tlsher Posted February 5, 2019 Share Posted February 5, 2019 My mom was diagnosed with stage IV SCLC in November. Given just weeks to live without treatment. Did one round of chemo and then decided to stop treatment as it made her so incredibly sick. At the time of diagnosis, PET scan revealed cancer in left lung, liver, adrenal glands and pelvic bone. Large areas of cancer, not just spots. We decided, along with her doctors and her, that the most humane thing to do was let her live out her days more comfortable than living like she did with chemo - it was horrible (blood work came back poor - increasing liver enzymes, poor kidney function, among many other things). Dec 3 we stopped treatment and oncologist told us she would live about a month once treatment ended - now here we are Feb 5 and she is still alive. Hospice was brought in Dec 4. Now, she is very weak, shakes sometimes uncontrollably, can not walk unassisted, down to 80 pounds, appetite decreasing (can only eat very soft foods now), having a lot of difficulty swallowing, incontinent, bleeding vaginally and rectally, her eye site is very compromised as sometimes everything is dark, tons of fluid retention in legs, face and abdomen, sleeping approx 18 hours a day, very disoriented at times, incredibly jaundiced . . . and absolutely refuses to believe this disease will take her life. She pretends this is not happening and will have no part of discussing it with anyone. We have tried but she just shuts it down, almost immediately. Our family has resigned itself to the fact that the end is near and we are all there as much as possible with her and to help my dad care for her, and allow him to take time for himself (which he will not), hospice nurses are in a couple times a week, aides come in a few times a week to help with bathing, personal care, etc. I know this is her journey . . . but watching her go through this is so tough, especially when we can not have a conversation with her about things. Is there anyone she wants to see? Is there anyone she wants to talk to? Anything she feels like she needs to do before she dies? We have had the hospice social workers in and chaplain and its always the same thing. Nothing from her. She doesnt even listen to them. Any suggestions on how to help her let go or find some peace? Suggestions on how to help this situation? Shes one tough nut, I will tell you. She is suffering so much now and again, I know this is her journey, but I feel like this suffering is getting out of hand - this disease is degrading and she is basically rotting from the inside out . . . until she lets go or finds some peace within herself I feel like this will continue for far too long. Help Quote Link to comment Share on other sites More sharing options...
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