TJM Posted January 18 Share Posted January 18 I have a spot on my abdomen that is new and it has me concerned. I had an appointment with my primary that was canceled due to a massive ice storm! I have not been able to reschedule yet. I do have a scan scheduled for Feb 14th but I don't know if a CT scan is much good detecting skin metastasis. I am begining to get a tad ansey. My question is has any one had any experience with this type of metastasis or could direct me to some decent information. What I have found on Dr Google is not very informative (is it me, or has Google lost some of it's mojo?) Unfortunately I am getting the feeling that since I am 4 years NED I am back to ground zero, i.e. basically I have been cured and and urgency has been lost with my "team". I will get this done but I thought it might be worth a shot to see if anyone else has traveled a similar path Tom PS. I did have a cancerous spot on my arm that was basil cell and deemed not connected to my Large Cell NSCLC. LouT and Tom Galli 2 Quote Link to comment Share on other sites More sharing options...
LouT Posted January 18 Share Posted January 18 I know what it’s like to have to wait for tests when some symptom or finding has you so concerned. But hand in there Tom…you’ll get through this. A spot does not mean metastasis or even a new cancer. Please do your best to take this one step at a time. Remember that even a scan only shows if there is something there. The real “gold standard” test would be a biopsy, if that is necessary. Like you I’m 4-years NED and always have it in the back of my mind that this could end, but all we can do is to keep on living the life we fought so hard to hold onto. And normally after 4 years my oncologist says that he is less worried about recurrence or mets than he is about a new cancer forming, so please stay as focused on happier things as much as possible and until you have a definit reason to do otherwise.Stay strong Tom, you’ve already been through worse than this and you have our prayers for a good outcome to your scan. Lou Quote Link to comment Share on other sites More sharing options...
edivebuddy Posted February 1 Share Posted February 1 Call your dermatologist and see if they can get you in sooner. A CT will show a some lesion but for your skin your eyes are much better. A PET can also pick them up. Cutaneous metastasis is extremely rare. Do not pay attention to the prognosis. I was given a poor prognosis after developing a skin lesion. But here I am over 3 years later. I've also had other lesions biopsied that were not Cancer done at the dermatologists office. Here's my Cutaneous metastasis before starting keytruda LouT, TJM and BridgetO 3 Quote Link to comment Share on other sites More sharing options...
BridgetO Posted February 1 Share Posted February 1 Hi TJM, Lou's suggestion of a dermatologist is a good one. If you already have a dermatologist, I'd suggest calling direct to that office. (If I recall correctly, you have Kariser, right?- I know it's hard to get a specialist appointment). With Kaiser, you can also send a photo along with an email on their site- If you don't already have a derm, you could send it to your PCP. edivebudy, that is one ugly lesion! Did the keyruda work? LouT and TJM 2 Quote Link to comment Share on other sites More sharing options...
edivebuddy Posted February 1 Share Posted February 1 It worked incredibly well. My disease spread and grew faster than any heard of. If died faster than anyone could have hoped for. 12 days later looked like this. I no way is this indicative of a normal response. But it is about what the on call oncologist in the ICU said. Cancers that grow fast if the respond to treatment tend to respond fast. TJM, LouT and BridgetO 3 Quote Link to comment Share on other sites More sharing options...
edivebuddy Posted February 3 Share Posted February 3 These lesions (right back) always worry the radiologists. They are not cancer even though they are FDG avid. They are some form of acne caused by Avastin. My skin metastasis started as what looked like acne but quickly grew. And I'm supposed to monitor them with the dermatologist but I stopped when mine moved. Now ill go to my wifes if she tells me. LouT 1 Quote Link to comment Share on other sites More sharing options...
Karen_L Posted February 4 Share Posted February 4 @TJM That was one helluvan ice storm. We fared well, as did our family members. Many others were not as lucky. I had a brain MRI the Thursday after everything started (I was able to change the test from Wednesday, when it was still sleeting but forecast to warm up.) Things were starting to be manageable Wednesday night, but on Thurs., we still got up way earlier than necessary, packed our micro-spikes, and immediately skidded to our butts on the icy sidewalk. My husband started spreading kitty litter like crazy on our (downhill) driveway. We figured if we could get onto a main thoroughfare, we're be reasonably OK. We got to the cancer center early! I wasn't sure the technologists would show up, but they were there. Hooray! (Except for the MRI part haha.) We parked on the street when we got home. That driveway was still bonkers.... I've not heard of LC metastasizing to the skin, but hey, who knows. I saw a dermatologist for my skin cancer because that's what my PCP said would be best. A little MOHS procedure and I was done. Lou's got great coping advice, as always. Please keep us posted. Karen TJM and LouT 2 Quote Link to comment Share on other sites More sharing options...
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