Barb1260

Hi Karen-that’s exactly what the oncologist told me today. Says I will always have “busy” lungs from the radiation. So we are just watching and doing another CT in 3 months. She said she is not worried about this at all. So if she’s not worried I’m not wasting my time being worried. 

I had radiation 4 years ago. Thanks I didn’t know this. As far as the reports, this is a fairly new law in the US, a few years, they have to be released as soon as available. I would rather have them before I get to the doctors office so I have my questions lined up. The few times at the beginning when I didn’t have the results and it was bad news I just went blank and couldn’t think of what to ask. 

Hi Karen-that’s exactly what the oncologist told me today. Says I will always have “busy” lungs from the radiation. So we are just watching and doing another CT in 3 months. She said she is not worried about this at all. So if she’s not worried I’m not wasting my time being worried. 

Hi Karen-that’s exactly what the oncologist told me today. Says I will always have “busy” lungs from the radiation. So we are just watching and doing another CT in 3 months. She said she is not worried about this at all. So if she’s not worried I’m not wasting my time being worried. 

Hi Karen-that’s exactly what the oncologist told me today. Says I will always have “busy” lungs from the radiation. So we are just watching and doing another CT in 3 months. She said she is not worried about this at all. So if she’s not worried I’m not wasting my time being worried. 

Hi barb
I know aswell as the rest how difficult this journey is for us,the waiting for results here in the UK is typically 2 weeks and it can be the longest 2 weeks ever but I've kind of got used to it now, I really hope it's nothing to worry about and that your oncologist is right and it's nothing to worry about, you know your body and if you feel at all different then push for testing ,
All the best Take care Justin 

Hi Karen-that’s exactly what the oncologist told me today. Says I will always have “busy” lungs from the radiation. So we are just watching and doing another CT in 3 months. She said she is not worried about this at all. So if she’s not worried I’m not wasting my time being worried. 

Hi Karen-that’s exactly what the oncologist told me today. Says I will always have “busy” lungs from the radiation. So we are just watching and doing another CT in 3 months. She said she is not worried about this at all. So if she’s not worried I’m not wasting my time being worried. 

I had radiation 4 years ago. Thanks I didn’t know this. As far as the reports, this is a fairly new law in the US, a few years, they have to be released as soon as available. I would rather have them before I get to the doctors office so I have my questions lined up. The few times at the beginning when I didn’t have the results and it was bad news I just went blank and couldn’t think of what to ask. 

I had radiation 4 years ago. Thanks I didn’t know this. As far as the reports, this is a fairly new law in the US, a few years, they have to be released as soon as available. I would rather have them before I get to the doctors office so I have my questions lined up. The few times at the beginning when I didn’t have the results and it was bad news I just went blank and couldn’t think of what to ask. 

I had radiation 4 years ago. Thanks I didn’t know this. As far as the reports, this is a fairly new law in the US, a few years, they have to be released as soon as available. I would rather have them before I get to the doctors office so I have my questions lined up. The few times at the beginning when I didn’t have the results and it was bad news I just went blank and couldn’t think of what to ask. 

I had radiation 4 years ago. Thanks I didn’t know this. As far as the reports, this is a fairly new law in the US, a few years, they have to be released as soon as available. I would rather have them before I get to the doctors office so I have my questions lined up. The few times at the beginning when I didn’t have the results and it was bad news I just went blank and couldn’t think of what to ask. 

Did you have radiotherapy? Ground glass is typical of radiotherapy induced damage and is often benign. So try not to worry until you talk to medical team.
Honest question: here in the UK, our scan reports are never released until after we have seen our medical team. Although it can be an annoying wait, I am getting more and more convinced that it is the right way to go, to save a lot of agony over unclear results. What do you Americans think?

Sorry to hear you are having to worry about this, bummer. As I know ground glass can be anything including many benign conditions like infection but could also indicate malignancy. Try not to overthink this weekend and hopefully your oncologist will have more reassuring info Mon.

Tomorrow (February 4th) I celebrate 19 years of life after diagnosis with NSCLC, squamous cell. I’m tapping this post out on a small screen while rocking and rolling in the middle of the Caribbean Sea, in route to Cartagena Columbia on our celebratory cruise. WIFI is spotty, thus the early announcement   
Two points are relevant for our Forum community: celebrate life, and if I can live, so can you. 
Stay the course. 
Tom

Ron, you are an honorary Durva member anyway. I think 18 infusions qualifies you for sure!  
Great good news!

So happy to hear from all my dear friends! 

Yay Tomm. This was my first 6 month wait as well. We are blazing trails!

Hello all!
Been awhile since I've posted here. Glad to hear all is well with you guys! Sheesh! I went straight to 6 month CT scans after I completed my durva ride. Now I'm waiting nervously for my yearly which isn't until December! My 3yr cancer ned was in May of this yr. My oncologist says I'm fine 🙃 righto! Lots of drama in my Life past 8 months started stupid smoking cigs again tried to stop with all the regular methods nothing is working for me. Oh well hells bells, I'll just keep trying! Congratulations to all and since summer is coming to an end I hope everyone had an enjoyable one!
Namaste Roseann
 
 

This must be CT season. Even though I didn't "graduate from the Durva club" by only making it to 18 Infusions before being shipped off to the ALK+ mutant gang and started on a Targeted Therapy drug, ALECTINIB, I had my quarterly CT yesterday. Although I don't see my ONC till Thursday, I read the Radiologists report this morning. 
IMPRESSION: Stable exam without evidence of local recurrence or thoracic metastatic disease.
😃

Yay Tomm. This was my first 6 month wait as well. We are blazing trails!

Yay Tomm. This was my first 6 month wait as well. We are blazing trails!

Yay Michelle!

Tom-we ended Durva about the same time. I’m thrilled to report that I am still NED!!!  I’m sure you will do well too!
michelle-how was yours?

Michelle-me either!