Kamoto Posted July 21, 2023 Share Posted July 21, 2023 My main tumor in the right lung has shrunk 80% but is no longer shrinking. In fact, it has widened by .03 Cm. I also have something growing in the left lung. 3.2 by 3.7 Cm now. Rest of the chest area is still clean. Appt with oncologist on Monday, but looks like Tagrisso is barely holding off the inevitable advance. Oh well, maybe a new drug, but I like the zero side effects with Tagrisso. I’ll advise what oncologist plan is Tom Galli 1 Quote Link to comment Share on other sites More sharing options...
LouT Posted July 21, 2023 Share Posted July 21, 2023 Kamoto, Others with more experience will likely respond soon but I'm sorry to hear that Tagrisso is not doing the job it did before. My LC treatment was purely surgical so I have no experience too share regarding any form of chemo, but I have read of other drugs that were used in such cases and I'm sure your oncologist will make the right recommendations for you. Please keep us updated and I look forward to hearing that you have an alternative treatment and good results to go with it. Lou Tom Galli 1 Quote Link to comment Share on other sites More sharing options...
Karen_L Posted July 22, 2023 Share Posted July 22, 2023 Kamoto, Stupid cancer. You are really being slammed. There's a lot of work being done on post treatment after Tagrisso resistance. I am hoping they can get in and get some tissue on those stupid new growths-- maybe there's a new mutation? Only a biopsy can tell, and it's pretty important that you get another one. If you want, I can dig around some of my notes about some of the post-Tagrisso work being done. Karen LouT 1 Quote Link to comment Share on other sites More sharing options...
Kamoto Posted July 23, 2023 Author Share Posted July 23, 2023 Thanks Lou. Hi Karen. Sure let me know what you can dig up. I meet with oncologist on Monday to see what his plan is. Kindly Quote Link to comment Share on other sites More sharing options...
Tom Galli Posted July 23, 2023 Share Posted July 23, 2023 Kamoto, I wish I had words of wisdom for your tumor growth. As you've suggested, sometimes Targeted Therapies lose their target. I do hope your oncologist has another remedy teed up for you. I hear Boseman is avoiding our collective heat bubble meltdown. Stay cool and... Stay the course. Tom LouT 1 Quote Link to comment Share on other sites More sharing options...
Karen_L Posted July 23, 2023 Share Posted July 23, 2023 7 hours ago, Kamoto said: Sure let me know what you can dig up What mutations are you dealing with? My saved research is about EGFR mutations. Tom Galli and LouT 2 Quote Link to comment Share on other sites More sharing options...
Chuck K Posted July 23, 2023 Share Posted July 23, 2023 Kamoto I hope your oncologist chooses the right therapy for you. I'm with you on the side effects I deal with bad knee pain and sensitive to sun . So far it's manageable and still working. Good luck my friend with your next treatment Chuck Tom Galli and LouT 2 Quote Link to comment Share on other sites More sharing options...
Karen_L Posted July 24, 2023 Share Posted July 24, 2023 A Google Scholar search brought this: The prospect of combination therapies with the third-generation EGFR-TKIs to overcome the resistance in NSCLC. Hope it helps.... LouT 1 Quote Link to comment Share on other sites More sharing options...
Kamoto Posted July 25, 2023 Author Share Posted July 25, 2023 Thanks all. Well, I’m no Oncologist. He looked at me like I’m nuts. He said the mass they see on the left lung area is right where they were zapping the esophagus tumor. It’s a byproduct of the radiation and yes it grew, because the scan they did in January was right after radiation ended. So he told me I don’t have any new tumors. He also said the original lung cancer mass may be dead tissue. The only way to determine if that is still cancer is via PET scan and there is zero reason to order one. Until I have symptom which worries him, he isn’t worried about that Mass right now. was also interesting in that he said the esophagus cancer may come back. Yes it was stage II, but it might have entered the blood stream before they killed it. So have to monitor that. So all in all, I’m going to live for now and Tagrisso resistance isn’t here yet. I failed as an oncologist. So thankful for all the support Chuck K, LouT and Tom Galli 3 Quote Link to comment Share on other sites More sharing options...
Kamoto Posted July 25, 2023 Author Share Posted July 25, 2023 Thanks Tom. Nice at night here. Cool breeze. Today was about 90, but that’s nothing. I know it’s only for a few weeks. Last month electric bill was $102 LouT and Tom Galli 2 Quote Link to comment Share on other sites More sharing options...
Karen_L Posted July 25, 2023 Share Posted July 25, 2023 Haha, Kamoto, and there you were, ready to hang out a shingle. So glad to hear this news. My onco-radiologist has taught me a lot about what happens when stuff dies. It was good to hear when one of my brain reports came back mentioning "multiple metastases." She just shook her head and said whoever read the scan initially was doing a CYA; she and another onco-radiologist read the scans and saw a couple of blood vessels. Tumors do weird stuff when they're dying and dead. Glad yours are well on the way to dead. The esophageal report is concerning, of course, but I bet there's a little CYA going on there, too. Glad you're going to focus on life-- there's so much to revel in! Karen LouT and Tom Galli 2 Quote Link to comment Share on other sites More sharing options...
BridgetO Posted July 27, 2023 Share Posted July 27, 2023 Hi Kamoto, I'm glad to hear that you're not an oncologist and that your self-diagnosis was wrong!😁 So, as you said, live for now. May your living "for now' extend far into the future. Tom Galli and LouT 2 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.