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Vesuri

Adenocarcinoma non-small cell

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Hi

So, I'm going for the Nexavar trial. I asked about getting the drug without trial, but the doctor wouldn't prescribe it, so it would be quite expensive to buy it without prescription. It's a double-blinded trial so there's actually 50% chance of getting the medicine. In my opinion, that's a heck of a better probability than getting this disease in the first place (which is 0,000005% for a male between 30-34 in Finland)!!! So, I'm not actually so worried about that. :)

Anyway, they scheduled another CT for this Friday and next week they are planning to start the treatments, so things are rolling!

I was thinking that these examinations etc. have been taking ages and nothing has been done yet to actually treat the condition, but I guess these things take time.

All the best!!!

Jussi

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Hi Jussi, and welcome.

The chem you'll be on +/- Nexavar is pretty tough o n cancer. I had cisplatin with etoposide simultaneously with radiation for my NSCLC - pancoast tumor, and the combination was effective.

Good luck with your chemo, it sounds like the oncologist has a nice chemotherapy suite. My oncologist did also, there were recliner chairs that were very comfortable.

Keep us posted.

XOXOX

MaryAnn

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Thanks!

This is a little bit off-topic but I think it still touches all of us living in a modern world. Finland went to shock yesterday noon. I will pray for all the families... Makes these personal health issues feel pretty small...

" HELSINKI, Finland (CNN) -- An 18-year-old authorities say shot eight people inside his high school in southern Finland, before turning the gun on himself, has died, police said.

An image from a video posted on YouTube by "Sturmgeist89."

more photos ยป

The shooting appeared to have been planned out in graphic videos posted on Internet file-sharing site YouTube.

At a news conference this afternoon, police confirmed the dead numbered two girls, five boys and the school's headmistress at Jokela High in Tuusula, a quiet town around 50 kilometers (30 miles) north of Helsinki.

Ten other people were taken to a hospital with minor injuries."

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"Vesuri" ...The shooting appeared to have been planned out in graphic videos posted on Internet file-sharing site YouTube....

At one time I believed the Internet and globalization would bring more people closer together, reduce prejudice, increase understanding, etc. etc. Obviously a naive view. Any technological advance, no matter how promising and well intentioned, can be misused, sometimes horribly.

On a beautiful summer night in 1971, four of us were enjoying a marvelous concert under the stars in Newport, Rhode Island. Dave Brubeck's group had just finished, and now Dionne Warwick was on stage enthralling us with the Hal David/Burt Bacharach classic "What the world needs now is love sweet love..." when a hundred or more kids, who had been listening for two hours from an adjacent hillside free of charge and undisturbed, decided to break down the gates and storm into the fenced area. Dionne kept singing until management cut off the sound system and escorted her to safety. The Newport Jazz Festival moved to New York City and did not return to Newport for 10 years.

Aloha,

Ned

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Hi good people!

Came to hospital today for 2nd chemo treatment. Also got some nasty rash from the Nexavar, so I guess that puts an end to the speculation of whether its placebo or not =)

I wish strength to all you people here!!!!

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Hi Jussi,

Good to hear from you again. I've been wondering how things were going for you. Glad you finally got started on chemo and now have 2 treatments out of the way. Be sure to drink lots and lots of water the days that they give you cisplatin! Good luck with the rest of your treatments. Check back in with us soon.

Muriel

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Christmas time is getting closer good people!!

I have been back to work for the past week and a half. I don't try to act superman or anything like that, but I thought that since I don't have any bigger issues with my health it would be refreshing to see some people for a while. If I get more tired etc. then I keep out of office again.

I have a CT scan scheduled for this friday. It's already after 2 rounds of chemo, but the doctor said they can see something already whether the chemo is working or not.

All the best!!!

Jussi

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Jussi,

I don't know how I missed your first several posts but I am glad I found you today. Welcome to our group. It sounds like you have already started your treatments and I hope you are still feeling well. I look forward to your updates. Again, I am sorry to be so late to reply.

Nina

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Hi again good people!

Little update... Had a doctors appointment on Tuesday and CT results indicated that the lung tumor had gotten smaller, the "pleural thickening" was smaller, and liver mets were smaller! Although the overall status is still very gloomy, I already got the best Christmas present this year!!!!!! :) If there's anything good about this disease, it's taught me not to stress about everything so much and enjoy the small happy moments in life.

Couldn't get 3rd chemo on Tuesday because some blood value was below limit, so new try tomorrow morning!

I wish and pray all the best and strength to all of you!!!

Jussi

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That's good news Jussi! You still have a couple more treatments that can do even more damage to the tumors. There are probably other things that can be tried if this isn't totally effective.

How are you feeling after the 2 rounds?

Muriel

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Hi! I'm feeling very good! I haven't had any major side effects. Well I guess the biggest issue has been the "abnormal functionality of the digestive system", if you know what I mean =)... But now I know more and what to eat before and during the treatment!

Take it easy and be nice! Christmas is coming!

Don't tell me that you didn't know where Santa comes from!? =)

http://en.wikipedia.org/wiki/Santa_Claus

http://www.santaclaus.fi

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Good for you, Jussi! You have what it takes to come out on the winning side of this -- vigorous general health, great attitude, good response to treatment, minimal side effects. Happy Holidays and Aloha,

Ned

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Welcome Jussi. The bad news is that you are here, but the really great news is that you are now in touch with a very caring and informative support group. I speak from experience as without this group I am not certain that I would be doing as well. Am in 2nd day of recuperation after having left upper lobe removed and so far am doing great. You appear to have a positive attitude which is so so important. Please stay positive,keep fighting, keep informed, be your own advocate and above all never never give up. This advice has helped me and my wife, Inez battle through lung cancer, prostate cancer, heart disease and diabetis with positive results. You will find that the support, love and caring from family, friends and support groups such as this, will keep your spirits lookin upward as it has Inez and I.

Life isn't about waiting for the storm to pass...

It's about learning to dance in the rain

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Jussi, Santa lives at the North Pole. I know that. But that quiz didn't offer the North Pole as one of the options. Had to choose between Turkey (obviously wrong), Finland, Lapland, and Scotland. I tried Lapland and then Finland and then gave up. :oops:

Muriel

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Jussi,

I'm glad to hear that you are getting a good response from the treatment! I will say prayers that it continues until the cancer is GONE!!

Take it easy on yourself and don't over do it too much. I hope you have a wonderful holiday too!!

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Hello again good people!

Haven't written anything in a while... well, here's a short update.

Had a 2nd CT scan last week and saw doctor yesterday. She said that mass in lung has shrunk still a bit and pleura has gone thinner as well. Liver remains same from previous scan. So, the treatment continues as planned. Although I couldn't stay at hospital yesterday because some blood value was pretty low still... Another try on Monday.

Just crossed some articles in web and seems that the genetherapy treatments are picking up on cancer treatment. Does anybody have some experience / knowledge about them?

Good and relaxing weekend to everybody!!!

Jussi

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