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catlady91

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  1. Like
    catlady91 got a reaction from LouT in NED Is a Nice Way To Start the Day   
    That's wonderful news. I'm really happy for you Lou ☺️💕. Time to crack open some champagne 🍾🍾🍾.
  2. Like
    catlady91 got a reaction from Justin1970 in NED Is a Nice Way To Start the Day   
    That's wonderful news. I'm really happy for you Lou ☺️💕. Time to crack open some champagne 🍾🍾🍾.
  3. Like
    catlady91 reacted to LouT in NED Is a Nice Way To Start the Day   
    I had my first annual CT Scan yesterday (lobectomy was 5/2/19) and although I was concerned about the longer interval between scans all worked out well.  The scan result reads "stable with no evidence of recurrant or malignant neoplasm".  I have my meeting with the oncologist on Wednesday and can focus on the future. Scanziety is real, but some great folks in my life kept my feet on the ground and my head on my shoulders while God did the rest.  I'm quite blessed.

    Lou
  4. Like
    catlady91 reacted to LouT in Progression   
    Sue Maria,
    So glad you found our forum, but Justin's questions are appropriate.  Can you tell us more about what your diagnosis was, when it occurred and the treatments you've had so far?  We have folks here with varied types of LC (lung cancer) and treatments and once we understand more about your situation we'll be able to share our experiential knowledge with you.  

    Lou
  5. Like
    catlady91 got a reaction from Justin1970 in How often and what do you have for imaging checkups?   
    My mum has a scan every 4 months. Her oncologist said that she could scan her less often but she said she wants to take extra care of my mum. 
  6. Thanks
    catlady91 got a reaction from LilyMir in How often and what do you have for imaging checkups?   
    My mum has a scan every 4 months. Her oncologist said that she could scan her less often but she said she wants to take extra care of my mum. 
  7. Like
    catlady91 got a reaction from LouT in How often and what do you have for imaging checkups?   
    My mum has a scan every 4 months. Her oncologist said that she could scan her less often but she said she wants to take extra care of my mum. 
  8. Like
    catlady91 got a reaction from Tom Galli in How often and what do you have for imaging checkups?   
    My mum has a scan every 4 months. Her oncologist said that she could scan her less often but she said she wants to take extra care of my mum. 
  9. Like
    catlady91 got a reaction from Pstar in Deep sadness crawling back   
    These feelings are completely normal. Everybody with cancer including loved ones of cancer suffers have those moments. I know I do. I try not to think too much into the future and focus on the present and the small things that I have to look forward to such as a holiday or going out for drinks and dinner with family. I guess it's different when you have young children and there are so many milestones far off in the future. 
    Nobody can predict the future. What people expect from the future doesn't always happen. Somebody might be told that their cancer is terminal and they have months left to live but 20 years later they're still alive! 
    I can understand it's very emotional to think about your children's futures. I sometimes get emotional about my mum as well especially if I hear somebody pass away from cancer. I think could that happen to my mum and I get depressed.
    Every person and every cancer is different. Lung cancer has seen so many advances in treatment over the past decade. More than other cancers such as pancreatic cancer where there's been very little progress. I think you mentioned that you have NSCLC which is far easier to treat than small cell which is far more aggressive.
    There's a lot of hope out there. I read an article in my mum's Polish magazine about lung cancer. In the article it said that lung cancer is no longer a death sentence and even with stage 4, survival is no longer measured in months and that even some people can live for more than 10 years.
    Cancer is scary and unpredictable but try to stay positive. You will have moments like this where you worry and feel great sadness for the future but it's completely normal. Those feelings are perfectly valid but fears do not predict the future. Nobody can. The future is unpredictable and with it comes good possibilities. I hate when people ask the question "where do you see yourself in 5 years time". I have no idea! Life changes and plans and priorities change too. People want who try to predict the future and plan their futures clearly are afraid of uncertainty and losing control. Although unpredictability can be scary, it can also be exciting and full of unexpected things that turn out to be good. 
    Try to focus on the present and things to look forward in the near future such as a holiday or a day out with your family. I also think it's important to have hope. Thanks to lung cancer treatment, more and more people are enjoying a future which wouldn't have been possible in the past. When my mum was diagnosed with stage 3B lung cancer in Feb 2020, the consultant said that 10 years ago such a diagnosis would have been very bad news and my mum would only really be given palliative care but now there's been such rapid advances in treatment that this diagnosis is no longer a death sentence.
    2 and a half years later, my mum is alive, well and thriving and NED! She hasn't had any treatment since Jan 2021!  
    Anything is possible xx
  10. Like
    catlady91 reacted to BridgetO in Good news. Mum still NED.   
    Yay for Mum and her best friend NED!
  11. Like
    catlady91 reacted to LilyMir in Good news. Mum still NED.   
    So very happy for your mom, and you, @catlady91! 
  12. Like
    catlady91 reacted to LilyMir in Deep sadness crawling back   
    Thanks everyone for sharing your heartfelt thoughts and your very kind support. We all seem to share similar burdens of this miserable disease and it means so much when I hear from you! I am feeling a bit better, trying to break the cycle of sadness but I may consider medication and will talk to my GP if this continues. One more chemo cycle to go next week so I will try going back to hope again, at least for now. Thanks again!
  13. Like
    catlady91 got a reaction from RJN in Good news. Mum still NED.   
    Mum's oncologist called her about the results of her latest routine monitoring CT scan and she's still NED. No changes. Next scan in 4 and a half months. 
  14. Like
    catlady91 got a reaction from LilyMir in Good news. Mum still NED.   
    Mum's oncologist called her about the results of her latest routine monitoring CT scan and she's still NED. No changes. Next scan in 4 and a half months. 
  15. Thanks
    catlady91 got a reaction from LilyMir in Deep sadness crawling back   
    These feelings are completely normal. Everybody with cancer including loved ones of cancer suffers have those moments. I know I do. I try not to think too much into the future and focus on the present and the small things that I have to look forward to such as a holiday or going out for drinks and dinner with family. I guess it's different when you have young children and there are so many milestones far off in the future. 
    Nobody can predict the future. What people expect from the future doesn't always happen. Somebody might be told that their cancer is terminal and they have months left to live but 20 years later they're still alive! 
    I can understand it's very emotional to think about your children's futures. I sometimes get emotional about my mum as well especially if I hear somebody pass away from cancer. I think could that happen to my mum and I get depressed.
    Every person and every cancer is different. Lung cancer has seen so many advances in treatment over the past decade. More than other cancers such as pancreatic cancer where there's been very little progress. I think you mentioned that you have NSCLC which is far easier to treat than small cell which is far more aggressive.
    There's a lot of hope out there. I read an article in my mum's Polish magazine about lung cancer. In the article it said that lung cancer is no longer a death sentence and even with stage 4, survival is no longer measured in months and that even some people can live for more than 10 years.
    Cancer is scary and unpredictable but try to stay positive. You will have moments like this where you worry and feel great sadness for the future but it's completely normal. Those feelings are perfectly valid but fears do not predict the future. Nobody can. The future is unpredictable and with it comes good possibilities. I hate when people ask the question "where do you see yourself in 5 years time". I have no idea! Life changes and plans and priorities change too. People want who try to predict the future and plan their futures clearly are afraid of uncertainty and losing control. Although unpredictability can be scary, it can also be exciting and full of unexpected things that turn out to be good. 
    Try to focus on the present and things to look forward in the near future such as a holiday or a day out with your family. I also think it's important to have hope. Thanks to lung cancer treatment, more and more people are enjoying a future which wouldn't have been possible in the past. When my mum was diagnosed with stage 3B lung cancer in Feb 2020, the consultant said that 10 years ago such a diagnosis would have been very bad news and my mum would only really be given palliative care but now there's been such rapid advances in treatment that this diagnosis is no longer a death sentence.
    2 and a half years later, my mum is alive, well and thriving and NED! She hasn't had any treatment since Jan 2021!  
    Anything is possible xx
  16. Like
    catlady91 got a reaction from Justin1970 in Deep sadness crawling back   
    These feelings are completely normal. Everybody with cancer including loved ones of cancer suffers have those moments. I know I do. I try not to think too much into the future and focus on the present and the small things that I have to look forward to such as a holiday or going out for drinks and dinner with family. I guess it's different when you have young children and there are so many milestones far off in the future. 
    Nobody can predict the future. What people expect from the future doesn't always happen. Somebody might be told that their cancer is terminal and they have months left to live but 20 years later they're still alive! 
    I can understand it's very emotional to think about your children's futures. I sometimes get emotional about my mum as well especially if I hear somebody pass away from cancer. I think could that happen to my mum and I get depressed.
    Every person and every cancer is different. Lung cancer has seen so many advances in treatment over the past decade. More than other cancers such as pancreatic cancer where there's been very little progress. I think you mentioned that you have NSCLC which is far easier to treat than small cell which is far more aggressive.
    There's a lot of hope out there. I read an article in my mum's Polish magazine about lung cancer. In the article it said that lung cancer is no longer a death sentence and even with stage 4, survival is no longer measured in months and that even some people can live for more than 10 years.
    Cancer is scary and unpredictable but try to stay positive. You will have moments like this where you worry and feel great sadness for the future but it's completely normal. Those feelings are perfectly valid but fears do not predict the future. Nobody can. The future is unpredictable and with it comes good possibilities. I hate when people ask the question "where do you see yourself in 5 years time". I have no idea! Life changes and plans and priorities change too. People want who try to predict the future and plan their futures clearly are afraid of uncertainty and losing control. Although unpredictability can be scary, it can also be exciting and full of unexpected things that turn out to be good. 
    Try to focus on the present and things to look forward in the near future such as a holiday or a day out with your family. I also think it's important to have hope. Thanks to lung cancer treatment, more and more people are enjoying a future which wouldn't have been possible in the past. When my mum was diagnosed with stage 3B lung cancer in Feb 2020, the consultant said that 10 years ago such a diagnosis would have been very bad news and my mum would only really be given palliative care but now there's been such rapid advances in treatment that this diagnosis is no longer a death sentence.
    2 and a half years later, my mum is alive, well and thriving and NED! She hasn't had any treatment since Jan 2021!  
    Anything is possible xx
  17. Like
    catlady91 got a reaction from Susanrae in Deep sadness crawling back   
    These feelings are completely normal. Everybody with cancer including loved ones of cancer suffers have those moments. I know I do. I try not to think too much into the future and focus on the present and the small things that I have to look forward to such as a holiday or going out for drinks and dinner with family. I guess it's different when you have young children and there are so many milestones far off in the future. 
    Nobody can predict the future. What people expect from the future doesn't always happen. Somebody might be told that their cancer is terminal and they have months left to live but 20 years later they're still alive! 
    I can understand it's very emotional to think about your children's futures. I sometimes get emotional about my mum as well especially if I hear somebody pass away from cancer. I think could that happen to my mum and I get depressed.
    Every person and every cancer is different. Lung cancer has seen so many advances in treatment over the past decade. More than other cancers such as pancreatic cancer where there's been very little progress. I think you mentioned that you have NSCLC which is far easier to treat than small cell which is far more aggressive.
    There's a lot of hope out there. I read an article in my mum's Polish magazine about lung cancer. In the article it said that lung cancer is no longer a death sentence and even with stage 4, survival is no longer measured in months and that even some people can live for more than 10 years.
    Cancer is scary and unpredictable but try to stay positive. You will have moments like this where you worry and feel great sadness for the future but it's completely normal. Those feelings are perfectly valid but fears do not predict the future. Nobody can. The future is unpredictable and with it comes good possibilities. I hate when people ask the question "where do you see yourself in 5 years time". I have no idea! Life changes and plans and priorities change too. People want who try to predict the future and plan their futures clearly are afraid of uncertainty and losing control. Although unpredictability can be scary, it can also be exciting and full of unexpected things that turn out to be good. 
    Try to focus on the present and things to look forward in the near future such as a holiday or a day out with your family. I also think it's important to have hope. Thanks to lung cancer treatment, more and more people are enjoying a future which wouldn't have been possible in the past. When my mum was diagnosed with stage 3B lung cancer in Feb 2020, the consultant said that 10 years ago such a diagnosis would have been very bad news and my mum would only really be given palliative care but now there's been such rapid advances in treatment that this diagnosis is no longer a death sentence.
    2 and a half years later, my mum is alive, well and thriving and NED! She hasn't had any treatment since Jan 2021!  
    Anything is possible xx
  18. Like
    catlady91 got a reaction from Judy M2 in Deep sadness crawling back   
    These feelings are completely normal. Everybody with cancer including loved ones of cancer suffers have those moments. I know I do. I try not to think too much into the future and focus on the present and the small things that I have to look forward to such as a holiday or going out for drinks and dinner with family. I guess it's different when you have young children and there are so many milestones far off in the future. 
    Nobody can predict the future. What people expect from the future doesn't always happen. Somebody might be told that their cancer is terminal and they have months left to live but 20 years later they're still alive! 
    I can understand it's very emotional to think about your children's futures. I sometimes get emotional about my mum as well especially if I hear somebody pass away from cancer. I think could that happen to my mum and I get depressed.
    Every person and every cancer is different. Lung cancer has seen so many advances in treatment over the past decade. More than other cancers such as pancreatic cancer where there's been very little progress. I think you mentioned that you have NSCLC which is far easier to treat than small cell which is far more aggressive.
    There's a lot of hope out there. I read an article in my mum's Polish magazine about lung cancer. In the article it said that lung cancer is no longer a death sentence and even with stage 4, survival is no longer measured in months and that even some people can live for more than 10 years.
    Cancer is scary and unpredictable but try to stay positive. You will have moments like this where you worry and feel great sadness for the future but it's completely normal. Those feelings are perfectly valid but fears do not predict the future. Nobody can. The future is unpredictable and with it comes good possibilities. I hate when people ask the question "where do you see yourself in 5 years time". I have no idea! Life changes and plans and priorities change too. People want who try to predict the future and plan their futures clearly are afraid of uncertainty and losing control. Although unpredictability can be scary, it can also be exciting and full of unexpected things that turn out to be good. 
    Try to focus on the present and things to look forward in the near future such as a holiday or a day out with your family. I also think it's important to have hope. Thanks to lung cancer treatment, more and more people are enjoying a future which wouldn't have been possible in the past. When my mum was diagnosed with stage 3B lung cancer in Feb 2020, the consultant said that 10 years ago such a diagnosis would have been very bad news and my mum would only really be given palliative care but now there's been such rapid advances in treatment that this diagnosis is no longer a death sentence.
    2 and a half years later, my mum is alive, well and thriving and NED! She hasn't had any treatment since Jan 2021!  
    Anything is possible xx
  19. Like
    catlady91 got a reaction from LouT in Deep sadness crawling back   
    These feelings are completely normal. Everybody with cancer including loved ones of cancer suffers have those moments. I know I do. I try not to think too much into the future and focus on the present and the small things that I have to look forward to such as a holiday or going out for drinks and dinner with family. I guess it's different when you have young children and there are so many milestones far off in the future. 
    Nobody can predict the future. What people expect from the future doesn't always happen. Somebody might be told that their cancer is terminal and they have months left to live but 20 years later they're still alive! 
    I can understand it's very emotional to think about your children's futures. I sometimes get emotional about my mum as well especially if I hear somebody pass away from cancer. I think could that happen to my mum and I get depressed.
    Every person and every cancer is different. Lung cancer has seen so many advances in treatment over the past decade. More than other cancers such as pancreatic cancer where there's been very little progress. I think you mentioned that you have NSCLC which is far easier to treat than small cell which is far more aggressive.
    There's a lot of hope out there. I read an article in my mum's Polish magazine about lung cancer. In the article it said that lung cancer is no longer a death sentence and even with stage 4, survival is no longer measured in months and that even some people can live for more than 10 years.
    Cancer is scary and unpredictable but try to stay positive. You will have moments like this where you worry and feel great sadness for the future but it's completely normal. Those feelings are perfectly valid but fears do not predict the future. Nobody can. The future is unpredictable and with it comes good possibilities. I hate when people ask the question "where do you see yourself in 5 years time". I have no idea! Life changes and plans and priorities change too. People want who try to predict the future and plan their futures clearly are afraid of uncertainty and losing control. Although unpredictability can be scary, it can also be exciting and full of unexpected things that turn out to be good. 
    Try to focus on the present and things to look forward in the near future such as a holiday or a day out with your family. I also think it's important to have hope. Thanks to lung cancer treatment, more and more people are enjoying a future which wouldn't have been possible in the past. When my mum was diagnosed with stage 3B lung cancer in Feb 2020, the consultant said that 10 years ago such a diagnosis would have been very bad news and my mum would only really be given palliative care but now there's been such rapid advances in treatment that this diagnosis is no longer a death sentence.
    2 and a half years later, my mum is alive, well and thriving and NED! She hasn't had any treatment since Jan 2021!  
    Anything is possible xx
  20. Like
    catlady91 got a reaction from Tom Galli in Deep sadness crawling back   
    These feelings are completely normal. Everybody with cancer including loved ones of cancer suffers have those moments. I know I do. I try not to think too much into the future and focus on the present and the small things that I have to look forward to such as a holiday or going out for drinks and dinner with family. I guess it's different when you have young children and there are so many milestones far off in the future. 
    Nobody can predict the future. What people expect from the future doesn't always happen. Somebody might be told that their cancer is terminal and they have months left to live but 20 years later they're still alive! 
    I can understand it's very emotional to think about your children's futures. I sometimes get emotional about my mum as well especially if I hear somebody pass away from cancer. I think could that happen to my mum and I get depressed.
    Every person and every cancer is different. Lung cancer has seen so many advances in treatment over the past decade. More than other cancers such as pancreatic cancer where there's been very little progress. I think you mentioned that you have NSCLC which is far easier to treat than small cell which is far more aggressive.
    There's a lot of hope out there. I read an article in my mum's Polish magazine about lung cancer. In the article it said that lung cancer is no longer a death sentence and even with stage 4, survival is no longer measured in months and that even some people can live for more than 10 years.
    Cancer is scary and unpredictable but try to stay positive. You will have moments like this where you worry and feel great sadness for the future but it's completely normal. Those feelings are perfectly valid but fears do not predict the future. Nobody can. The future is unpredictable and with it comes good possibilities. I hate when people ask the question "where do you see yourself in 5 years time". I have no idea! Life changes and plans and priorities change too. People want who try to predict the future and plan their futures clearly are afraid of uncertainty and losing control. Although unpredictability can be scary, it can also be exciting and full of unexpected things that turn out to be good. 
    Try to focus on the present and things to look forward in the near future such as a holiday or a day out with your family. I also think it's important to have hope. Thanks to lung cancer treatment, more and more people are enjoying a future which wouldn't have been possible in the past. When my mum was diagnosed with stage 3B lung cancer in Feb 2020, the consultant said that 10 years ago such a diagnosis would have been very bad news and my mum would only really be given palliative care but now there's been such rapid advances in treatment that this diagnosis is no longer a death sentence.
    2 and a half years later, my mum is alive, well and thriving and NED! She hasn't had any treatment since Jan 2021!  
    Anything is possible xx
  21. Sad
    catlady91 reacted to Chuck K in Need to vent   
    .Hey everyone 
    At age 61 this is probably the hardest year yet. Within a year we lost both my wife's parents to covid and I was diagnosed with stage 4 lung cancer. It took me several months to get the courage to tell my dad I have cancer because I knew it would worry him sick. I did lose my dad yesterday but 15 minutes before he passed while he was conscious I told him my last scan showed no cancer lighting up. His eyes opened and he said that's good.I am so grateful I could tell him that because he said in the pass he couldn't handle losing a child. Sorry for the venting 
    Chuck
  22. Like
    catlady91 reacted to Kelvin4426 in Good news. Mum still NED.   
    Gratz to your mom! You and your mom give me many hope for my mom as your mom has the closest treatments that my mom has
  23. Like
    catlady91 reacted to Tom Galli in Deep sadness crawling back   
    Lily,
    I do get into dark zones, even now--nearing 19 years after diagnosis. My memory of treatment and the recollection of foreboding are there as if the episode occurred yesterday. I can't forget; I choose not to allow the past to have power over my life. And, I need to be on constant guard to ensure I keep my cancer experience in a box. I open it to share a treatment tip or trick, then promptly close it up.
    To be truthful, I didn't come to this "mindfulness zone" alone. During treatment, I was deeply depressed about my future and I buried my depression. I was a nutcase until my general practitioner intervened noting signs of my depression. Then therapy and medication lifted me from my dark space.
    I know exactly how you feel. I bet most on this forum do also. You will never be a "normal person" but you can be a new normal person. People you meet in life who've not lived this mayhem are often well intended. But they do not understand the depth and breath of how lung cancer (most cancer, most lethal illnesses) affects you. Without understanding, a well meaning comment becomes a key to opening the dark space box. But you hold the key to lock it--turn the key.
    You have the mental discipline to use Mathematics and Physics to solve problems. You also understand the limits of these sciences; they don't work on life or people problems. Take that understanding and apply it to put a box around the dark zone.
    Stay the course.
    Tom
     
  24. Sad
    catlady91 reacted to LilyMir in Deep sadness crawling back   
    Hi friends,
    Today was a special day. My boy had a tour of his new school with us mom and dad. He will start grade 1 this Sep. I was surprised with the sheer sadness that came over me, the 'feeling sorry for myself' kind, the 'why me', the 'what on earth just happened to my life' , the 'will I be here to see my boy graduate grade 1?' and 'what will happen to him if I die' kind.
    My boy was so happy and we are thrilled to send him to in person classes this year though part of us remains so worried about all the diseases that school may bring home while I am still in active chemo then targeted therapy. We informed the school about my condition and a nice admin was I guess trying to relate and said something like... she really feels for me as her xx family member died from lung cancer. I did not know what to say. I thanked her...
    Do you guys get into these dark zones periodically too? I could not stop crying all afternoon. I hide from my family and cry profusely. I don't want to feel or be like this but I cannot help it. This lung cancer is so miserable and I feel I cannot relate to "normal people" anymore. I am miserably failing the 'one day at a time' for sure.
  25. Like
    catlady91 reacted to Pstar in Brain MRI: It's not horrible news, just not what I wanted   
    So sorry to hear that Karen but hopefully your radiologist can give you a better idea of where you go from here. Yes I agree that lung cancer is an endless waiting game. Enjoy your bike ride and have a great time visiting friends and family!
    Pam
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