kimmek Posted August 5, 2004 Share Posted August 5, 2004 Hi to all: First I would like to take a moment to express my gratitude to everyone here. I come here every morning now and spend a couple of hours reading the posts. I feel this gives me the courage to face the day and what it may bring. I have even questioned my reasons for coming here, and I too was wondering if this was actually a good thing for me to be doing. And after much thought and plenty of post reading, I decided yes it is, especially since I have no one here really in my life to talk to about my mom's illness. Yes, i have support from family members but im afraid they are all like my mom and just think the doctors will "fix" her and all will be back to normal. I have even been accused (by my own son) that I was already "buring Mema". No, but if this first round of treatment does not work, then I am more than prepared for round 2. or even round 50 if need be.Mom doesnt even think beyond that. This is going to work for her and thats all there is to it. So now I just keep my mouth shut about future treatments etc.. Although I think I did get Moms attention yesterday when she over heard me speaking to someone else about facing the enemy and preparing for battle...I mean how can you fight or go to war in anything if you dont know who or what you are fighting against. You would not go off to war and not know at least how many, what weapons you need, etc...Same theory applies here. So maybe she thought about that some. Anyway. Mom is doing really well, she finished up 6 rounds of chemo yesterday (low-dose taxol/carbo) and has 8 or 9 more radiation treaments left. Her esophogus is really starting to hurt pretty bad from the burns. She actually broke down at chemo yesterday and ask for pain meds. On a scale of 1-10 she told the nurse after some serious thought that her pain was a 8 or 9. Wow, i told her again there is no reason for her to live like that, she can take something for the pain. They gave her demerol in her iv then called in some liquid lortab for her. She also has a mixture of lydicane,malox,benadryl to numb her throat along with something called oramagic to heal the tissue faster. She has found some relief using all 3 of these things, but not alot. I was wondering if anyone has experienced this and what they found that worked the best. The pain is pretty constant now, and excruciating when she swallows wether it be solids,liquids or just clearing her throat in general. We see the radiation onc today and maybe she has something else up her sleeve, but ive learned her the best advise seems to come from here. Thanks in advance and wish everyone a blessed day Quote Link to comment Share on other sites More sharing options...
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