Maryanne

I ditto everybody..... thinking of you and sending healing thoughts your way. Hang in there, Maryanne

Joanie, you are an inspiration to the people who are diagnoised with SLCA... you are one of the statistic buster. WHO YA GONNA CALL JOANIE BUSTER!!!! Wonderful, Wonderful news. 36 months and counting!!!!!!! Cindi, round of drinks on Joanie. Maryanne

Hi Bruce, My husband was operated and he was dx. with adren 1B and had a lobectomy upper left lung on Dec. 15, there were complications but thats another story, (read profile at bottom) He is doing much better now. He will also be getting carbo/toxel. His treatments will be 4, 3 weeks apart. Each session takes about 5 hours, so be prepared for that. I was told by many people here that you will not feel sick after. The initial treatment, but it most likely it will come on anywhere from 2 to 5 days after the You may feel fatigue, neausea and maybe have pain in your legs. this can last up to 5 days, then you will start to feel better and then better each day. You will not feel sick the whole 3 weeks!! Then you will have your next treatment, and it will start over again. Some people lose their hair, some don't and some just have it thinned. Some have neausea (there are pills to help that) and some don't. So you see everyone is different. Some doctors want to put a port in some will just use your veins if you have good veins. We are opting for the veins. Joel, has not had chemo yet, but Iam confident when he gains weight and feels less fatigued they will schedule his treatments. Good luck, you are very very fortunate to have been diagnoised with 1A, which is very curable. You made the right decision to have adjuntive (preventive) chemo. Good luck, Maryanne

Hi Beth, Sounds like your appointment with your surgeon had a positive effect on you. That is really encouraging. I have been thinking alot about you, Addie, Don and Lucie and have been sending out healing thoughts during my meditation sessions. Praying the Altima works, fingers and toes crossed. Take care, keep us informed as always. I have a strong feeling this is all going to turn out in your favor. Hang in there, Maryanne

Hi June, Welcome here. Sorry you had to come here but we are a great group of people for knowledge and support. One thing you must learn, is don't listen to statistics. When you read other peoples posts you will see that they have beaten the odds. I could only imagine how devestatived you were to find out it had returned after all those years of being Cancer free. But, you have done this before and beat it, you can do it again, you have too. You want to see that grandchild don't you. Of course you do. Keep a positive attitude and fight with everything you got. Do not let that beast win. We are always here to listen and help. please take care Maryanne

Hi Randi, I viewed your sons video, excellent job. He is adorable and such a joy to you and your hubby. You mention that your mom lights up when she sees him. How could she not.... he is adorable. Hopefully, if she stays in the hospital, they will let you bring him, so she can see him. If she goes home then she will definitely see he him again. My heart goes out to you. I don't know much about hospice but I heard they are a G-d sent to people. Maybe you can get someone from hospice just to come in a talk to her. Then maybe she will change her mind. We are here for you... and hope you can find the strength to get through these difficult times. It is really nice that you made a web page for your mom, and you can write your feelings down. That is good therapy. Stay strong.... Maryanne

Hi Barb, I love hearing that word.... STABLE... it is just a great sound word... I hope you hear it again and again. Take care Maryanne

Hi All, Well this is week one of the radioactive iodine pill they gave Joel to kill the thyroid. And........ HE IS DOING GREAT!!! Like a 90 degree turn from last week. He is actually eating me out of the house Even his voice is much more in control and not that whimpy whisper anymore. His strength is coming back little by little. He even took out the trash today and was doing work on his computer. That is a first since the operation back in December. I guess I should have put this in the good news column. But I always post in here and I wanted all of you to know. I also want to thank every one who PM me with words of encouagement. Thanks all.... hopefully when he gains his weight (the rate he is going should be soon) and we can get on with the chemo. I don't want him to wait too long, or it won't work. take care all, will keep you posted. Maryanne

Thanks all for your replies, seems like hands down, it is from radiation and not chemo. So glad to hear that That's one less thing off my mind. Thanks again for your quick responses. Maryanne.

Hi All, I have a question about Chemo. I read in some people's posts that some people really seem to have trouble swollowing during or after treatments. What Iam trying to find out is, is this from Chemo or just from radiation. If it is from Chemo, I am concerned because Joel has a hard time swallowing as it is. It has gotten worse, which may or may not have been brought on by the Thyroid ( which is in the throat area) He always had a gagging reflux, but lately it has seem to have gotten worse. He probably will have chemo carbo/toxal with no radiation, when he is stronger. But I was curious about the swallowing situation. regards Maryanne

Hi Nancy, Hang in there girl, this too will pass. I am thinking of you and sending healing throughts your way. Maryanne

Hi Wendy, That is great news. Its good to hear some lately, Maryanne

Hi Angie, Sending healing prayers to your and your familiy. Maryanne

Hi Pammie, With all this bad news we have been getting lately this good news is really a welcome site. Congratualtions, that is so good to hear. Maryanne

Good luck David, sending healing thoughts your way. Maryanne

Melanie, So sorry to hear you are feeling so crudy... I hope you can get that appointment moved ASAP. Keeping my fingers crossed that it is something like Cindi said and it can be cured with anti inflammatories. Maryannne

Hi Cyndy, So sorry you had to come to this place. But you have picked the best bunch of people for knowledge and support. One thing that is very important, do not get hung up on statistics, as you will see by so many posts that people beat the odds everyday. You must have a positive attitude and know that you can beat this!! Attitude and belief is a very important on your road to recovery. Hang in there and good luck. Keep us posted. Maryanne

Prayers for a peaceful return for BoB and strength to you his wonderful friend and his family. Peace be with you, Maryanne

Hi Greg, Thank you for sharing, that is beautiful. You are both very special people and I along with everyone else, can feel the love you two share. That is so precious and uplifting. I don't know what else to say, I am overwhelmed... Take care you two.... you are truly blessed to have each other. So glad you came to us Greg, to share your feelings. Maryanne

Great news Cindy!!! I was just ready to go to bed, and I am reading your post last and it is so great to hear some good news. Soon to be 2 years and counting!!!! I hope you can count to 100!!! take care, Maryanne

So sorry Don, please read my PM Maryanne

Hi Addie, Can't help you on the liver biospy, but it seems from the posts that it is not bad. I just want you to know that Iam thinking of you and wish you luck. Maryanne

Hi All, Have not wanted to post as so much has been going on with Beth and Addie. I have really been busy reading over all the posts and giving feeback when I could. Joel had that radioactive pill given to him Tuesday. It is now Saturday, and there has been quite an improvement. Not as much as he would like, but I see such a dfference from last weekend. His appitite is much improved and he is getting less fatigued. The Endocrinologist called to see how he was doing and said that it would take a good week for him to feel better, which would be this coming Tuesday. She also said that his T levels were very high. So at least we know the reason for the weight loss, nervousness, accelerated heart rate, insomnia and oh that horrible fatigue. He felt like his life force little by little was being drawn from him. But that is going to change. I can't wait for him to start to feel like himself again. He would have come through the surgery fine, if it wasn't for that horrible pain patch that made him so sick, and then being diagnoised with the hyperthyroidism during his recooperaton from the operation. But thank G-d it is not the cancer and hyperthyroidism is treatable, and hopefully this time next week he will be more like the wonderful man I know and love and will gain some of his control and independence back. Take care all, and I will keep you posted. Love ya guys, Maryanne

Thanks Kim for sharing that, that was so emotional and what a wonderful son to have so much love for his grandmom. They must have really had a special relationship that he will treasure along with that shell, in his heart forever. Maryanne

Better not turn your back, or I might steal him. He is beautiful.... is he a Choclate Lab? What is his name? Maryanne