kamataca Posted May 5, 2007 Share Posted May 5, 2007 Mom's back in the hospital (again). She was only out for about a week. Now the dx is radiation pneumonitis. I've read up on it on the trusty ol' Internet--have any of you experienced it? I'm hoping the recovery time won't be so dreadful. She is so tired of being so weak. Thanks for any input you have! Kelly Quote Link to comment Share on other sites More sharing options...
Connie B Posted May 5, 2007 Share Posted May 5, 2007 Kelly, RP can knock us on our can. BIG TIME! It causes SOB and we become very tired. It's very hard to walk and breath at the same time when you have that. I was on prednisone when I had it many moons ago. It's also called radiation pneumonia. Once the meds take hold, mom should start to feel better real soon. It depends on how bad her's is. Mine wasn't to far gone, but it did take about 8 weeks for it to really go away 100%. Although I did start to breath a little better within a weeks time and the tiredness started to ease up as well. Good luck to mom. Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted May 5, 2007 Share Posted May 5, 2007 Hey Kelly!! Like Connie..I took steroids to help with the problem. It was the worst I felt during treatment. Depending on how bad it is will determine how long to be on steroids. God Bless!! Quote Link to comment Share on other sites More sharing options...
Treebywater Posted May 5, 2007 Share Posted May 5, 2007 Kelly-- Have been wondering about you and Bev. I'm sorry for this setback. No info here, but know that I'm praying for you both as always. Quote Link to comment Share on other sites More sharing options...
fillise Posted May 6, 2007 Share Posted May 6, 2007 Kelly--hoping your mom gets stronger soon. Susan Quote Link to comment Share on other sites More sharing options...
palves Posted May 6, 2007 Share Posted May 6, 2007 My dad had it - once he got on meds and breathing treatment he felt better. It did take a while though, so be forewarned. Hope its a quick recovery for her Paula Quote Link to comment Share on other sites More sharing options...
Wink Posted May 6, 2007 Share Posted May 6, 2007 I had a long bout w/RP--very fatigued and SOB--but started feeling significantly better within a few days of starting the IV steroids. Mine was diagnosed rather late and was pretty severe, so it took a long time to resolve completely (and a slow taper off the prednisone). I hope your Mom feels better soon. Quote Link to comment Share on other sites More sharing options...
Geri Posted May 6, 2007 Share Posted May 6, 2007 I had it too, steroids helped but gave me a whole new set of problems so I didn't take them for long. I got through it without anything else and it gradually cleared up. Hoping Mom gets some quick relief, it's a horrible feeling. Geri Quote Link to comment Share on other sites More sharing options...
alexan Posted May 7, 2007 Share Posted May 7, 2007 Kelly, I just gettin over my radiation pneumonitis. Started after 3 month after my radiation. At the bgining was like a tennis match & I was the ball. they were delibereiting if it was radiation Pneumonitis or pneumonia. I was really short of breath. First they start with a really slow dose of steroids & nothing happend. My radiation oncologist put me in a high dose & in a week I was much better. Hope your mom get better soon. Is not fun to have it but is curable. Buest of luck, hugs & prayers bucky Quote Link to comment Share on other sites More sharing options...
Andrea Posted May 7, 2007 Share Posted May 7, 2007 My mom had it. It was weird b/c for her it happened later than normal. It got better after a month but still had a few issues from it after. Nothing too serious though, just a little extra SOB when walking far like through a mall. I hope your mom has a speedy recovery! Quote Link to comment Share on other sites More sharing options...
Debi Posted May 7, 2007 Share Posted May 7, 2007 No advice Kelly. Just wanted you and Bev to know I was thinking of you.... Quote Link to comment Share on other sites More sharing options...
jessopy2 Posted May 8, 2007 Share Posted May 8, 2007 My mom started to experience an increase in SOB about 2 months after radiation finished....they were mixed about whether it was pneumonitis or pneumonia or something else....but after a little while they decided it was pneumonitis. She was put on prednisone and has been on it for about 9 months...every time they tried to decreaase the dose of the steroid, her symptoms worsened...so they've kept her on it and her respirologist said it could take 1-2 years to decrease her off of it. Hope this helps and that she's feeling better soon! Quote Link to comment Share on other sites More sharing options...
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