sues Posted May 20, 2005 Share Posted May 20, 2005 Hi all, Thanks so much for all the support so far and in the future. Does anyone know much of the SRS ? I'm to do my prep for it, tomorrow. Another ct and a STEALTH MRI. I guess this is the way to go for the brain mets. Then next week we go for it. My treatments are just starting and of course I'm scared to death. This is, of course, the first. After the SRS then starts the radiation and chemo. But I'm ready !! I'm ready to do battle with whatever it takes to survive ! Quote Link to comment Share on other sites More sharing options...
Don M Posted May 20, 2005 Share Posted May 20, 2005 Hi Sue: It sounds like you are "battle ready". Good luck on your journey. You have my best wishes and prayers. Don M Quote Link to comment Share on other sites More sharing options...
TAnn Posted May 20, 2005 Share Posted May 20, 2005 Sues, Welcome to our wonderful community. I'm sorry that you have to be here. Sounds like you are handling things very well, for just being diagnosed. I have not had stereotactic radiosurgery, but have had whole brain radiation. Sounds like they will be able to target your brain mets individually and zap them away. I'm sure you will hear from those who have had it. Wishing you the best outcome and please let us know how you are doing. TAnn Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted May 20, 2005 Share Posted May 20, 2005 Go getem...we're right with ya jim Quote Link to comment Share on other sites More sharing options...
stand4hope Posted May 20, 2005 Share Posted May 20, 2005 Dear Sues, My husband had stereotactic radiosurgery to 6 brain mets in Nov. 2003 with the Novalis machine. He previously had 8 mets to be treated, but 6 disappeared with WBR prior to Novalis. It was a very long day to get all 6 zapped, but 2 more disappeared, and the remaining 4 shrank about 30%. The 4 remaining mets (largest was about 1.5 cm.) remained stable until Feb. or Mar. of this year (well over a year). He had no lingering side effects from the treatment, not even a headache the next day, which some have reported. I was real worried about the "screws" they use to anchor the helmet, but once they were set, he had no pain, and afterward the marks disappeared, and you about need a magnifying glass to find them today. If you are claustrophic, you might want to ask for some ativan or something to take prior to the exam. Prayers for GREAT results! Love, Peggy Quote Link to comment Share on other sites More sharing options...
pammie Posted May 20, 2005 Share Posted May 20, 2005 Sue, you already have a lot of pluses on your side, mainly your attitude of not giving up. Way to go. Will be praying this treatment works wonderfully for you as it has a number of other people. pammie Quote Link to comment Share on other sites More sharing options...
jang Posted May 20, 2005 Share Posted May 20, 2005 Great attitude. I'm sure it's scary, but we will all be here for you when you need us. Quote Link to comment Share on other sites More sharing options...
Calintay Posted May 21, 2005 Share Posted May 21, 2005 Best luck to you. Don't be to scared it's scary but you can do it Quote Link to comment Share on other sites More sharing options...
sues Posted May 21, 2005 Author Share Posted May 21, 2005 I am so happy to have all of you here. I have had one day so far.. For some reason I can't keep my spirits up.( I haven't even started treatments ) I want to throw in the towel and say forget it, let nature take it's course. Then I see how long and hard you all have fought. I just hope and pray that I have the fortitude that you all have. I appreciate all the encouragement that I get here. I have to appologize for sounding like such a whimp. I don't know what I'd do without all the support I'm getting from my family and friends so far. I guess I'll hang in there and try to not be such a boob. My wonderfull daughter Missyk has been such a help so far. Tell me, our family's won't wear out too fast . I sure hope not. You know I feel better already - THANKS SUE mother of missyk Quote Link to comment Share on other sites More sharing options...
J.C. Posted May 22, 2005 Share Posted May 22, 2005 Sues, Just think, if your spirit is down, there is only one way for it to go and it is up and up again. Relish each day to the fullest, you have a good family and they are there for you as you are there for them. Best wishes and Happy to read you. Hugs J.C. Quote Link to comment Share on other sites More sharing options...
KatieB Posted May 23, 2005 Share Posted May 23, 2005 My experience is only from the other side of this disease, as the caregiver and daughter of someone who had LC. What I can say that is universal to just about everyone- is to try to take one single moment at a time....sometimes when we look at the entire situation we are in or are facing, all the uncertainty and the grief (yes grief) of losing our normal "past lives" and the prospect of how many tomorrows we might have...boy...it's HUGE, and it's overwhelming and scary and it's easy to lose yourself in all of that. Hold on to what is real, hold on to those you love and take it one step at a time. Have one good moment, have one accomplishment (however small or large), have one laugh or have one cry...and then move on to the next moment. It helped us to break things down like that. And what really helps is knowing there IS hope and there ARE survivors..at the end of the day, YOU are one too. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.