marym Posted June 21, 2006 Share Posted June 21, 2006 Well, I received the MRI results yesterday. I guess there's good and bad news. I have 2 new brain mets, so they want to do another radio surgey. I asked about using the non-halo procedure but the suerosurgeon said he would not even consider it. Both mets are about 1 millimeter. They also found a tumor mid spine which they believe is accounting for the pain I have had for over a month - so the good news is they found and can treat the cause of the constant pain. This also has an option of using radio surgery, but since the program isn't starting for a month, I doubt that I'll wait. By the time it starts (assuming it starts on time) I could have been done with standard radiation. I need to see the radiation doctor to determine what my schedule will be and then I also see the onc on Monday to see will I stay on chemo during this. I also on Monday have a ct to see how my current chemo (alimta) is working. That could also play a role in this. I'm bummed but praying all goes well and we can quickly get rid of these things. Mary Quote Link to comment Share on other sites More sharing options...
Don Wood Posted June 21, 2006 Share Posted June 21, 2006 Mary, sorry the news was a mixed bag, but as you say, some of it is good and the other there is a plan for. Don Quote Link to comment Share on other sites More sharing options...
Treebywater Posted June 21, 2006 Share Posted June 21, 2006 Mary, I'm bummed for you. I am glad there is a plan, and I'm praying that it will be just the thing. Quote Link to comment Share on other sites More sharing options...
cmrsm Posted June 22, 2006 Share Posted June 22, 2006 My prayers and thoughts are with you and that everything goes well. God Bless Quote Link to comment Share on other sites More sharing options...
hollyanne Posted June 22, 2006 Share Posted June 22, 2006 Mary - You will get that pain taken care of and I think your outlook on everything will change! I have had some pain in my life -- nothing like bone met pain -- yet I know the incredible relief that comes when you are pain-free. Thinking of you and praying that the radiation works quickly. Holly Quote Link to comment Share on other sites More sharing options...
trish2418 Posted June 22, 2006 Share Posted June 22, 2006 Praying that all goes well for you. Trish Quote Link to comment Share on other sites More sharing options...
Don M Posted June 22, 2006 Share Posted June 22, 2006 Mary, I am sorry you got the bad news. There are a number of cyberknife centers in Florida where they can kill the tumors easliy in your brain and on your spine. No halo is required. The following link is to a message board staffed by radiation oncologists. One of them is from Florida.. Jerome J. Spunberg, M.D., FACR, FACRO Cyberknife Center Of Palm Beach jspunberg@radiationoncologyinstitute.com (561) 799-2828 Here is the link: http://www.cyberknifesupport.org/forum/default.aspx?c=4 Here is another link to the manufacturer's web site that allows you to find where the centers are located: http://www.accuray.com/SiteLocations/index.aspx I cut and pasted the adresses of the facilities from the above web page here: coming soon! CyberKnife Center at North Florida Radiation Oncology Gainesville, FL, 32605, USA More Info CyberKnife Center of Palm Beach West Palm Beach, FL, 33401, USA More Info CyberKnife Center of Miami Miami, FL, 33156, USA More Info NCH Regional Cancer Institute Naples, FL, 34102, USA More Info Quote Link to comment Share on other sites More sharing options...
Kaffie Posted June 22, 2006 Share Posted June 22, 2006 Mary, My thoughts are with you, I'm so sorry for this new development Kathy Quote Link to comment Share on other sites More sharing options...
Nushka Posted June 22, 2006 Share Posted June 22, 2006 Mary, Sorry this is what you are dealing with. I hope the pain problem can be taken care of soon. You are one brave cookie. Nina Quote Link to comment Share on other sites More sharing options...
pammie Posted June 22, 2006 Share Posted June 22, 2006 Sorry to hear about the mets. Thankful the radiation is available though. Will be praying the rad takes care of it. pammie Quote Link to comment Share on other sites More sharing options...
karen335 Posted June 23, 2006 Share Posted June 23, 2006 Mary, You are in my prayers. This is doable and I know you will beat this again. Check out the Cyberknife site that Don M. reccomended, they are real doctors and very good about responding... God Bless and hugs, Karen Quote Link to comment Share on other sites More sharing options...
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