don't lose heart... your attitude to date has been terrific! :):)

    Please look into social security. Ask Norme (Norme, where are you?) about Social security disability benefits, she knows a lot. Sounds like that might be the best for the near future, even if it does take 6 months wait before it starts. I know my rounds with chemo, radiation, and surgery knocked the stuffing out of me. NOT FUN!!

    Your siblings might be in denial having already lost 2 siblings to this nasty disease.... as if not believing it doesn't make it so. I'm sorry, it sounds painful.

    Welcome, I'm glad you found us... Happy St. Patrick's Day!! :D

    XOXOX

    MaryAnn

    Big Surgery Tomorrow

    in INTRODUCE YOURSELF!

    Posted

    Erin,

    It is not an easy surgery, nor is the recovery a piece of cake. BUT with persistence, you mom will get through it. It will hurt for a while, and there's those funny numb patches that don't seem to want to go away. Remember, if she seems grouchy, she's not having a lot of fun either. It is really important, I feel, that she do the arm limbering exercises as soon as the surgeon says she can, also, I found that occupational therapy in addition to physical therapy to be very useful. It helped me recover function that much quicker.

    With God's grace the tumors will be gone, and the reports from path will be good.

    I will certainly remember your mother in my prayers, as well as the rest of the family. I also pray that everything is straightforward and simple, and over sooner than you can say jackBquick!!

    XOXOX

    MaryAnn

    Jack Had a Heart Attack!

    in GENERAL

    Posted

    Good grief, girl, what a roller coaster ride just getting home!!

    Still, glad Jack is home, and he'll rest more comfortably there until he goes for the other stent.

    He's probably pissed off that he's mortal too. Hits people that way sometimes.

    I keep you in my prayers.

    Hang tough, both of you.

    XOXOXOX

    MaryAnn

    Just found this site, Newly diagnosed

    in INTRODUCE YOURSELF!

    Posted

    Hi Jerry,

    I was 44 when I was diagnosed with a stage IIIa pancoast tumor, which most figured was the end of me, as it had involved much of my shoulder and neck, messed with the blood vessels into my head and the nerves..'

    I had 25 days of radiation with a 6 day chemo at either end. Seven weeks later I had surgery, upper lobe left removed, and then two more rounds of chemo, finishing on Halloween. I ran out of leave time in Feb, so for two weeks I worked half time, and then I went full time. I was wiped out and slept alot when I wasn't working, but I did it. I didn't do much else during chemo and waiting for surgery, as my boss requested I stay out until I was finished with treatments.

    I do know plenty of people who work full time through the chemo, though. So much of this is individual.

    Good luck, and I hope the chemo isn't too bad. You are young and otherwise in good health, so you should be able to weather the chemo pretty well (according to my oncologist...)

    Take care and keep us posted,

    MaryAnn

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