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Roz

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Blog Comments posted by Roz

    Tom Galli

    Posted

    Everyone should be made aware that these scammers are out there. We should let everyone know to do the necessary checks prior to picking a hospice for your loved one (like Lou has done). How can any entity even consider trying to take advantage of a family that is seeking end of like care. It's criminal!!

     

    Thanks for alerting us all to this Tom!!

     

    Best,

    Ro

    LilyMir

    Posted

    Great and informative blog, Lily!

    I don't ever look at statistics because I just try to do the best I can each day. I don't believe that the statistics apply to me.

    We are all on our own individual journey and no one can tell you how long you may have, etc.

    I continue to hope for new treatments for all of us!

    Congratulations on your blog. I also wrote one in case you want to read it

    Mine is called, The Roscopal Effect.

     

    Best,

    Ro

    Roz

    Posted

    Hi LexieCat and Tom and BridgetO,

    Thank you for your responses to my blog. LexieCat-deciding on a clinical trial is a really tough process. I carefully looked into the research and then went with what my medical oncologist believed was the best option. For my second trial, I also had a second opinion from a different medical oncologist and both agreed it was worth trying I wouldn't go into a trial unless you were physically ready for it. The side effects can be quite nasty, depending on the drugs involved. Luckily, once you are off the trial, the side effects eventually go away. 

     

    Tom,

    I look forward to sharing the results of my future scans and am always hopeful for NED!!

     

    Best,


    Ro

    Susan Cornett

    Posted

    I've been thinking of all of you!! It's not easy to have the "lifting" of the precautions in the air and various phases for Covid.

    I have been to the beach but with at least 6-8 feet between me and anyone else. 

    But people are now onto outdoor dining with the 6 foot distance in place. I decided I should just email my Oncologist to find out what she thinks.

    So far, just staying in the house, or my car to go to the beach....

    Be well everyone!!

     

    Best,

    Ro

    Susan Cornett

    Posted

    Susan,

    I totally agree that explaining and discussing this with our parents is one of the most difficult parts of the process. I see the pain in their eyes and feel so badly to be putting them through all the worry. No matter how we say it, they will be scared...I don't blame them as I would feel the same if it were my children.

    What is super doc's plan for treating this recurrence?

     

    Best,

     

    Ro

    Susan Cornett

    Posted

    Susan,

    Since receiving the lung cancer diagnosis last summer, I have come to realize that no matter what I feel on the inside, it really is inside me. People do not look at me and see differences, because the scars are hidden. Sharing information with others who are dealing with difficult situations, and/or responding on these forums, has been extremely beneficial. I try to live my life with a smile on my face and recognize that there are many people in the world who need support because their situation is even more difficult than mine. When I go about my day, I can function in my "new normal" and feel quite well physically and emotionally. It's leading up to that next scan that the anxiety sets in..but as Tom said in his post, to stay the course is so important. I wish I knew what else to say. As KatieB said, we did not choose cancer, but once faced with it, we have to figure out how to beat it, stay strong, and move forward. I'm with you and your struggles!!!

     

    Ro

    LaurenH

    Posted

    You bring hope and inspiration to those of us living with Stage 4 adenocarcinoma!

    My situation was similar to yours in that I was in excellent physical shape, no history of smoking, etc..age 61..Shock to everyone, etc..

    Unfortunately, I have been hearing that this is happening more often.

    Stay strong!!

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